I’m blind, I see some and don’t see some lol #chi

You might have seen my quick post, 'I’m blind, I see some and don’t see some lol,' and I wanted to dive a little deeper into what that actually means for me, living with choroideremia. It's a rare genetic eye condition that causes progressive vision loss, and it's been a significant part of my life's journey. For me, living with choroideremia isn't about complete darkness, but rather a constantly shifting landscape of what I can perceive. It often starts with night blindness, then peripheral vision loss, and slowly progresses. I’ve learned to describe it as having a 'spotlight' vision – I can see things directly in front of me, but the world around that central focus can be blurry, dark, or simply absent. This unique way of seeing means every day is an adventure in adaptation, especially here on the farm. Farm life presents its own set of challenges and joys when you have choroideremia. Simple tasks like feeding the chickens or checking on the crops require a different approach. I rely heavily on my other senses – the familiar clucking of my hens tells me where they are, the feel of the soil between my fingers guides me when gardening, and my memory helps me navigate paths I’ve walked a thousand times. There are definitely moments of frustration, like when I misplace a tool or can't quite make out a distant animal, but I've found that patience and a good sense of humor are my best companions. My chickens, by the way, are surprisingly good at alerting me to things! They're like little feathered guideposts. One of the biggest lessons choroideremia has taught me is the importance of truly appreciating what you can see and experience. While I may not see the panoramic view of the sunset over my fields, I can see the vibrant colors of a single flower up close, or the intricate patterns on a chicken's feather. It forces you to slow down, to focus on the details, and to find beauty in unexpected places. It's not just about coping; it's about finding a unique perspective on life itself. I’ve also discovered the incredible strength within myself and the kindness of others. My family and friends have been a huge support system, understanding my needs and cheering me on. And connecting with others in the choroideremia community has been invaluable. Sharing experiences, tips, and simply knowing you're not alone makes a world of difference. It's a journey, and while it has its ups and downs, I'm grateful for the insights it's given me. So, when I say 'I see some and don't see some,' it’s my personal way of embracing life with choroideremia. It's about living fully, adapting creatively, and finding joy in every corner of my farm, regardless of how much or how little I can physically see. It’s a reminder that true vision comes from within.