Alarming fall from seizure

Wasn’t prepared for what happened #FND

2025/1/5 Edited to

... Read moreThat day, I was just enjoying a routine trip while shopping when suddenly, everything changed. I experienced an alarming fall from what turned out to be a seizure. One minute I was looking at shelves, the next I was on the floor, disoriented and in pain. It was a terrifying and unexpected moment that really highlighted how unpredictable FND can be. For those who haven't experienced it, you might wonder, 'what does having a seizure feel like?' For me, there was a brief, intense feeling of detachment, almost like the world was pulling away, then a blank. The next thing I remember was the confusion, the throbbing head, and the intense 'severe muscle pain after seizure.' Every muscle in my body ached as if I’d run a marathon, and the exhaustion was profound. It’s not just the fall itself, but the lingering physical repercussions that are so challenging. It took days for the extreme soreness to subside, making even simple movements difficult. Many people also ask, 'how does a seizure look like?' From what I've been told by those who witnessed it, it wasn't the typical grand mal presentation. It was more sudden, leading directly to the fall, which is often characteristic of certain non-epileptic seizures or those related to FND. Recognizing the 'warning signs of a seizure in adults' is crucial, though with FND, these can be incredibly subtle or even absent. Sometimes it's a strange sensation, a fleeting aura, or just an overwhelming feeling of dread. For me, there wasn't a clear warning this time, which is why the fall was so alarming. It underscores the need for greater awareness around diverse seizure presentations, especially non-epileptic seizure warning signs. Dealing with the aftermath of a 'seizure after falling down' is a whole journey. Beyond the physical recovery from the impact of the fall, there's the emotional and mental toll. It makes you think about safety, especially when you're out alone. I’ve started looking into practical tools like a 'best watch for seizure detection' to help monitor future events and provide some peace of mind. It’s also made me more conscious about factors like sleep deprivation, as 'sleep deprived epilepsy' is a known trigger for some, and while my seizures are FND-related, fatigue certainly doesn't help. Knowing what 'someone experiencing a seizure needs to' do is also incredibly important for bystanders. Simple actions like cushioning their head, clearing space, and staying with them until they recover can make a huge difference. I'm learning more about general 'epilepsy do's and don'ts' not just for myself, but to share with loved ones so they feel more prepared. This experience, while scary, has pushed me to be more proactive in understanding my condition and advocating for myself. It’s a reminder that we’re not alone in these struggles, and sharing our stories can help others feel seen and understood.

18 comments

Amalia 🇵🇷❤️🌺's images
Amalia 🇵🇷❤️🌺

At least she wasn’t alone 🙏🏽🥺🥺🥺

Debra Treviño's images
Debra Treviño

I understand ur pain… I hate it also☹️

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