Myasthenia Gravis Action Figure & information
I was severely gaslit and this disease left me bedridden for two years. I was then in a wheelchair and had to wait until I advocated for a treatment that worked with my body and not against it. I almost was unalived multiple times. A ton of ICU stays and hospitalizations in the process. I’m hoping this series of photos helps someone identify MG in their self (like I did when my initial doctors said I was lying when it came back I had a RARE antibody for it). This almost unalived me with delayed care, gaslighting, and lack of knowledge about this disease. If you are showing any of these signs and symptoms, please SPEAK UP and don’t let them say it’s nothing if you know it’s something. YOU KNOW YOUR BODY BETTER THAN ANYONE ELSE!! #myastheniagravis #raredisease #myastheniagravisawareness #generalmyastheniagravis #ocularmyastheniagravis #facialdrooping #nuero #hospital #rare #learnontiktok #fypシ
Myasthenia Gravis (MG) is a chronic autoimmune disease affecting the communication between nerves and muscles. Its symptoms can vary widely, but they often include muscle weakness, fatigue, and ocular issues such as drooping eyelids or blurred vision. Patients may experience fluctuating weakness in the limbs and face, leading to very real challenges in daily activities. Awareness is key when dealing with rare diseases like MG. Often misdiagnosed or overlooked, the early signs may include difficulty in speaking (dysarthria), eating (dysphagia), and respiratory issues such as breathlessness. Despite the hardships, sharing experiences can empower others who might be struggling with their health. In dealing with MG, advocacy for proper treatment is crucial, as many individuals face gaslighting or disbelief from peers and sometimes healthcare professionals. Initiatives aimed at raising awareness and supporting those living with rare diseases are vital for better diagnosis and treatment options. By encouraging people to recognize symptoms and advocate for themselves, we can foster a more informed and supportive community around Myasthenia Gravis. The path to treatment can often be long and fraught with challenges, but understanding the disease, its signs, and the importance of voicing concerns can lead to better outcomes and a healthier life. If you experience symptoms consistent with MG, do not hesitate to seek medical advice, educate yourself, and join support groups to share your journey.






