#invisibleIllness#Chiari Warrior#RetiredFF

Hey everyone, I'm excited to share a few quirky and interesting facts about myself with you all!#gettoknowme

2025/1/14 Edited to

... Read moreLiving with Chiari malformation comes with its unique challenges, but it also inspires many to find joy in life's little quirks. As a Chiari Warrior, I embrace a lifestyle that balances health with personal interests. For instance, being a dog person emphasizes compassion and companionship, while my love for crafting and cooking showcases creativity. With coffee fueling my days, I often find solace in books and music, balancing my culinary adventures with movie nights. Understanding the importance of self-care for those with invisible illnesses is crucial. Engaging in hobbies like crafting not only provides relaxation but also serves as a productive outlet for emotions. Music, too, can be therapeutic, allowing for an escape from the challenges that come with Chiari. By sharing our stories and getting to know each other better, we build a supportive community where every quirk is celebrated and accepted.

Related posts

One day of looking like this…..
#chronicillnesswarrior #eds #chiarimalformation One day at a time. I got this.
Krista

Krista

9 likes

bro proved them WRONG
Evakz

Evakz

516 likes

Let’s get to know each other
#mounjaro #fibromyalgia #chiarimalformation
Helen ❤️

Helen ❤️

8 likes

Suboccipital craniectomy laminectomy removal of c1
2023 Dec 18 ##brainsurgerysurvivor #chiarimalformation #invisible Illness
Maria❤️‍🔥❤️‍🔥Cabrera

Maria❤️‍🔥❤️‍🔥Cabrera

4 likes

Life with Chiari Malformation Type 1 Sucks!
The struggle is real with this silent illness but sharing my journey helps others like myself not feel alone in this fight. #chiarimalformation #chronicillness #chronicpainwarrior #chronicillnesswarrior #invisibleillness
The Earthy Girl Experience 🪬

The Earthy Girl Experience 🪬

1 like

Let Be Friends 🩷🫶🏽
Building and growing and here to make new friends. Texas Girl 🤟🏽 Dog mom 🐶 Aquarius ♒️ Family Girl 🧑‍🧑‍🧒‍🧒 Girls Girl 🩷 ETC. 😭 Now tell me about you 🥰 & I do follow back ❗️ . . #letschat #letschataboutit #letsbefriends #lemon8contest #letsbecomefriends #lemon8com
Arii ❤️‍🔥

Arii ❤️‍🔥

7 likes

a verse i’ve been holding onto ❤️‍🩹🌹
#jesuslovesyou💗 #jesuslovesyou🤍 #chronicillness #chiarimalformation #bibleverse
angela

angela

2 likes

Mystery Illness
I'm praying this reaches the right people. I have been dealing with a mystery illness for the last 6 months silently while doctors try and figure out what's going on with me. All of this started after a tough delivery, and while also having a pulmonary embolism. I have seen more doctors tha
Jessica Flores

Jessica Flores

3 likes

Kellie’s Chiari Life

Kellie’s Chiari Life

3 likes

samanthacagle420

samanthacagle420

1 like

samanthacagle420

samanthacagle420

1 like

Chiari malformation with syrinx
Dr.Baker Brain 🧠 Surgeon

Dr.Baker Brain 🧠 Surgeon

3 likes

samanthacagle420

samanthacagle420

1 like

God gave me a gift and yes I do use it. 🙌🏽 I don’t get to sing as much as I would like to due to me having Chiari Malformarion, but I try my best to sing as often as I can. I am a walking miracle and those that know me know my story. Thank you God. # # #blessed # #GodsFav # #Chiari # #survivo
DimplzW

DimplzW

1 like

Chiari Malformation Brain Surgery Survivor 💜
New to Lemon8! Something I love! #mykids #tv #art #healthcare #godisgood #unfiltered
April L

April L

16 likes

People love asking “how are you?” But don’t actually want the real answer. When I say I’m tired, it’s not laziness. It’s not “doing too much.” It’s not a personality trait. It’s chronic illness. It’s my body fighting me 24/7 to just survive. And this is exactly why so many of us just say “
Paola ✨💕

Paola ✨💕

6 likes

7 years later. 💜 #chiarimalformation #chiariwarrior
Jasmyn Carter

Jasmyn Carter

60 likes

#chiarimalformation #brain #surgery #fyp
Nicole

Nicole

519 likes

Replying to @Kim Simoni Chiarito Sayulita! #food #review #asmr #yum
Alexa Curtis

Alexa Curtis

0 likes

In dad’s dirty clothes basket
Paws_and_chairi

Paws_and_chairi

6 likes

Being chronically ill be like
#chronic #chronicillnesshumor #chronicillnesslife #pots #chiarimalformation
Ash

Ash

0 likes

Nothing like watching your child be carefree and having the time of her life after all the hardship she’s been through. She had so much fun with Mommy at the VIP & Me dance tonight put on by her school. @Princess Luci #lucithelittlestjeeper #dwarfismawareness #chiariwarrior #mommysgirl
Zeroh Archer Wilken

Zeroh Archer Wilken

0 likes

A person takes a mirror selfie, reflecting a red sticky note with the handwritten Bible verse Mark 5:34: 'He said to her, Daughter, your faith has healed you. Go in Peace & be free of your suffering.' The image includes Lemon8 branding.
choose faith 💚🎀❤️‍🩹🎗️
#jesuslovesyou #faith #chronicillness #chiari #pots
angela

angela

1 like

Stent
Brain stent day. Everything went well. In icu now #momsoflemon8 #chiarimalformation #stentplacement #fyp
Inkdmama95

