She was a fairy 🧚

This gene targeted chemo better work, istg... 🥴

I started looking at lace wigs ngl Video Description: Samantha showing green screens of her hair before vs during the botched haircut vs then showing how the haircut came out.

Not the powerhouse of the cell 🥴 Video Description: Samantha laying down, wearing striped pj's with an oversized collar, talking about her diagnostic journey and getting hella genetic testiNg

Now I know why my pain mgmt always told me "your 4 is most people's 10" LMAOOOO 💀 Video Description: Samantha wearing hair rollers with red lipstick and red sunglasses. The text overlay reads "me retrospectively realizing my pain was way worse than I realized now that my pain is actually control

It's hard enough living with chronic pain. The stigma makes it worse. Video Description: Samantha in her car talking to the camera. She's wearing hair rollers, red lipstick, and red sunglasses with a halter dress #ChronicPainAwareness #IntrathecalPainPump #ChronicPainLife #Intractabl

The crunching noise... Girl. Video Description: Samantha taking out pink hair curlers and struggling.

Replying to @Jaclyn answered: are intrathecal pain pumps new technology? Video Description: Samantha laying down and talking to the camera. She's wearing red lipstick. #IntrathecalPainPump #IntractablePain #ChronicPainAwareness #PainPump

Replying to @Leigh Sugar my theories about Maffucci syndrome and Olliers Disease having association with Ehlers-Danlos Syndrome 👀

Some people point to the fact that I’m functioning more right now as “proof” that I must not be dealing with the level of health issues I do. So, let’s clear something up: functioning is not the same thing as being pain-free. I live with intractable pain, which means pain so severe that it does

Replying to @Debbie Beedge At midnight, the night before a wedding I was attending alone, I lost the dress I was supposed to wear. So, I did what any rational person would do: I went to my pain pump appointment, begged my doctor for a dose adjustment, had my device break and get fixed, came home… a

At midnight, the night before a wedding I was attending alone, I lost the dress I was supposed to wear. So, I did what any rational person would do: I went to my pain pump appointment, begged my doctor for a dose adjustment, had my device break and get fixed, came home… and made an entire dress fro

Who thinks I should make this dress? 👀 Video Description: Samantha draping an orange fabric over her body to mimic a dress. The text overlay reads "Me contemplating making a wedding guest dress from scratch for a wedding tomorrow, at the last possible moment the night before, after I lost the dr