Summer for someone with chronic illness part 2

2025/7/9 Edited to

... Read moreLiving with chronic illness during the summer months presents unique challenges that require careful management and adjustment. Heat sensitivity often leads individuals to stay indoors or in cooler environments to prevent symptom flare-ups. This strategy helps mitigate issues such as increased fatigue, nausea, and elevated blood pressure, which are common among those with conditions like Ehlers-Danlos syndrome and gastroparesis. Frequent blood pressure (BP) checks become an essential part of daily routine to monitor cardiovascular health, especially under physical stress caused by heat or illness progression. High BP readings, as indicated by the OCR mentioning '510 (High) BAD TEST RESULTS,' signify the need for close medical supervision and timely interventions to prevent complications. Having emergency medications like Senokot Extra Strength readily available supports symptom relief and aids in managing digestive issues common in gastroparesis. Maintaining a structured daily schedule that includes plenty of rest and activities such as reading can promote mental well-being despite physical limitations. Celebrating special occasions, like a sibling's birthday, underscores the importance of social connections and emotional support in coping with chronic illness. Regular doctor appointments are pivotal for ongoing assessment and treatment adjustments. Advanced planning and transportation accommodations can ease the burden of frequent healthcare visits. Additionally, the seasonal aspects, such as strawberry season, offer opportunities for enjoying safe, nutritious foods that align with dietary restrictions. In summary, managing summer with chronic illness demands a holistic approach: controlling environmental exposures, consistent health monitoring, proper medication access, and nurturing emotional wellness. These adaptive strategies empower individuals to navigate the complexities of their conditions while preserving a fulfilling quality of life.

Related posts

Chronic Illness - Lupus
#gettoknowme #lupus #lupuswarrior🦋💜 #chronicillness #autoimmune
Karisa Lyons📚🫶🏼✝️☕️

Karisa Lyons📚🫶🏼✝️☕️

54 likes

Things that make chronic illness life easier
let me know if you want more #chronicillness #mobilityaid #spoonie
Shelby

Shelby

305 likes

Things I keep rebuying: chronic illness hospitalization edition, all under $35!!!
Hospitals are supposed to be where you go when things get bad. But during my most recent hospital stay… I was reminded that thinking simply does NOT apply when you have a chronic illness. 7 weeks after my last IVIG (far too late, thanks insurance… not), after travel, stress, and weather fluctuat
Alexandra Wildeson

Alexandra Wildeson

256 likes

Chronic illness Junk journal
I spent a week in the hospital with sepsis so I decided to junk journal about it. I love to make art out of my pain it makes everything feel less sucky when I can make something cute. #chronicillness #artist #junkjournaling #scrapbook #messyjournal
Flame Foxxe•Disabled drag king

Flame Foxxe•Disabled drag king

138 likes

Adapting hobbies for chronic illness & disabilies
I have always loved photography. One of my favorite things used to be the freedom of getting in the car and driving somewhere beautiful just to take landscape photos. Since becoming chronically ill and disabled, my life looks very different. I can’t really be spontaneous anymore, and most thing
Kaelee Hagins

Kaelee Hagins

4 likes

Quotes that hit hard (chronic illness edition)
#lemon8quotes #chronicillnesswarrior #multiplesclerosis #mentalhealthawareness #quotesoftheday
Carrie 🤍

Carrie 🤍

102 likes

Summer with chronic illness 👾
A lot of appts and sleep 😴 #fyp #chronicillness #chronicpainwarrior #ehlersdanlossyndrome #gastroparesis
rhiley

rhiley

20 likes

Morning routine (Chronic illness)
This is for people with chronic illnesses #chronicillness #chronicillnessmanagement
Jozzie

Jozzie

10 likes

Chronic illness girly faves 💝
A few faves that keep me cozy and happy as a chronic illness girly ❣️ #spoonie #chronicillness #chronicillnesswarrior #fyp #pots
rhiley

rhiley

7 likes

Chronic Illness Facts
There’s so many misconceptions about living with a chronic illness, I’d love to hear what you all wish people knew🤍 #chronicillness #chronicallyill #ehlersdanlossyndrome
Unseen & Believed

