✨ Chronic Illness Journey ✨
Living with pseudotumor cerebri, constant migraines/headaches, and even having a VP shunt in place is no easy road. Some days the pressure is unbearable, other days it feels like I can finally breathe.
Today marks Day One of me starting Ajovy injections 💉. It’s not a cure, but I’m hopeful this will give me more control over the unpredictable and help lighten the weight of these migraines.
💭 To anyone else battling invisible illnesses—you’re not alone. Whether it’s shots, shunts, or sleepless nights, we keep showing up, pushing forward, and writing our own story.
#DayOne #ChronicIllnessWarrior #MigraineRelief #PseudotumorCerebri #InvisibleIllness #VPShuntJourney #Ajovy
Starting a new medication like Ajovy can feel like a big step, especially when you're already managing complex conditions like pseudotumor cerebri and chronic migraines. My initial post shared the emotional side of Day One, but I wanted to add some practical insights for anyone else considering or starting this journey. Navigating the world of injections, especially an autoinjector, can be daunting at first, but with a little preparation, it becomes much more manageable. First off, let's talk about the Ajovy packaging and what to expect. My prescription came as an Ajovy (fremanezumab-vfrm) injection 225 mg/1.5 mL, similar to the professional sample I saw. Inside, you'll find the prefilled syringe or autoinjector, along with detailed instructions. It's crucial to read these thoroughly before your first use. One key thing to remember from the storage instructions is that Ajovy needs to be kept refrigerated, but you should let it warm up to room temperature for about 30 minutes before injecting. Never try to warm it up artificially, like in a microwave! When it comes to the actual Ajovy injection process, choosing your injection sites is important. The common sites for subcutaneous use are your stomach (at least two inches from your belly button), the front of your thighs, or the back of your upper arms (if someone else is giving you the shot). I found rotating sites each week or month helps prevent irritation. For me, the autoinjector was surprisingly easy to use. It’s designed to be user-friendly, with a click to indicate the injection has started and another click when it’s complete. It delivers the fremanezumab dose automatically. I made sure to clean the area with an alcohol wipe first and let it dry completely. Some people worry about pain with the Ajovy injection. While everyone’s experience is different, I found it to be a quick, mild pinch. Taking it out of the fridge a bit early to reach room temperature definitely helps. After the injection, I just applied a little pressure to the site (without rubbing) to make sure there wasn't any bleeding. It's also good to know how to properly dispose of the autoinjector; typically, it goes into a sharps container. Remember, Ajovy isn't a cure, but a preventive treatment designed to reduce the frequency and severity of migraines. For someone like me, dealing with the daily pressure of pseudotumor cerebri and the constant threat of a migraine attack, any reduction in symptoms can be life-changing. It’s about gaining more control over an unpredictable condition. Connecting with others who understand the challenges of invisible illness, whether it’s a VP shunt journey or a battle with chronic pain, makes the road feel less lonely. Keep advocating for yourself and exploring options that offer even a glimmer of hope for a better quality of life.


I’ve been on that for awhile but I think it stopped working for me 😩