My POTS journey: how I got my diagnosis
POTS (postural orthostatic tachycardia syndrome) is a chronic illness that affects the autonomic nervous system. It causes high heart rate, temperature regulation difficulty, dizziness, fainting, and much more. It took me around a year to get my POTS diagnosis. I saw multiple specialists who ran many tests.
I was first given a 5 day heart monitor to test for tachycardia (high heart rate).
Then I had an echocardiogram to make sure my heart was structurally okay.
I also had a tilt table test to see if I faint while standing up (spoiler: I fainted).
Since my heart rate was abnormal during my tilt table test, I had a loop recorder implanted to monitor my heart rate long term.
Unfortunately, my doctor didn't think my positive tilt table test and tachycardia were cause for concern, so I had to seek out another doctor.
I ended up going to neurology and looking for other cardiologists, with no avail.
My neurologist ended up putting me on a beta blocker and it ended up helping with the tachycardia. I also ate more sodium rich foods which mitigated my symptoms.
Finally, I found a POTS specialist who was able to diagnose me right away and gave me a proper treatment plan that helps me lead a somewhat normal life.
Thanks for reading!
#potssyndrome #lemon8challenge #recovery #embracevulnerability #unfiltered
Postural Orthostatic Tachycardia Syndrome (POTS) can be a challenging condition to navigate. Characterized by an abnormal increase in heart rate upon standing, it often complicates daily living. Among the common symptoms are severe dizziness, fatigue, and fainting spells. Timely diagnosis is crucial for effective treatment, but many patients face a lengthy journey as specialists might overlook signs or misdiagnose. It's not uncommon for POTS patients to undergo multiple diagnostic tests—including heart monitors, echocardiograms, and tilt table tests—to pinpoint their condition. In addition to identifying POTS, patients often benefit from lifestyle changes and targeted treatment plans. Increasing fluid and salt intake are commonly recommended to help increase blood volume, while compression garments can aid in blood circulation. Medications such as beta-blockers may also provide relief from symptoms. It’s essential for those experiencing symptoms of POTS to advocate for themselves, seeking second opinions if necessary. Establishing a support network, including connecting with other members of the POTS community, can provide emotional and practical support through this journey. Ultimately, with the right diagnosis and tailored treatment, individuals with POTS can lead productive lives while managing their symptoms effectively.
i have my first doctors appointment today 🩵 i’ve done a lot of research so i’m hoping i have a speedy diagnosis 😭