Inkdmama95

1 like

We’re home!! She’s doing so much better and is quickly getting back to herself. Seriously so blessed to be this sweet girl’s mom. @Princess Luci @raven #lucithelittlestjeeper #dwarfismawareness #chiarimalformationawareness #chiariwarrior #brainsurgeryrecovery
Zeroh Archer Wilken

Zeroh Archer Wilken

10 likes

The “Proper Lady” is being retired
It’s a sad day for me, my husband built this bicycle for me several years ago. I love it, and I love the fact that he built it, especially for me. But, Parkinson’s disease is taking the joy of riding my bike away from me. So, I will be retiring this bike and getting an E-bike. I hate what Parkinson
faith_over_parkinsons

faith_over_parkinsons

1 like

the love I feel for this little light is immeasurable. shes the piece of my soul walking outside of my body. this life wouldn't be the same without her. I love you @Princess Luci more than life. #mybabygirl💜 #chiarimalformation #chiariwarrior #dwarfismawareness #lucithelittlestjeeper
Zeroh Archer Wilken

Zeroh Archer Wilken

0 likes

In that first picture I had promised her our lives would get better. I had just left one of the worst relationships I’ve been in and were about to move in with my dad. Now, 4 years later, we’re happy, loved and I couldn’t ask for a better life for her. I truly couldn’t. Andrew has brought so much l
Zeroh Archer Wilken

Zeroh Archer Wilken

0 likes

🩷🕊️❤️‍🩹🎀
#chiari #chiarimalformation #vitiligo #pots #jesusiswithyou
angela

angela

1 like

❤️‍🩹🧸🪽🎀🧠💜🎗️🕊️
“no one knows” ❤️‍🩹🧸🪽🪽 brain awareness week/autoimmune awareness month 🧠💜🎗️🕊️ #brainawarenessweek #autoimmuneawareness #chiarimalformation #vitiligo #jesuslovesyou🤍 original song: samantha ebert bear: vitiligo society
angela

angela

2 likes

Brain Surgery ( chiari malformation)
Last year I thought I had a stroke but the dr couldn’t find how but my heart was weakened to the point my cardiologist wanted to do a pacemaker. And I had a small brain aneurysm I was referred to a neurologist specialist. And he found what was going on with me chiari malformation. For me I was
LaNouvelle

LaNouvelle

1 like

🤣 I love it 🧠💜 #chiarimalformation #tattoo #fyp
Nicole

Nicole

0 likes

im genuinely so lucky to be your mom 🩷 @Princess Luci #lucithelittlestjeeper #dwarfismawareness #chiarimalformation #chiariwarrior #mybabygirl💜
Zeroh Archer Wilken

Zeroh Archer Wilken

0 likes

Grayson’s Syndrome #fyp #foryou #viarl #news
fern

fern

351 likes

My shining star, my little monster, my reason for breathing. You are everything to me. For those that aren’t on my Facebook/Insta/Threads, Luci has to have brain surgery in October. We found out she has a Chiari Malformation that they will be doing surgery to hopefully halt the progression. Please
Zeroh Archer Wilken

Zeroh Archer Wilken

10 likes

chiari Malformation Warrior 💋
#youlookhappier #lemon8challenge
Tee

Tee

2 likes

Christine

Christine

0 likes

Random facts about me!
Hey everyone, I'm excited to share a few quirky and interesting facts about myself with you all! #gettoknowme #chiarimalformation #renalnutcrackersyndrome #iga vasculitis #chronicillness 💌 Brand:@comfrt
Tommie Piatt

Tommie Piatt

11 likes

Chiari Malformation and POTS
This has been a long six months of different doctors and test. I would gladly take any tips that have helped you or someone you know. I know this is going to be a long road to find what helps. #chiarimalformation #potssyndrome #chronic illness
blinthicum2005

blinthicum2005

5 likes

“That would be a dream come true!”🥹❤️
Josh Liljenquist | Joshlilj

Josh Liljenquist | Joshlilj

152 likes

I just renewed my LTD verification today and wanted to bring this to people’s attention because there is another way to attain disability (at least in the US). When I’m approved for SSDI, they’ll reduce my LTD payment to make up the difference between what SSDI doesn’t pay towards that percent
Dave ♿️🧬

Dave ♿️🧬

2 likes

Replying to @Husband_Dad0f6 Chiari Malformation Surgery. #chiarimalformation #brainsurgery
Mama Britt

Mama Britt

0 likes

Replying to @♡ Natalee ♡ this is essentially my perspective and philosophy for the first couple years. When they start developing their own interests and personality outside of us, it’ll be easier to arrange social activities in the realm of their interests that are still accessible to me. #pa
Dave ♿️🧬

Dave ♿️🧬

0 likes

Watch full episode ( link in bio) with GianMarco Ricchiari 🫶🏻 #mindset #growth #personaldevelopment #poi
Jessa

Jessa

1 like

🩷🥀🌸🫶🏻
#autoimmunequeens #autoimmuneawareness #vitiligo #chiarimalformation #jesuslovesyou💗
angela

angela

2 likes

Y’all, I’ve been SO tired 😭 #ehlersdanlos #eds #hEDS #hypermobileehlersdanlossyndrome #disability #fyp #rarediseaseawareness #genetic #connectivetissueissue #ctd #pentadsupersyndrome #pots #mcas #vascularcompression #maythurnersyndrome #dysautonomia
Myrtt |  🦓 EDS MCAS POTS 🧠🩺

Myrtt | 🦓 EDS MCAS POTS 🧠🩺

0 likes

The reality of streaming for me is that I love it but one moment i can be okay and in a nanosecond things can change. …but i dust myself off and keep streaming. #thecamilleeffect #chronicillness #chronicpain #chiarimalformation #survivor
Camille’s World

Camille’s World

0 likes

See more