Life with a VP Shunt: Almost 2 Years Later
September marks 2 years since I got my VP shunt—and wow, what a journey it’s been.
Living with a shunt isn’t always easy. Some days are filled with fatigue, headaches, weird pressure changes, or just wondering if everything is still working like it should. But despite it all, I’ve learned to listen to my body, advocate for myself, and celebrate the little victories—like waking up pain-free or going a whole week without symptoms.
It’s a reminder every single day that I’m strong, even on the hard days.
I’ve met amazing warriors in this journey, and I just want to say: if you’re living with a shunt too, you’re not alone. We’re out here pushing through, living life, and doing our best.
Here’s to year 3—hopefully smoother, definitely stronger.
#VPShuntWarrior #HydrocephalusAwareness #LifeWithAShunt #ChronicIllnessJourney #StillStanding
Living with a VP shunt is a unique experience that many patients face after a hydrocephalus diagnosis. Hydrocephalus occurs when excess cerebrospinal fluid accumulates in the brain, and a VP shunt helps manage this condition by diverting the fluid away. Over the years, I’ve learned crucial self-care strategies that make daily life more manageable—from keeping a symptom diary to facilitate discussions with my healthcare providers, to joining support groups online where I share experiences and gain insights. Understanding the potential complications associated with shunt systems, such as infection or malfunction, is also vital. Regular check-ups with a neurologist can help monitor your health and ensure everything is functioning correctly. Let's advocate for mental health support too, as the emotional journey can often be just as challenging as the physical one. As we transition into year three, it's essential to prioritize wellness, strengthen our community, and continue sharing our stories. Through open conversations and understanding, we can empower each other and foster resilience in our shared journey with chronic illness.