Transforaminal steroid injections for EDS 💉
I had my second series of transforaminal lumbar steroid injections for my chronic pain from hEDS and arthritis. This time we did them in my L4-L5, instead of L3-L4, hoping for increased relief from last time.
If I don’t get significant relief from this procedure, we can try the same nerve root blocks I’m having in my cervical spine, and then hopefully ablations like I’m getting in my neck.
It’s scary getting injected in and near your spine, and I am a huge advocate for conscious sedation. Blue Cross Blue Shield does not cover conscious sedation, where my previous plan with United Healthcare did. I paid $25 to have 2mL of versed, which makes a world of difference when you’re having a risky procedure that requires that you remain still. Some pain management providers do not offer sedation for these procedures.
NOTE: Steroid injections are not always recommended for people with Ehlers Danlos Syndrome. This procedure has reduced risk by not directly injecting steroid into the nerve root, but there is still risk of further degradation of the joints, poor wound healing, and bleeding as a result of EDS and steroid injections.
Transforaminal steroid injections serve as a potential treatment for chronic pain, especially in patients with conditions like Ehlers-Danlos Syndrome (hEDS) and arthritis. These injections target the lumbar spine, aiming to alleviate pain and improve mobility. While many patients find relief, it’s crucial to understand the associated risks, particularly for those with hEDS. Ehlers-Danlos Syndrome can lead to fragile connective tissues, raising concerns about joint degradation and wound healing with steroid use. Patients considering this procedure should discuss sedation options with their healthcare providers, as conscious sedation significantly enhances comfort during injections. Insurance coverage should also be addressed, as different plans vary widely in what they cover regarding sedation services. The medical community continues to explore the effectiveness and safety of steroid injections in individuals with hEDS. While these injections can provide substantial relief, ongoing monitoring and evaluation are essential. Research indicates that individualized treatment plans that consider the unique needs and medical history of patients with chronic conditions often yield the best outcomes. For those embarking on this journey, connecting with others who have similar experiences can be invaluable for support and shared knowledge.