I live with rheumatoid arthritis.

And no… it’s not the arthritis people joke about when it rains, and it’s not something that only happens to the elderly. It’s not just “a little joint pain.”

Rheumatoid arthritis is a debilitating autoimmune disease where my own immune system attacks my body like it’s the enemy.

It attacks my joints, yes… but it can also affect my heart, lungs, eyes, and other organs. It brings inflammation, swelling, fevers, and a level of bone-deep exhaustion that sleep doesn’t fix.

It’s waking up already tired.

It’s joints that feel like they belong to someone decades older.

It’s pain that doesn’t clock out when the day ends.

And the truth that people don’t talk about enough is how lonely this road is.

Because no one can truly understand what it feels like to live in a body that is constantly fighting itself.

After a while, people get tired of hearing

“I’m exhausted.”

“My joints hurt today.”

“I’m having a flare.”

Sometimes they stop asking.

Sometimes they stop listening.

Sometimes they start thinking you’re exaggerating.

But the pain is still there.

The fatigue is still there.

And you keep fighting your body anyway.

Women are two to three times more likely to develop rheumatoid arthritis than men, and studies show that people with RA—especially women and younger patients—are more susceptible to depression.

Honestly, that’s not surprising. Living in constant pain while trying to keep up with life takes a toll most people never see.

March is Autoimmune Disease Awareness Month, and rheumatoid arthritis is just one of more than 80 autoimmune diseases that can completely change a person’s life.

If you know someone living with an autoimmune disease, just remember:

they may look fine… but their body is fighting a war you can’t see.

Those of us living with autoimmune diseases are a special kind of strong.

Not because we want to be…

but because we have to be.

Every. Single. Day.

🫶

#chronicpain #rheumatoidarthritis #AutoimmuneDisease #chronicillness #spoonie

North Carolina
3/15 Edited to

... Read moreIt's so true what's said about looking fine on the outside when you're living with an autoimmune disease like rheumatoid arthritis. My personal "rheumatoid arthritis face" is often a mask I perfect every morning before stepping out the door. People see a smiling woman, maybe like the one in the picture, and assume everything is okay. But what they don't see is the immense effort it takes to project that image, especially when your body is waging war against itself. One aspect of RA that often goes unmentioned, but profoundly affects how I present myself, is the impact on my face and head area. For instance, my temporomandibular joint (TMJ), which connects my jaw to my skull, can become inflamed and extremely painful. Chewing can become a nightmare, making even simple meals a challenge. Sometimes, my jaw just locks up, making it difficult to talk or even manage a natural smile. It's an invisible agony that shapes my expressions and forces me to be constantly mindful of how I move my mouth. Then there's the constant battle with dryness. Many people with RA also experience Sjögren's Syndrome, which causes severe dry eyes and dry mouth. My eyes often feel gritty, red, and tired, no matter how much sleep I manage to get. This contributes to that "tired look" I try so hard to hide. Hydrating constantly and using specific eye drops become non-negotiable routines just to maintain a semblance of comfort. The dry mouth, too, can affect my speech and overall facial comfort throughout the day. And the fatigue – oh, the fatigue. It's not just feeling sleepy; it's a profound exhaustion that permeates every cell. This bone-deep tiredness doesn't just make me feel drained; it shows. My eyes might look heavy, my skin can lose its natural glow, and no amount of rest, no matter how much I try to get, seems to fix it. I put a lot of effort into my skincare and makeup routine, not out of vanity, but as a way to combat the visible signs of this relentless weariness and maintain a sense of normalcy. It's a small act of defiance against a disease that tries to steal my vitality. Sometimes, even the medications meant to help come with their own set of challenges that affect my appearance. Steroids, for example, can cause what's affectionately (or not so affectionately) known as "moon face," where my face becomes puffy and round. It's another layer of dealing with a body that feels foreign, where even the solutions bring new visual changes. It's a constant balancing act – wanting to present a strong, capable "face" to the world, to be seen as more than just my illness, while internally battling so much. This journey has taught me a deep sense of empathy for others and a fierce desire to advocate for invisible illnesses. It's why I've learned to be kinder to myself on those days when the mask feels too heavy, and to appreciate the strength it takes just to get through each day. And it's why I always remind myself and others to look beyond the surface, beyond the smile, because true battles are often fought in silence, unseen.

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