Hidradenitis suppurativa is a skin condition that is often undiagnosed or misdiagnosed. Many ppl live in shame not realizing how many others are dealing HS as well. We need to bring more awareness to HS.

7/31 Edited to

... Read moreLiving with hidradenitis suppurativa (HS) can be isolating and confusing, especially since it is commonly mistaken for other skin issues like infections or simple boils. From my experience and discussions with others facing HS, the recurring painful boils and nodules typically appear in sensitive areas such as the armpits, groin, breasts, and buttocks. Unlike typical infections, HS is rooted in chronic inflammation and not bacterial infection, which means antibiotics often fail to provide lasting relief. What I found particularly helpful was recognizing that HS has a hormonal component and is frequently linked with conditions like polycystic ovarian syndrome (PCOS) and insulin resistance. This connection often explains why some treatments targeting metabolic health can have a positive impact on HS symptoms. Additionally, early intervention with systemic medications—before the condition progresses to tunneling or scarring—can significantly improve long-term skin health. Many people with HS also experience emotional distress due to the stigmatized nature of these recurrent lesions, which may cause them to delay seeking help. Building awareness in communities and among healthcare providers is crucial to reduce shame and promote understanding. Finding a knowledgeable dermatologist who is experienced in HS management can make a tangible difference in care quality and outcomes. Emerging treatments involving GLP-1 receptor agonists, commonly used for diabetes and weight management, have shown promise in improving HS by addressing underlying inflammation and insulin resistance. It is encouraging to see such advances that target the disease holistically. If you suspect you have HS or suffer from chronic boils or ‘ingrown hairs’ in typical areas, consider seeking evaluation from a dermatologist who can accurately diagnose HS through a detailed history and physical examination. Proper diagnosis is the first step toward improving quality of life and managing symptoms effectively. Sharing experiences and supporting one another through HS communities also offers emotional relief and practical tips for coping with this challenging condition.

Related posts

Draining My Hidradenitis Suppurativa Flare Up
I was diagnosed with hidradenitis suppurativa, a skin condition that causes recurring, boil-like abscesses. I get them in my armpits, groin, thighs, and under my stomach. It can hit at any moment, whether I’m draining a flare, bandaging myself, or just looking in the mirror. It’s a constant reminde
Imani Futrell

Imani Futrell

4768 likes

A flat lay of various personal care products on an orange fabric background, including a body wash, body butter, antiseptic cleanser, bar soap, deodorant stick, flare care product, and a powder puff with powder.
A white bar of soap in its packaging rests on an orange fabric surface, with text indicating it is a primary product for a routine.
A white pump bottle of body wash is shown on an orange fabric, with text highlighting its moisturizing and softening properties for skin.
Surviving Hidradenitis Suppurativa✨🛟
Living with HS is like being in a toxic situationship with your own skin! Unpredictable, painful, and full of surprises you didn’t sign up for😩🔥. But these products? They help keep the drama (Flare ups) to a minimum. Follow me on my Socials for more info on the subject and to see me try new tricks
PaigeXAaliyah

PaigeXAaliyah

120 likes

How to keep Hidradenitis suppurativa under control
Disclaimer: I am not a medical professional and this is how I personally treat my condition. I’ve had a long and rough history with HS and I didn’t find any routines that helped me until around a year ago. I just want to spread the knowledge to people who are also dealing with this issue. #hid
Mara

Mara

165 likes

Hidradenitis Suppurativa skin transformation #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

1114 likes

HIDRADENITIS SUPPURATIVA REMINDERS
✨ Living with HS can be overwhelming at times. Alongside the physical pain, there’s still work, responsibilities, showing up for others, and everything else life asks of us. It’s so easy to put ourselves last. But this HS journey has taught me that I have to take care of me before I can truly take
Imani Futrell

