Chronie Warrior
Hey, I'm Lesley, and I have Crohn's disease. I was diagnosed in November of 2017, and I've lived the past 5 years coping and advocating in my own way. I represent the face of a person fighting an incurable invisible disease, the smile, and energy of someone who "looks to be ok" on the outside but who is really sick and in pain most days on the inside. The face of a POC fighting a disease that usually is seen as only being a "Caucasian disease," the face of a warrior that lives with Crohn's disease but doesn't wear a colostomy or ileostomy bag, the face of a woman who has endured numerous of long days and nights fighting in the hospital; and 4 hrs + getting immunosuppressive drugs infused monthly just to keep her going. But most importantly, it's the face of someone who still tries to see the beauty in herself despite all that Crohn's and other invisible illnesses have caused her to endure.
With this week being IBD awareness week and today ending it, I want to encourage you all to take the time to listen and hear the hearts of those who choose to speak of their own life stories and experiences of living life with a disease that causes unpredictability, instability, and turmoil; while at the same time causing us to dance on the hopes of resilience and faith. To all my warriors, continue speaking up and sharing, and to those listening and watching, thank you for opening your hearts to learn something new.
#ibdvisible #invisibleillness #ccawarenessweek #crohnsdisease #ulcerativecolitis
Resources to learn more:
@crohnsandcolitistalk
@crohnscolitisfoundation
@colorofcci
Crohn's disease and ulcerative colitis are types of inflammatory bowel disease (IBD), affecting millions worldwide. They often cause extreme fatigue, abdominal pain, and other debilitating symptoms. This article can serve as a beacon for those struggling with similar experiences, providing insight and hope. During IBD Awareness Week, it’s crucial to amplify voices like mine to bring attention to the difficulties faced by those living with these conditions. Education is key—understanding the symptoms, treatment options, and coping strategies can significantly improve life quality for patients. Communities, online forums, and support groups play an essential role in fostering connections and sharing resources. Encouragingly, medical advancements continue to provide better management options for Crohn's disease. From dietary adjustments to new medications, individuals can tailor their treatments to suit their needs. Continuous advocacy and awareness initiatives help to destigmatize this invisible illness, promoting a culture of empathy and support. Ultimately, sharing our stories not only aids individual healing but also paves the way for collective action towards better healthcare and understanding of IBD. Let us unite in strength and resilience, igniting conversations that matter and encouraging others to embrace their warrior spirit.
