#duet with @Trinitys Creations💕 #TikTokLIVE #mom #seizure #seizureawareness #fndawareness
It’s still hard to believe how much my video blew up and continues to resonate with so many of you. When I first started feeling funny in that moment, I honestly didn't think much of it beyond a familiar sensation. But as you saw, those subtle internal shifts quickly led to more noticeable physical signs. My hand movements, for instance, are often one of the first indicators for me that a big seizure is approaching. It's a subtle tremor or an involuntary clenching, almost as if my body starts to change before my mind fully registers what's happening. Living with Functional Neurological Disorder (FND) means navigating these unpredictable moments. FND is a condition where the brain struggles to send and receive signals properly, leading to a range of physical, sensory, or cognitive symptoms that can often mimic other neurological conditions like epilepsy or stroke. For a long time, it was incredibly frustrating because tests would come back 'normal,' yet my body was clearly experiencing something profound. Getting a diagnosis of FND was both a relief and a challenge. A relief, because it finally gave a name to what I was experiencing, validating my struggles. A challenge, because FND is still widely misunderstood, even within the medical community. Recognizing the early signs of a seizure, whether it's related to FND or another condition, can be incredibly empowering. For me, beyond the feeling funny and the hand movements, there can be a sudden wave of disorientation, a metallic taste, or an overwhelming sense of déjà vu. These tiny clues, if you learn to recognize them, can give you a precious few seconds to find a safe space or alert someone nearby. It's not always possible, as seizures can be very sudden, but knowing your body's unique signals is a powerful tool for self-advocacy. The incredible outpouring of support and shared stories after my video went viral has shown me just how many people are out there quietly struggling or feeling isolated. That's why awareness is so crucial. When we share our personal journeys, we not only reduce the stigma associated with conditions like FND and seizures but also educate others on how to recognize symptoms, offer support, and understand what someone might be going through. It helps shift the narrative from 'invisible illness' to a visible, shared human experience. If you or someone you know is experiencing similar symptoms, please reach out to a healthcare professional. Don't dismiss your experiences, even if they seem subtle or difficult to explain. Finding a neurologist or specialist who understands FND or seizure disorders can make a world of difference. Remember, you're not alone in this journey. Every conversation, every shared story, and every moment of awareness contributes to a more understanding and supportive community. Let's keep talking, keep sharing, and keep advocating for better understanding and care.




























