Imani Futrell

916 likes

HIDRADENITIS SUPPURATIVA -LIVING WITH HS!🌸
Hi, I’m Imani, aka Mott, a content creator living with Hidradenitis Suppurativa (HS), a chronic condition that causes painful, recurring abscesses. I’m passionate about raising awareness for HS while sharing my journey and giving advice on how to manage it. Follow along to learn more, find support,
Imani Futrell

Imani Futrell

906 likes

#hidradenitissuppurativa #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #dermdocheather #drheatherderm
Heather Kornmehl, MD

Heather Kornmehl, MD

30 likes

A diagram illustrating common body locations and varying appearances of a skin condition, labeled mild, moderate, and severe. An overlay states, "How I stopped having frequent inflammation!".
A package of antibacterial deodorant soap, recommended for everyday use, emphasizing clean rinsing and odor protection for healthy skin.
A large bottle of an antiseptic/antimicrobial skin cleanser, suggested for use 3-4 times a week, designed to prevent skin infections.
stop inflammation of Hidradenitis suppurativa
#hidradenitissuppurativaawareness #hidratenitissuppuritiva #hidradenitissuppurativacommunity #natural remedies #hidradenitissuppurativa Additional Tips: after applying draw salve apply bandaid with gauze for best results❣️
Diamond Brown

Diamond Brown

219 likes

Your surgeon 👨‍⚕️ won't want you to know about this oil🙅🏾‍♀️ #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

107 likes

Chronic illness holistic options
Having to make the move from TikTok so hopefully my community finds me over here😅 #hidradenitissuppurativa #hswarrior #skincare #dermatologist #chronicillnesswarrior
Crystal Summerz

Crystal Summerz

449 likes

Health Snacks PCOS|Diabetes| Hidradenitis
#pcosfood #diabetes #hidradenitissuppurativa #homemaderecipes #insulinresistance
Crystal Summerz

Crystal Summerz

47 likes

A package of antibacterial bar soap, described as effective for cleansing and supporting skin health during breakouts.
A tube of topical gel, noted as dermatologist-prescribed, which helps manage skin bacteria and supports skin health during breakouts.
A bottle of exfoliating toner, used to help reduce the appearance of dark marks from scars, with a note that it can cause a stinging sensation.
Hidradenitis Suppurativa ✨
HS is more common than people think they are just miseducated or afraid to say something . You are not alone u can not be down on yourself for something you have no control over ! But use these to help maintain love u🫶🏼❤️ #hidradenitissuppurativasupport #glowyskin #glassskin #naturium #targ
Piffy Rose 🌹

Piffy Rose 🌹

137 likes

HIDRADENITIS SUPPURATIVA BANDAGES! 💪🏾
I have hidradenitis suppurativa, which means my daily routine can be quite challenging. On average, it takes me 1-1.5 hours to make sure my bandages are properly applied, that I’ve showered, and that all my necessary creams and ointments are in place. Sometimes, it can even take up to 2 hours depen
Imani Futrell

Imani Futrell

346 likes

Am I cooked chat🫠😭 #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

10 likes

#dermatologist #hidradenitissuppurativa #pcos #diabetes #hidradenitissuppurativaawareness #dermdocheather #drheatherderm
Heather Kornmehl, MD

Heather Kornmehl, MD

40 likes

Spring Watermelon Salsa✨🤌
Giving up your favorite foods overnight? Nearly impossible. Finding a way to make them work for you? Game changer. 💡 When a fellow warrior said salsa was non-negotiable, I knew I had to create a nightshade-free version. #salsa #nightshades #guthealth #hidradenitissuppurativa #hswarrior
Crystal Summerz

Crystal Summerz

42 likes

Fighting Hidradenitis Suppurativa (HS) 💉
⚠️ ‼️ Graphic images of the condition on slides number 2 and 5 ‼️⚠️ Hidradenitis Suppurativa (HS) is a chronic skin condition that causes painful bumps, abscesses, and scarring, often in areas like the underarms, thighs, breasts, groin, and even the booty sometimes 🤯. It’s more than just a “ski
Margarita

Margarita

65 likes

How i got REAL PAIN RELIEF from Hidradenitis Suppurativa  #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine #chronicillness #chronicpain
Pressed by Brandi llc.

