Chiari Malformation Brain Surgery Survivor 💜

2024/5/8 Edited to

... Read moreChiari Malformation is a serious condition affecting the brain, where brain tissue extends into the spinal canal. Awareness is crucial, especially during Chiari Malformation Month, to educate others about this condition and its effects. Many survivors have to undergo brain surgery, which can be life-changing and requires substantial recovery time. During this process, patients may struggle with mobility and require rehabilitation to learn to walk again. Understanding Chiari's genetic factors and size implications is vital for those diagnosed. Sharing stories of survival not only promotes awareness but fosters community support to overcome the challenges associated with this condition. Together, we can uplift one another, spread knowledge, and support Chiari Malformation initiatives. Every story counts, and your journey matters in bringing attention to this often-overlooked issue.

14 comments

Meagan Cox's images
Meagan Cox

How are you doing now? I had my surgery Nov 9th 2023

April L's images
April LCreator

I’m still figuring out how to work this!!

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My shining star, my little monster, my reason for breathing. You are everything to me. For those that aren’t on my Facebook/Insta/Threads, Luci has to have brain surgery in October. We found out she has a Chiari Malformation that they will be doing surgery to hopefully halt the progression. Please
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bro proved them WRONG
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Watching the progress I’ve achieved post brain surgery is nothing short of a miracle. Yes I said brain surgery. 2019 I had to have a decompression surgery to relieve the symptoms of Chiari Malformation. It was a struggle pre and post surgery. I couldn’t workout, I could barely stand for long peri
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𝐈𝐧𝐠𝐫𝐞𝐝𝐢𝐞𝐧𝐭𝐬: ❤︎︎ 𝐒𝐚𝐮𝐬𝐚𝐠𝐞 𝐥𝐢𝐧𝐤𝐬 ❤︎︎ 𝐑𝐞𝐝 𝐩𝐨𝐭𝐚𝐭𝐨𝐞𝐬 ❤︎︎ 𝐑𝐞𝐝𝐮𝐜𝐞𝐝 𝐟𝐚𝐭 𝐬𝐡𝐫𝐞𝐝𝐝𝐞𝐝 𝐜𝐡𝐞𝐝𝐝𝐚𝐫 𝐜𝐡𝐞𝐞𝐬𝐞 𝐨𝐫 𝐜𝐡𝐞𝐞𝐬𝐞 𝐨𝐟 𝐲𝐨𝐮𝐫 𝐜𝐡𝐨𝐢𝐜𝐞 ❤︎︎ 𝐆𝐫𝐞𝐞𝐧 & 𝐑𝐞𝐝 𝐛𝐞𝐥𝐥 𝐩𝐞𝐩𝐩𝐞𝐫 ❤︎︎ 𝐖𝐡𝐢𝐭𝐞 𝐨𝐧𝐢𝐨𝐧 ❤︎︎ 𝐒𝐞𝐚𝐬𝐨𝐧𝐢𝐧𝐠: 𝐒𝐚𝐥𝐭, 𝐩𝐞𝐩𝐩𝐞𝐫, 𝐆𝐚𝐫𝐥𝐢𝐜 𝐩𝐨𝐰𝐝𝐞𝐫, 𝐎𝐧𝐢𝐨𝐧 𝐩𝐨𝐰𝐝𝐞𝐫, 𝐒𝐦𝐨𝐤𝐞𝐝 𝐩𝐚𝐩𝐫𝐢𝐤𝐚, 𝐏𝐚𝐫𝐬𝐥𝐞𝐲 ❤︎︎ 𝐄𝐠𝐠𝐬 𝐨𝐫 𝐞𝐠𝐠 𝐦𝐢𝐱𝐭𝐮𝐫𝐞 (𝐖𝐡𝐨𝐥𝐞 𝐞𝐠𝐠𝐬, 𝐄𝐠𝐠 𝐰𝐡𝐢𝐭
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A package of Sargento Natural Cheese, specifically Pepper Jack sliced Monterey Jack cheese with jalape�ño and habanero peppers.
𝐂𝐡𝐢𝐩𝐨𝐭𝐥𝐞 𝐄𝐠𝐠 𝐁𝐢𝐭𝐞𝐬- 𝐇𝐢𝐠𝐡 𝐏𝐫𝐨𝐭𝐞𝐢𝐧 𝐖𝐞𝐢𝐠𝐡𝐭 𝐥𝐨𝐬𝐬 𝐒𝐧𝐚𝐜𝐤
𝐓𝐡𝐞𝐬𝐞 𝐚𝐫𝐞 𝐥𝐢𝐭𝐞𝐫𝐚𝐥𝐥𝐲 𝐒𝐎𝐎𝐎𝐎 𝐆𝐎𝐎𝐃 ! 𝐖𝐡𝐞𝐧 𝐲𝐨𝐮 𝐞𝐚𝐭 𝐠𝐨𝐨𝐝 𝐭𝐨 𝐥𝐨𝐬𝐞 𝐭𝐡𝐞 𝐰𝐞𝐢𝐠𝐡𝐭 🤌🏾 𝐲𝐨𝐮 𝐰𝐢𝐥𝐥 𝐤𝐞𝐞𝐩 𝐢𝐭 𝐨𝐟𝐟 𝐭𝐨𝐨! 𝐈𝐭’𝐬 𝐧𝐨𝐭 𝐚𝐛𝐨𝐮𝐭 𝐣𝐮𝐬𝐭 “ 𝐖𝐞𝐢𝐠𝐡𝐭 𝐥𝐨𝐬𝐬 𝐫𝐞𝐜𝐢𝐩𝐞𝐬“ 𝐢𝐭’𝐬 𝐚𝐛𝐨𝐮𝐭 𝐟𝐢𝐧𝐝𝐢𝐧𝐠 𝐟𝐨𝐨𝐝𝐬 𝐲𝐨𝐮 𝐰𝐢𝐥𝐥 𝐞𝐧𝐣𝐨𝐲 𝐟𝐨𝐫𝐞𝐯𝐞𝐫!! 𝐀𝐧𝐝 𝐭𝐡𝐢𝐬 𝐢𝐬 𝐨𝐧𝐞 𝐨𝐟 𝐭𝐡𝐞𝐦 😋 𝐘𝐨𝐮 𝐃𝐎 𝐍𝐎𝐓 𝐡𝐚𝐯𝐞 𝐭𝐨 𝐞𝐚𝐭 𝐛𝐨𝐫𝐢𝐧𝐠 𝐟𝐨𝐨𝐝𝐬 𝐭𝐨 𝐥𝐨𝐬𝐞 𝐰𝐞𝐢𝐠𝐡𝐭😋 𝐈𝐧𝐠𝐫𝐞𝐝𝐢𝐞𝐧𝐭𝐬: ❤︎︎ 𝐌𝐚𝐲
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

