trauma dump in description
My daughter was born in July and everything was just so perfect. I had a beautiful oversupply, she had a fantastic latch but she started throwing up daily like something out of the exorcist and losing weight so quickly. I was going to three lactation consultants a day, multiple doctors, multiple scans (they did a pyloric stenosis test THREE TIMES in a month for some reason before considering anything else -.-) eventually we had to bring her to children’s where they found our original doctors had missed a serious Congenital heart disease called a Complete Atrioventricular Septal Defect, which causes over oxygenation of the lungs which caused her to have FTT. so many of the specialists had told me she wasn’t gaining weight due to my over supply, or my let downs, and when she was born I had asked about her funny breathing and I was kind of gas lit repeatedly. I never stopped fighting until we got our diagnosis. She now eats orally and has a PEG-J tube running 24/7 a day. We need to get her up to 12 lbs before they can do an open heart surgery on bypass. She has so many meds she needs a day through her tube and so many doctor’s appointments. I cant lie and say I am not exhausted in every sense of the world but I will fight and tooth and nail until my little bug is thriving and better.
The journey through motherhood can be both beautiful and heartbreaking, especially when health complications arise in your child. Many parents face challenges similar to those described, struggling to navigate the medical system while advocating for their child's well-being. When a child is diagnosed with a rare condition such as Complete Atrioventricular Septal Defect (AVSD), it can feel like an uphill battle. Parents often find themselves researching conditions, seeking second opinions, and attending numerous appointments, just like the author did. The emotional toll and sheer exhaustion can be overwhelming. Parents might seek online communities or forums, perhaps tagged with #safespace, to share their experiences and gather support from others facing similar journeys. Resources on coping mechanisms, wellness practices, and self-care for caregivers become invaluable, focusing on maintaining mental health while caring for a child with complex health needs. Additionally, safe spaces online may assist parents in exchanging tips about feeding techniques or managing medical needs effectively. As with the case of congenital heart disease, timely intervention and ongoing care can make a significant difference in a child's quality of life. Ultimately, the resilience shown by parents in these situations can inspire others to continue fighting for their children’s health.
You’re a strong momma and your babygirl is one tough little cookie 🫶🏼🫶🏼🫶🏼