Pressed by Brandi llc.

10 likes

Hidradenitis Suppurativa
This fight is not for the weak #hidradenitissuppurativaawareness #hidradenitissuppurativacommunity #hs #hidradenitis
Shambrae

Shambrae

23 likes

A real Christmas miracle✨💫 #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine #dancechallenge
Pressed by Brandi llc.

Pressed by Brandi llc.

6 likes

POV: you suffer from painful bumps and boils A.K.A. Hidradenitis Suppurativa and you just found this account  #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

678 likes

#hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

14 likes

HIDRADENITIS SUPPURATIVA FLAREUPS ON 🍑
Currently dealing with a 🍑 flare! Hidradenitis Suppurativa (HS) is a long-term skin condition that causes painful, recurring lumps or abscesses. These lumps can look like boils and usually appear where hair follicles are, like under the arms or around the groin. #hidradenitissuppurativa #hswarr
Imani Futrell

Imani Futrell

358 likes

A title slide displaying 'Products for HS' with various cosmetic containers, including dropper bottles and jars, on a light-colored surface with shadows.
A white bottle of antibacterial body wash, with text indicating it should be used daily and left on skin for up to 3 minutes.
A package of strong hold, pain-free removal tape, with text stating it is safe for use in delicate areas.
Products for HS
I am not a medical professional. These are the products I have found helpful while dealing with Hidradenitis Suppuritiva. #hidradenitissuppurativaawareness #hidratenitissuppuritiva #hs #hidradenitissuppurativasupport #wedontgatekeep
Duchessmay

Duchessmay

15 likes

For my hs girlie's
I was dx with Hidradentitis Suppurativa (hs) for about a year 1 1/2 ... I've had 7 surgeries, in the last 9 months and had a flare until I started taking these products twice a day everyday I drink more water 💧 intake thxs to my owala bottle, what do ya'll take for flare ups #Lemon8
shestaydoinke

shestaydoinke

37 likes

A white jar of a topical salve, with an overlay indicating it is for individuals with HS. The product label lists benefits for various skin concerns like ingrown hairs, splinters, boils, and cysts.
The white jar of the topical salve, showing the front label. It states the product is fast-acting and extra strength, addressing issues like boils, cysts, ingrown hairs, splinters, and thorns.
The side of the white jar, displaying information that the product is original, homeopathic, and made with natural ingredients in the USA. It also shows the volume as 1 FL OZ.
HS (Hidradenitis Suppurativa)Sufferers
If you suffer from HS(Hidradenitis Suppurativa) this is a gem! This will help you tremendously! You can purchase it off of AMAZON!
Keshia M

Keshia M

37 likes

A bag of bath salts for relaxation and muscle relief, alongside a bar of moisturizing soap designed for sensitive skin.
Hidradenitis Suppurativa
Having Hidradenitis Suppurativa stage 3 I now went through so many products and spent so much money. These are my go to and I will never leave them. I have my bag label skin aka flare kit bag. So ready for injection day Friday and I can say COSENTYX is helping managing my currently flares making it
🍫🍫💕 Teressa Terry 💕🍫🍫

🍫🍫💕 Teressa Terry 💕🍫🍫

10 likes

HIDRADENITIS SUPPURATIVA HELPFUL SOAP (HS)
If you suffer from HS like I do, this soap helps me out so much. I use to suffer so much from HS where I couldn't even put my arm down for days!!! Certain soap use to irritate my underarms so bad because that is where my HS would form. I learned that sometimes I get it in between my thi
Eli Nichelle

Eli Nichelle

372 likes

Them: I can't get rid of this boil. It hurts so bad😖 #hidradenitissuppurativaawareness #skincareroutine #hidradenitissuppurativawarrior #chronicillness
Pressed by Brandi llc.

Pressed by Brandi llc.

