MCAS Fun Facts #22
Environmental chemicals and fragrances are frequent triggers, even at low concentrations.
Pic is from a flare I had that was triggered by lotion. I took the lotion in to my allergist and I wasn’t allergic to any of the ingredients. MCAS just decided not to like it one day for no good reason. I ended up in anaphylaxis 😑 From lotion. 🙄🎉🧴#MCAS #mastcellactivationsyndrome #chronicillness #spoonie #fyp
It's truly wild how unpredictable MCAS can be, isn't it? Just like my experience with that lotion, sometimes our bodies react violently to things we least expect, even when allergy tests come back negative. It's not just about what we eat; environmental chemicals and fragrances are massive culprits, often even at low concentrations, and they can hide in plain sight. Beyond lotions, I've had to become a super-sleuth for triggers. Think about your cleaning products – laundry detergents, air fresheners, even dish soap can contain perfumes and chemicals that send mast cells into overdrive. I once reacted to a new floor cleaner my neighbor used! It's not always about direct contact; airborne irritants from perfumes, candles, or even car exhaust can trigger a flare. Switching to 'free and clear' or 'hypoallergenic' options has been a game-changer for many of us, but even then, vigilance is key. One common, yet often overlooked, trigger that many in the MCAS community discuss is the 'after-shower rash' or general sensitivity to water. It sounds bizarre, but a significant number of us experience MCAS rash after shower. This can be due to several factors. First, the temperature of the water itself can be a trigger – too hot or too cold can be problematic. I've found lukewarm showers are best for me. Then there's the water quality; chlorine and other chemicals in tap water can be highly irritating for sensitive skin. Some people have found relief using shower filters that remove chlorine and heavy metals. What about your soap, shampoo, and conditioner? Just like my lotion saga, these are often loaded with fragrances, sulfates, and other potential irritants. Opting for truly unscented, minimalist products can make a huge difference. Even the physical friction of showering or drying with a towel can sometimes be enough to irritate already sensitive mast cells, leading to that tell-tale rash on the forearm and wrist, just like the one in the picture. Identifying these hidden MCAS triggers takes patience and often feels like detective work. My best advice? Keep a detailed journal. Note down everything you've come into contact with – new foods, cleaning products, personal care items, even changes in weather or stress levels – and track any symptoms, especially rashes or other flare signs. It helps to spot patterns that you might otherwise miss. Elimination diets are common for food, but an 'environmental elimination' can be just as crucial. Start by simplifying your environment: use only unscented, natural products for a few weeks, then slowly reintroduce things one by one to see what causes a reaction. Remember, every MCAS journey is unique, and what triggers one person might not affect another. But understanding that environmental chemicals and fragrances are major players, even in low concentrations, and being aware of common issues like the MCAS rash after shower, empowers us to better manage our condition. It’s about listening to your body and advocating for yourself in a world that isn't always designed for our sensitivities.


