My Icks As A Micropreemie Mama😵‍💫

As the mama of a tiny baby girl born at only 1lb 1oz, we had a 5 month NICU stay where I lived in the hospital the entire duration. My daughter Dove, due to her severe prematurity, was unfortunately born with many critical health issues, some of which will affect her for the rest of her life. 5 months in the NICU, deciding whether or not to pull the plug on her twice, and the rollercoaster of ups and downs was extremely traumatic to say the very least.

People generally don’t know what to say and are usually just trying to be kind. However, when you’re in the thick of the worst nightmare of your life, sometimes things just rub you the wrong way whether intentional or not. These are some of my ”icks” as a micropreemie mama. 🫠🤍

#storytime #icks #micropreemie #momsoflemon8 #nicumom #prematurebaby #pregnancy #birthstory #hospitallife #babygirl

Lucile Packard Childrens Hosp
2024/2/2 Edited to

... Read moreWhen you hear 'micropreemie,' it might sound like just another medical term, but for parents like me, it defines a profound, life-altering journey. A micropreemie is typically a baby born weighing less than 1 pound, 12 ounces (800 grams) or before 26 weeks gestation. My daughter, Dove, came into the world at an incredibly fragile 1lb 1oz, marking the beginning of our intense 5-month stay in the NICU. It's a world few understand, filled with beeping machines and tiny miracles. Understanding the micropreemie meaning is the first step to truly grasping the depth of our experiences. One of the most defining images of a micropreemie's early life is the incubator. It's not just a fancy cot; it's a meticulously controlled environment, a lifeline. Seeing my baby girl, so small, nestled inside with countless medical tubes and wires connecting her to vital support, was overwhelming. Every breath, every feeding, every tiny movement was monitored. The queries about micro preemie incubator genuinely reflect a desire to understand this critical piece of equipment that keeps our babies safe. It's a place of hope, but also a constant reminder of how delicate life can be when a baby is still developing outside the womb. Beyond the specific comments I shared, raising micro preemies involves a unique set of challenges that extend far beyond the NICU walls. While in the hospital, living in a hospital gown, you're constantly fighting for your child, advocating for their needs, and learning medical jargon. Comments like "You're lucky! It doesn't even look like you had a baby!" or "At least you didn't have to push out a big baby" really miss the mark. They ignore the immense physical and emotional toll, the sleepless nights spent by a bedside, the procedures, and the constant fear. It's a marathon, not a sprint, and your body and mind are forever changed. The flat stomach comment, for example, completely bypasses the emotional scars and the fact that you did have a baby, just one who needed a different kind of fight to survive. The constant pressure to "go home" or "rest" while your child fights for their life is an isolating experience. The journey continues long after discharge. Families often search for micro preemie's first smile after 76 days in NICU because these milestones are monumental. For us, every tiny gain, every removed tube, every gram gained, felt like a huge victory. It's a slow, often uncertain path. That's why comments like "Aw, she's grown! So glad to see she's better" can be so frustrating. While we celebrate every step, the reality of raising micro preemies often means ongoing therapies, specialists, and developmental support for years. The term "better" is relative; it's about progress, not a sudden fix. It's a mother's story of resilience, hope, and unwavering love, facing unique challenges that shape our perspective forever. If you know a NICU parent, simply offering a listening ear or practical help (like a meal) means more than you know.

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SySy's images
SySy

Someone made a comment to me because we took one night off of visiting the NICU out of nine whole weeks. We took one night and they told us “i bet your baby is crying out in the hospital for you all alone.” All because we didn’t want another hospital cafeteria date

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Lil.Swiftie1029's images
Lil.Swiftie1029

I hate the 4 one like you have to stay at hospital when giving birth 🤰 and after you give birth you have to stay at the hospital for a little while

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