17.6K likes

One day of looking like this…..
#chronicillnesswarrior #eds #chiarimalformation One day at a time. I got this.
Krista

Krista

9 likes

Chiari Malformation and POTS
This has been a long six months of different doctors and test. I would gladly take any tips that have helped you or someone you know. I know this is going to be a long road to find what helps. #chiarimalformation #potssyndrome #chronic illness
blinthicum2005

blinthicum2005

5 likes

Life with Chiari Malformation Type 1 Sucks!
The struggle is real with this silent illness but sharing my journey helps others like myself not feel alone in this fight. #chiarimalformation #chronicillness #chronicpainwarrior #chronicillnesswarrior #invisibleillness
The Earthy Girl Experience 🪬

The Earthy Girl Experience 🪬

0 likes

where are my fellow fighters???
Primalchaoticgoddess

Primalchaoticgoddess

4 likes

A black and white photo shows a couple kissing on a street, with the man dipping the woman. The text overlay reads: "OUR JOURNEY THROUGH 'IN SICKNESS & IN HEALTH'".
A smiling couple embraces, with the woman in a pink dress and the man in a light suit. The text overlay states they "Dated all through college & was always healthy besides occasional headache."
A couple looks lovingly into each other's eyes, with the woman in a white dress. The text overlay says: "Got married after graduation & our lives changed one month later."
Man of my dreams 🥺👰‍♀️💗 everyone deserves this type of love. #healthjourney #brainsurgery #couples #marriage #sicknessandinhealth
Natalie 💖