2 likes

✨Salmon Pasta✨ Gut health is Skincare
Did you know what you eat has a large impact on of course how you feel but also your skin? Tomatoes are in the nightshade family, but they’re not triggering for me, but they can be for others so, just leave those out. Since they’re cooked, they help with lycopene🫶🏾💜 #inflammatoryfoods #foodforgu
Crystal Summerz

Crystal Summerz

221 likes

Having HS may be apart of your life but not all of it 🥹🫶🏾 #chronicillness #hidradenitissuppurativa #hs
Tatyana Edgeworth

Tatyana Edgeworth

433 likes

How I got relief from painful boils #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

23 likes

Hidradenitis Suppurativa skin transformation #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

15 likes

HIDRADENITIS SUPPURATIVA VS. TANKTOPS
Um…Yes! Alright besties and baddies, let’s get into the tea! I remember when I used to be so self-conscious about going outside in just a tank top or a bodysuit with my padding underneath. Honestly, I’d be lying if I said I was completely okay with it now. There are still times when I feel a little
Imani Futrell

Imani Futrell

169 likes

This one product gave me pain relief from Hidradenitis Suppurativa #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine #review
Pressed by Brandi llc.

Pressed by Brandi llc.

12 likes

How I finally got relief from painful boils from Hidradenitis Suppurativa #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

5 likes

If you just got diagnosed with Hidradenitis Suppurativa you need to stop getting your boils lanced🙅🏾‍♀️🙅🏾‍♀️🙅🏾‍♀️ #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

82 likes

😮‍💨 #wabisabi #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior
Pressed by Brandi llc.

Pressed by Brandi llc.

12 likes

Perfect song 😏 #hidradenitissuppurativaawareness #skincareroutine #chronicillness
Pressed by Brandi llc.

Pressed by Brandi llc.

5 likes

People who don't have HS won't understand 🙅🏾‍♀️ #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

12 likes

Chronic illness ❤️‍🩹😔
#hidradenitissuppurativa United States
HS Queen 👑

HS Queen 👑

14 likes

HIDRADENITIS SUPPURATIVA | Bimzelx Biologic
Y’all, I almost didn’t try this biologic… but I gave it a shot—and I’m so glad I did. I’m excited to share my journey with Bimzelx, a newer biologic being explored for HS. Before this, I was on Humira, and it didn’t work for me. That’s the hard part—what helps one person might not help anothe
Imani Futrell

Imani Futrell

103 likes

I love The Earnest Oul for my Hidradenitis Suppurativa #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #skincareroutine
Pressed by Brandi llc.

Pressed by Brandi llc.

7 likes

HIDRADENITIS SUPPURATIVA FLARE UP DRAINS 💪🏾🩹💕
I’ve been dealing with a flare for the past week, and yesterday I woke up and felt it finally drain 👏🏾. In that moment, so many emotions ran through me, but the biggest one was relief! It felt like a weight lifted off my shoulders after days of pain, pressure, and discomfort. Finally, I could just
Imani Futrell

Imani Futrell

101 likes

👉SHARE with a friend who NEEDS this #dermatology #skintag #hidradenitissuppurativaawareness #dermdocheather #drheatherderm
Heather Kornmehl, MD

Heather Kornmehl, MD

8 likes

#dermatologist #hidradenitissuppurativaawareness #hidradenitissuppurativawarrior #dermdocheather #drheatherderm
Heather Kornmehl, MD

Heather Kornmehl, MD

10 likes

New addition!
This tattoo isn’t just art—it’s a reminder of every storm I’ve learned to move through. From health diagnoses and healing journeys to learning to trust myself again, every element carries meaning. The koi represent perseverance, the lotus represents growth through hardship, and the flowers remin
daija.lynn

daija.lynn

25 likes

You arent dirty either #dermguru #dermtok #hs #hidradenitissuppurativa #hidradenitissuppurativawarrior #boils #greenscreen #greenscreenvideo
Dermguru

Dermguru

69 likes

See more