My journey with Myasthenia Gravis (MG)

My name is Stevey Rose but my friends call me Rosie..... or at least they would if I had any friends.

I have a rare autoimmune disease called Myasthinia Gravis and after months of battling with insurance I finally got approved for treatment. The treatment i got today is called Rituximab. It was an extremely long day. We had a 2 and a half hour drive to Duke then my infusion was 5 hours long once we got started. MG effects my voice, my ability to walk, my ability to chew and swallow as well as visio#n, arm muscle weakness and I even have issues holding my head up at times.

What is Myasthenia Gravis (MG) ?

MG is a rare autoimmune disease where the immune system attacks nerve signals to your muscles, causing fluctuating weakness and rapid fatigue, especially in muscles for the eyes, face, chewing, swallowing, breathing, walking, hand/eye coordination, inability to support head due to neck muscle weakness and more. It disrupts communication at the neuromuscular junction, preventing muscles from working properly. Symptoms worsen with activity and may improve with rest. MG is a debilitating disease. There's no cure.

Just a girl with Myasthenia Gravis trying to survive... . #autoimmunehealing #myastheniagravis #chronicillnesswarrior #treatmentday #MG /Duke University