Natalie 💖

1 like

𝐒𝐮𝐛 𝐈𝐧 𝐀 𝐓𝐮𝐛 𝐅𝐨𝐫 𝐖𝐞𝐢𝐠𝐡𝐭 𝐋𝐨𝐬𝐬🥪
❦ 𝐓𝐡𝐢𝐬 𝐫𝐞𝐜𝐢𝐩𝐞 𝐢𝐬 𝐚 𝐉𝐞𝐫𝐬𝐞𝐲 𝐌𝐢𝐤𝐞’𝐬 𝐬𝐮𝐛 𝐢𝐧 𝐚 𝐭𝐮𝐛 𝐝𝐮𝐩𝐞❤️ ✧ 𝐈𝐧𝐠𝐫𝐞𝐝𝐢𝐞𝐧𝐭𝐬 ❤︎︎ 𝐈𝐜𝐞𝐛𝐞𝐫𝐠 𝐥𝐞𝐭𝐭𝐮𝐜𝐞, 𝐬𝐡𝐫𝐞𝐝𝐝𝐞𝐝 ❤︎︎ 𝟒 𝐬𝐥𝐢𝐜𝐞𝐬 𝐨𝐟 𝐭𝐮𝐫𝐤𝐞𝐲 𝐥𝐮𝐧𝐜𝐡 𝐦𝐞𝐚𝐭 ❤︎︎ 𝟐 𝐬𝐥𝐢𝐜𝐞𝐬 𝐜𝐨𝐨𝐤𝐞𝐝 𝐭𝐮𝐫𝐤𝐞𝐲 𝐛𝐚𝐜𝐨𝐧 𝐨𝐫 𝐛𝐚𝐜𝐨𝐧 𝐨𝐟 𝐜𝐡𝐨𝐢𝐜𝐞, 𝐜𝐫𝐮𝐦𝐛𝐥𝐞𝐝 ❤︎︎ 𝟏/𝟒 𝐜𝐮𝐩 𝐣𝐚𝐥𝐞𝐩𝐞𝐧̃𝐨 𝐩𝐞𝐩𝐩𝐞𝐫 ❤︎︎ 𝟏/𝟒 𝐜𝐮𝐩 𝐛𝐚𝐧𝐚𝐧𝐚 𝐩𝐞𝐩𝐩𝐞𝐫𝐬, 𝐬𝐥𝐢𝐜𝐞𝐝 ❤︎︎ 𝟏/𝟐 𝐚𝐯𝐨𝐜𝐚𝐝𝐨, 𝐬𝐥𝐢𝐜𝐞𝐝 ❤︎︎
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

524 likes

Yano sometimes a girl just wants to push through to have a “normal day” but what’s really a “normal day” to a girl who has 7 #autoimmunedisease and #chiarimalformation amongst other #chronicillness ? Huh? 🤔…idk man I finally got out the bed from 2 days ago. 🗣️Send help #invisibleillness
Camille’s World

Camille’s World

0 likes

🩷🕊️❤️‍🩹🎀
#chiari #chiarimalformation #vitiligo #pots #jesusiswithyou
angela

angela

1 like

So much has changed in the past 2 years, I’m so greatful for my healthy little family🤗❤️ #familylife #thejourney #fyp
Mama Britt

Mama Britt

2 likes

Neurosurgeon- Medical Specialty 32
#neurosurgeon #educational #wellness #books #amazon Link to both books is on my bio page. The books are available in two formats on Amazon, paperback and Ebook. The Ebook is also available on Nook, iTunes, Kobo, and Google Play.
Mary Kavanaugh

Mary Kavanaugh

2 likes

Sicily 1912 🤣
It's been 2 years, 2 months since I p****ed a clock. Here's to better days ahead. 🙏 🙏 🙏 #fypシ #fyp #over50club #chiari #chiarimalformation #chiariwarrior
Dana Stiggers Ramsey