Unseen & Believed

27 likes

Simple Chronic Illness Support Spell Jar
As a chronic illness girlie I love having this to look at and hold when I’m feeling down about my illnesses 🫶🏻 affirmation: Even on the hard days, my body is worthy of love, care, and compassion. I honor my strength, I listen to my needs, and I choose to treat myself with patience and kindness.
✨EE✨

✨EE✨

27 likes

5 ways to be a writer with a chronic illness
5 simple ways to write with a chronic illness #chronicillness #chronicillnessjourney #chronicillnesswarrior #2025intentions #writers
flawlesslychronic

flawlesslychronic

7 likes

A chronic illness summer ✨
Blood warning on picture 5! #fyp #chronicillness #chronicillnesswarrior #gastroparesis #ehlersdanlossyndrome
rhiley

rhiley

6 likes

how to help a partner with chronic illness
loving a partner with chronic illness is a journey of compassion, patience, and grace. some days, it feels overwhelming. others, it’s about celebrating small wins that others might overlook. i’ve learned that the best support starts with listening without feeling the need to fix. learning about
Belle Grubb

Belle Grubb

7 likes

Chronic illness grief
#Fyp #spoonie #chronicillness #chronicillnesswarrior #pots
rhiley

rhiley

8 likes

Chronic Illness!
#rheumatoidarthiritis #rheumatoidathritiswarrior #chronicillness #chronicpain #warrior
Mel F

Mel F

55 likes

Chronic Illness Affirmations
“This is your reminder: You are allowed to rest. You are allowed to cancel. You are allowed to survive quietly.” #chronicillness #spoonie #invisibleillness #multiplesclerosis #chronicpain
Lauryn👑MS Warrior🧡SAHM of 6🤓😎

Lauryn👑MS Warrior🧡SAHM of 6🤓😎

8 likes

Chronic illness problems part 1
#ehlersdanlossyndrome #heds #dysautanomia #chronicillness #chronicallyill one is suppose to say subluxes but auto correct turned it to sublimes and idk how to fix it lol
Ami

Ami

32 likes

Betrayal List: Chronic Illness Edition
When your own body, meds, doctors, and daily life are constantly against you, yet you keep surviving and pushing through anyway🫶🏾 #betrayallist #chronicillness #chronicallyill
Kayla | Art & Cozy Comforts🫶

Kayla | Art & Cozy Comforts🫶

97 likes

Chronic Illness as a Christian ❣️
Please note: This is personal to how I handle things in my life.. I have doctors and medications that are apart of this journey as well. Chronic Illness used to be something I was scared of and asked God: “Why?” It’s all about perspective, understanding, and trust in our savior. 🤍 Have
Lexi Hess

Lexi Hess

22 likes

✨Chronic Illness Girlies✨
Where are all the chronic illness girlies? #chronicillnesscommunity #chronicillnesslife #chronicillness #autoimmunedisease #chronicillnessawareness
Mar - MA | 🩺 | Lifestyle 🇲🇽

Mar - MA | 🩺 | Lifestyle 🇲🇽

29 likes

Life With Chronic Illness…Food
Living with chronic illness often leads to drastic diet changes. For me, it was going plant-based. For the first year, I went cold turkey. No animal protein at all. This means, not only was I giving up meat, but I was stopping all dairy, including Cheese, eek! This choice was not made lightly, but
JudyJourneyHi

JudyJourneyHi

10 likes

Chronic illness life
Here’s to hoping a long hot bath helps this pain! #reading #kindlepaperwhite #books #chronicillness #tea
MayMay24788

MayMay24788

18 likes

Chronic Illness Life
Come live my Monday with me! Monday is always a long dragging part of the week, but once you get through it, the rest of the week is easy as pie! Stay salty my friends 🧂❤️ #povs #chronicillnessjourney #dayinmylife #roomtour #schoolaesthetic
SharkintheWaters

