This breaks my heart for obvious reasons. I don’t ever want her to be alone with me when I have a seizure. Luckily, dad could see the entire thing happen and talk to Halston through the camera. He was just at the gas station to grab some Gatorade for Payson. I have actually been seizure free for quite some time and I had been really proud of myself. Sometimes I get too confident in the fact that I’ve been seizure free for a while and get sloppy about medication times. There are quite a few more videos as this night took a turn for the worst shortly after. Thankfully, Halston has grown up in this meaning that she feels very calm and comfortable in these situations. I feel terrible that she has to have a mom with epilepsy. I also feel proud of her to know to hold my head up and that she didn’t get too scared. She clearly doesn’t understand that I can’t help it yet which is why she kept yelling mom stop it while also keeping her calm and not getting too afraid. She is very resilient and just went back to her show after my seizure ended. I have a lot of feelings about all of it and I’m sad I have Epilepsy.

#EpilepsyAwareness #SeizureLife #DisabilityMotherhood #ServiceDogLife

4/17 Edited to

... Read moreExperiencing a seizure in front of loved ones is emotionally challenging, especially when children are involved. One thing I've learned through personal experience is the importance of creating a calm and safe environment for kids when seizures occur. Children like Halston, mentioned in the article, often don't fully understand what's happening, which can be scary for both parent and child. However, with time, many kids develop remarkable resilience and a sense of calm, especially when supported by family members who communicate clearly and provide reassurance. As someone who has navigated living with epilepsy, I can relate to the feelings of guilt and sadness that come with worrying about your child's safety during a seizure. Medication management is crucial, and even a small lapse can lead to episodes, affecting not just the individual but the whole family. Keeping to a strict medication schedule, using reminders or pill organizers, has helped me maintain better control over my health. Additionally, technology such as video monitoring or seizure alert devices can offer peace of mind for parents and caregivers. It’s reassuring to have an extra set of eyes, especially during times when you might be alone with your child and worried about a seizure. Importantly, educating children about seizures in an age-appropriate way can empower them to respond calmly and confidently. Teaching them simple actions like calling for help, staying close without touching during convulsions, and keeping the person safe until the seizure ends can make a big difference. Living with epilepsy involves many emotional ups and downs, but sharing these experiences openly, like Jaime Simpson’s story, fosters greater understanding and awareness. It also strengthens community support for families affected by seizures, showing that resilience and love go hand in hand when facing such challenges together.

2 comments

Ashley Green's images
Ashley Green

I'm sorry you have to go through that and your daughter is a very brave little girl especially to help you awwwwwww 🥺🥺🥰🥰🥰🥰🥰🥰

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