Dana Stiggers Ramsey

2 likes

A top-down view of a high-protein bowl featuring rice, seasoned chicken, black beans, and corn, all drizzled with a creamy sauce and garnished with crumbled feta cheese and fresh cilantro. The image has text overlay stating "3 high protein bowls i made recently 40+ lbs down."
A top-down view of an avocado-lime chicken bowl, featuring white rice, seasoned chicken pieces, corn, diced avocado, and lime wedges, all topped with a vibrant green avocado-lime dressing and fresh cilantro. The image has text overlay stating "avocado-lime chicken bowl."
A recipe card detailing how to make an avocado lime chicken bowl, including five steps for preparation and images of ingredients such as chicken thighs, nonfat Greek yogurt, canned sweet corn, cilantro, limes, and avocado.
𝟑 𝐡𝐢𝐠𝐡 𝐩𝐫𝐨𝐭𝐞𝐢𝐧 𝐛𝐨𝐰𝐥𝐬 𝐈 𝐦𝐚𝐝𝐞 𝐫𝐞𝐜𝐞𝐧𝐭𝐥𝐲
#sincerelydanesha #recipes #healthy #weightlossdiet
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

31.3K likes

Understanding Chiari Malformation Type II
Chiari Malformation Type II is a condition many people have never heard of, but for those of us living with it, it’s a daily reality. Understanding the symptoms, causes, and challenges can create a more inclusive world. 💛 Share this to spread awareness! #chiarimalformation #disabilityawareness
Mack

Mack

8 likes

𝐂𝐡𝐨𝐩𝐩𝐞𝐝 𝐒𝐮𝐛 𝐂𝐮𝐜𝐮𝐦𝐛𝐞𝐫 𝐉𝐚𝐫🥒!
𝐓𝐡𝐢𝐬 𝐰𝐚𝐬 𝐚 𝟏𝟎/𝟏𝟎 𝐯𝐞𝐫𝐲 𝐦𝐮𝐜𝐡 𝐬𝐨 𝐚𝐭𝐞 𝐭𝐡𝐢𝐬 𝐮𝐩 𝐧𝐨𝐭𝐡𝐢𝐧𝐠 𝐥𝐞𝐟𝐭 𝐛𝐞𝐡𝐢𝐧𝐝☺️ • • • • #cucumbers #cucumbersalad #sub #healtheats #lowcalorie #lemon8challenge #healthyfood #lunchideas #snackideas @Lemon8 Fitness
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

1472 likes

A plate holds two mounds of white rice and two skewers of seasoned, cooked shrimp. The image highlights an affordable shrimp meal, with text overlay indicating "3 affordable shrimp meals aldi edition."
Ingredients for Cajun shrimp skewers are displayed, including a bag of raw shrimp, wooden skewers, white rice, creole seasoning, red pepper flakes, garlic powder, and seafood seasoning.
A close-up shows a shrimp salad with tilapia on a patterned paper plate. The meal features lettuce, cooked shrimp, shredded cheese, croutons, and a piece of cooked fish, garnished with fresh herbs.
𝟑 𝐚𝐟𝐟𝐨𝐫𝐝𝐚𝐛𝐥𝐞 𝐬𝐡𝐫𝐢𝐦𝐩 𝐦𝐞𝐚𝐥𝐬🍽️
𝐀𝐥𝐝𝐢> #lunchideas #healthymeals #shrimprecipe #seafood #fyp #weightloss #lowcalorie #lemon8challenge @Lemon8 Fitness
𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

𝐃𝐚𝐧𝐞𝐬𝐡𝐚✨

6074 likes

Fluff NYT article
This article was nothing more than a “hey look at this card and we have girls trying to get it to” #topps #fanatics #sportscards #thehobby #cardbreaks
Lemon8er

Lemon8er

0 likes

Vertigoease Dizziness Roller ✨
Aromatherapy for Nausea relief, dizziness & Vertigo. @VibeRituals #vertigo #tiktokshopstockup #vertigoease #chiarimalformation #dizzinessrelief
Dana Stiggers Ramsey

Dana Stiggers Ramsey

1 like

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