SharkintheWaters

7 likes

Loving someone with chronic illness
Happy Valentine’s Day! Tips for loving someone with chronic illness: Be understanding Help them out Know about pacing Make them comfy Get helpful products Take care of yourself! Know we are doing our best. Helpful products in link in bio! #beaconsai #valentinesday #valentinesda
Daysha Lopez

Daysha Lopez

4 likes

Chronic illness girly
#potssyndrome #dysautanomia #chronicillnessjourney #chronicillnesswarrior #chronicillnesscommunity
Chronically Ashley𓍊𓋼𓍊𓋼𓍊

Chronically Ashley𓍊𓋼𓍊𓋼𓍊

26 likes

Things people with chronic illness do
Invisible does not equal imaginary #chronicillness #autoimmunediseaseawareness #chronicillnessawareness
hgray

hgray

7 likes

Navigating exercise with a chronic illness
🌸 Working Out with Chronic Illness: My Honest Thoughts 🌸 Let’s be real — working out with a chronic illness isn’t about hitting PRs or chasing that “summer body.” For me (and maybe for you too), it’s about surviving, healing, and learning to trust my body again. 🩷 Some days, my “workout” is s
Syd Rodee

Syd Rodee

347 likes

Living with chronic illness
Even though I go through all of this and more I never fold. I will advocate no matter what. I am a warrior 💜🦋. God is real and has been good to me. 47 years strong dealing with lupus and I’m still standing. I don’t own the rights to the music . #lupusjourney #lupus #lupusstruggles #lupus
TONYA NOEL

TONYA NOEL

33 likes

Healing from chronic illness
I pray you don’t experience what I walked through in my health journey. But I also am so thankful I walked through it. All the suffering, the nausea, the protein shakes to get some calories, the depression, the eczema, the tears and deep dark thoughts the $40k I spent trying to heal…that I c
Lauren_Clayton

Lauren_Clayton

56 likes

Chronic Illness Warrior
Hello there! My name is Jacinta and I am a Chronic Illness Warrior. I deal with multiple Chronic Invisible Illnesses. I want to bring awareness to not only these illnesses, but also how ones can deal with the mental, emotional, and physical pressures they bring. I would like to share my story and w
Jacinta

Jacinta

7 likes

Chronic Illness Tutorial
What I wish people knew about Chronic Illness. We are not all the same, and unless you’re going through it you can’t possibly imagine. So simply show. everyone kindness, patience, empathy, compassion, just love 🫶🏽 #spoonie #multiplesclerosiswarrior #chronicpain #chronicillness #mypower
Lauryn👑MS Warrior🧡SAHM of 6🤓😎

Lauryn👑MS Warrior🧡SAHM of 6🤓😎

8 likes

Witchy Vlog w/ Chronic Illness
another part of me that I didn’t list as a fact on my first post is that I do deal with a series of health issues! I wanted to make this video to show that my day to day fluctuates and it’s okay for yours to do so as well! I deal with Cyclic Vomiting Syndrome, POTS, & Hypermobile Ehlers Danlos
The Baked Witch

The Baked Witch

601 likes

Explaining my chronic illness
#pots #potssyndrome #posturalorthostatictachycardiasyndrome #chronicillness #explore
🤍💙🧡Anna🧡💙🤍

🤍💙🧡Anna🧡💙🤍

3 likes

My chronic illness hobbies
Hi Lovely’s! These are some of my low energy activities I do to still get the most of my day while being stuck at home most often due to my chronic illness! All with music of course! Xoxo #chronicillness #chronicallyill #invisibleillness #invisibledisability #gastroparesis
🤍 Frost 🤍

🤍 Frost 🤍

7 likes

Chronic illness changes everything
Chronic illness doesn’t ask for permission. It reshapes energy, time, plans, relationships and expectations. Slowing down isn’t weakness. It’s often the most honest response the body has. I have been walking the chronic illness path since my diagnosis over 7 years ago; and for much longer t
LifecycleHealing

