Beyond Survival Tomorrow

Reminder! My next guest on Beyond Survival will be Sienna Smith TOMORROW, Tuesday, May 26, 2026 at 11am ET. She will discuss her battle with IIH, including 2 spinal taps and 2 brain surgeries, along with the unexpected loss of her bother. As a chronic illness and healthcare advocate, content creator, published author and a new mom, Sienna wants everyone to know that there is life after grief.

Use my Linktree bio link to access.

Or this link: https://www.youtube.com/live/wLXCy8XCJvo

Link to Facebook event for your calendar: https://www.facebook.com/share/14dXRpKtVum/?mibextid=wwXIfr

#BeyondSurvival #lifeaftergrief #iihawareness #siblinglove #grief

5/25 Edited to

... Read moreLiving with a rare and challenging condition like Idiopathic Intracranial Hypertension (IIH) profoundly impacts daily life, as Sienna Smith’s experience powerfully illustrates. IIH leads to increased pressure in the skull due to excess cerebrospinal fluid, which can threaten vision and require repeated medical procedures such as spinal taps and brain surgeries. From a personal perspective, managing such a condition requires patience, resilience, and a strong support network. Sienna’s story is not just about physical health but also emotional endurance. Losing a loved one, especially a sibling, compounds the strain on health and spirit. Grief often follows no predictable timeline and can deeply affect mental wellness. What’s inspiring is how Sienna turned her pain into advocacy—using her platform to raise awareness about IIH and to support others facing grief and chronic illness. For those living with chronic illnesses or helping loved ones through similar battles, it’s essential to find avenues for emotional healing and community connection. Sienna’s journey highlights the power of storytelling and the importance of reaching out, whether through content creation, writing, or support groups. Her children’s book 'Different Jaden' honors her brother’s memory and provides a resource to help children understand mental health and loss. Moreover, Sienna’s transition into motherhood and advocacy shows that life after profound loss can still hold purpose and joy. For many, chronic illness and grief reshape life but also reveal inner strength and new opportunities for connection. If you resonate with Sienna’s story or want to learn more about IIH and grief recovery, tuning into the Beyond Survival episode will offer both medical insights and heartfelt encouragement. It’s a reminder that beyond survival, there is hope, healing, and new beginnings.

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