Today I want to speak a little from the heart. 💜
My last major epileptic seizure left me in status epilepticus, on life support, connected to a ventilator, and fighting for my life. That hospitalization affected me so much more than people realize. Honestly, it’s something I rarely talk about and even less something I show, because emotionally it left me deeply traumatized and with fears that I still work through every single day.
After going through something like that, the fear never completely disappears. Sometimes I still get scared, I still have anxiety, and I still think about everything that could have happened. But thanks to my therapists, little by little I’ve learned how to work through those emotions and heal some of the mental scars that experience left behind.
So today, being able to say that I’m almost 3 months seizure free feels huge to me. It’s something I honestly never thought I’d be able to say for a very long time. And even though I know there’s still a long road ahead, today I feel grateful. Grateful to still be here. Grateful to hug my daughter, make plans, breathe a little easier, and slowly find hope again.
I still have so many goals. One of my biggest goals is to make it to 6 months seizure free so I can finally apply for my learner’s permit. It may sound small to some people, but to me it represents independence, freedom, and the possibility of slowly being able to work again, regain normalcy, and recover pieces of my life that epilepsy has taken from me over the years.
I’m also deeply thankful for my doctors. The ones who listen to me, believe in me, and continue fighting alongside me to help me find stability and stay safe. Having a medical team that genuinely cares makes all the difference.
One day at a time. But today, I’m proud of myself. 💜
#epilepsy #epilepsyawareness #seizuresawareness #epilepsywarrior #fyp
Living with epilepsy, especially after a severe episode like status epilepticus, can leave lasting emotional and physical impacts. Many people underestimate how traumatic such experiences can be, not only because of the medical emergency but also due to the psychological aftermath. From my personal experience, managing anxiety and fear after a major seizure is a daily battle. The constant awareness of what could have happened often triggers moments of vulnerability. Therapy and a trusting medical team are essential. Professional support has allowed me to slowly rebuild confidence, enabling progress toward important milestones like regaining independence. Achieving seizure freedom, even for a few months, feels monumental because it symbolizes reclaiming parts of life once overshadowed by epilepsy. One aspect often overlooked is the value of surrounding oneself with compassionate healthcare providers who listen and genuinely care. Their dedication can make all the difference in managing this complex condition. For anyone else going through similar struggles, know that healing is not linear. It requires patience and self-compassion. Setting small, meaningful goals can foster motivation and provide a sense of control. Whether it’s applying for a learner’s permit or resuming work, these steps represent freedom and normalcy. Raising awareness about epilepsy and seizure disorders helps break stigma and encourages more open conversations. Sharing stories like mine strengthens community support and educates others about the challenges faced by epilepsy warriors every day. Remember: progress is made one day at a time, and being proud of each victory, no matter the size, fuels hope and resilience.