LifecycleHealing

8 likes

Chronic Illness Life 😵‍💫
6 Different infections. 5.7 Kidney Stone.pinched nerve. collapsed veins ..just to name a few #chronicillnessfighter #chronicillness #audhd #autoimmunedisease
Britt

Britt

12 likes

Chronic illness poem by me🫶✨
#chronicillnesswarrior #autoimmunedisease #autoimmunewarrior #chronicillnessjourney #chronicpain
Amanda 💋

Amanda 💋

51 likes

Chronic illness junk journal: Medical “junk”
Some of the medical “junk” I save to use in my chronic illness junk journal. #junkjournal #scrapbook #chronicillness #medical #junk
Flame Foxxe•Disabled drag king

Flame Foxxe•Disabled drag king

6 likes

Trauma and Chronic Illness
“It’s not all in your head—it’s in your nervous system. Trauma doesn’t just leave emotional scars… it reshapes the body. From autoimmune flares to heart disease, chronic stress can become chronic illness. But healing is possible. You deserve trauma-informed care that sees all of you—your pain, y
Soft Truths 🪽

Soft Truths 🪽

17 likes

Sometimes chronic illness looks like this
Sometimes chronic illness means sitting on the floor in your home library/workout room trying to will yourself up from a recurring sinus infection because you have work to do. It’s so hard sometimes 😭😭😭 I feel horrendous. I’ve had this sinus infection for almost a month now. With the weather go
✨Coach Nia Renee 💜

✨Coach Nia Renee 💜

8 likes

Life & Chronic Illness Coach
Chronic illness isn’t just physical—it messes with your head, your heart, and your sense of who you are. As someone living with Lupus + MCTD, I get it. That’s why I help others shift the emotional and mental weight of autoimmune life—guilt, self-blame, frustration—into self-compassion and real
Life & Chronic Illness Coach🦋

Life & Chronic Illness Coach🦋

1 like

fav app for my chronic illness
~Bearable attention chronic illness girlies!! this app has helped me keep track of my • symptoms • episodes • outside factors • helpful tricks i highly recommend! #chronicillness #tips #healthylifestyle
Libby Vickery

Libby Vickery

16 likes

Chronic illness warriors 💕
#newtolemon8 #cronicpain #ehlersdanlossyndrome #hEDS #potssyndrome
memechaossarah🇨🇦

memechaossarah🇨🇦

7 likes

Chronic Illness: 2 Haut Looks
#twosidesofme #lemon8challenge Being chronically ill means I experience the world through multiple energy and health levels, but these are the main two sides of my experiences of being chronically ill. Sometimes when I have a doctor’s appointment, I have energy to do my hair, makeup, and
Eri’s Edit 💋👛👗💅🏻😷

Eri’s Edit 💋👛👗💅🏻😷

7 likes

Chronic illness holistic options
Having to make the move from TikTok so hopefully my community finds me over here😅 #hidradenitissuppurativa #hswarrior #skincare #dermatologist #chronicillnesswarrior
Crystal Summerz

Crystal Summerz

444 likes

Chronic illness & self care activities pt2
#mental health 🫶🏻 #chronicillnesswarrior #selfcareroutine #selflove
Nicole 🤍

Nicole 🤍

14 likes

Chronic illness awareness 💜
Vulnerability 🤍 My Story: I was diagnosed with Sarcoidosis at the age of 19. Since then I’ve been on a journey with learning how to manage a disease while I’m also starting my journey into adulthood. 🤍 How I Felt: It was a big adjustment that left me feeling depressed, behind in life, scared, an
Destiney A🦋

Destiney A🦋

18 likes

Chronic Illness Witchcraft
Some days you just don’t have enough spoons. #witch #witchcraft #witchesoflemon8 #neurodivergent #chronicillness
AislaCameronWrites

AislaCameronWrites

25 likes

See more