#invisibleIllness#Chiari Warrior#RetiredFF

Hey everyone, I'm excited to share a few quirky and interesting facts about myself with you all!#gettoknowme

2025/1/14 Edited to

... Read moreLiving with Chiari malformation comes with its unique challenges, but it also inspires many to find joy in life's little quirks. As a Chiari Warrior, I embrace a lifestyle that balances health with personal interests. For instance, being a dog person emphasizes compassion and companionship, while my love for crafting and cooking showcases creativity. With coffee fueling my days, I often find solace in books and music, balancing my culinary adventures with movie nights. Understanding the importance of self-care for those with invisible illnesses is crucial. Engaging in hobbies like crafting not only provides relaxation but also serves as a productive outlet for emotions. Music, too, can be therapeutic, allowing for an escape from the challenges that come with Chiari. By sharing our stories and getting to know each other better, we build a supportive community where every quirk is celebrated and accepted.

Related posts

One day of looking like this…..
#chronicillnesswarrior #eds #chiarimalformation One day at a time. I got this.
Krista

Krista

9 likes

Chiari Malformation Brain Surgery Survivor 💜
New to Lemon8! Something I love! #mykids #tv #art #healthcare #godisgood #unfiltered
April L

April L

16 likes

bro proved them WRONG
Evakz

Evakz

519 likes

Suboccipital craniectomy laminectomy removal of c1
2023 Dec 18 ##brainsurgerysurvivor #chiarimalformation #invisible Illness
Maria❤️‍🔥❤️‍🔥Cabrera

Maria❤️‍🔥❤️‍🔥Cabrera

4 likes

Let’s get to know each other
#mounjaro #fibromyalgia #chiarimalformation
Helen ❤️

Helen ❤️

8 likes

Let Be Friends 🩷🫶🏽
Building and growing and here to make new friends. Texas Girl 🤟🏽 Dog mom 🐶 Aquarius ♒️ Family Girl 🧑‍🧑‍🧒‍🧒 Girls Girl 🩷 ETC. 😭 Now tell me about you 🥰 & I do follow back ❗️ . . #letschat #letschataboutit #letsbefriends #lemon8contest #letsbecomefriends #lemon8com
Arii ❤️‍🔥

Arii ❤️‍🔥

7 likes

Get to know me ✨
🖤 Momma of 4 🖤 Married to my best friend of 16 years 🖤 The color black is my entire personality 🖤On a journey to healing & HAPPINESS 🖤 Labrador Momma 🐻🤎 🖤Chiari Malformation warrior
Jessie Vez

Jessie Vez

1 like

A Mega Pokémon 'Build & Show Pikachu' building set box, featuring a brick-built Pikachu with lightning effects against a Poké Ball background, held by a hand in a store aisle.
A Mega Pokémon 'Build & Show Eevee' building set box, featuring a brick-built Eevee against a Poké Ball background, held by a hand in a store aisle.
A Mega Pokémon 'Kanto Region Pokedex Collector Building Set' box, showing a red brick-built Pokedex with a screen displaying Squirtle, and five lenticular cards.
Meijer Finds: Pokémon Edition
Meijer has some pretty cool Pokémon Merchandise. #pokemoncommunity #meijer #legocommunity #shopwithme #shopping Meijer
KaNisa Sharie

KaNisa Sharie

7 likes

In dad’s dirty clothes basket
Paws_and_chairi

Paws_and_chairi

6 likes

Life with Chiari Malformation Type 1 Sucks!
The struggle is real with this silent illness but sharing my journey helps others like myself not feel alone in this fight. #chiarimalformation #chronicillness #chronicpainwarrior #chronicillnesswarrior #invisibleillness
The Earthy Girl Experience 🪬

The Earthy Girl Experience 🪬

2 likes

The “Proper Lady” is being retired
It’s a sad day for me, my husband built this bicycle for me several years ago. I love it, and I love the fact that he built it, especially for me. But, Parkinson’s disease is taking the joy of riding my bike away from me. So, I will be retiring this bike and getting an E-bike. I hate what Parkinson
faith_over_parkinsons

faith_over_parkinsons

1 like

God gave me a gift and yes I do use it. 🙌🏽 I don’t get to sing as much as I would like to due to me having Chiari Malformarion, but I try my best to sing as often as I can. I am a walking miracle and those that know me know my story. Thank you God. # # #blessed # #GodsFav # #Chiari # #survivo
DimplzW

DimplzW

1 like

An iPad displays the cover of "The Only Purple House in Town" by Ann Aguirre, with text overlays reading "MAKING My iPad Into A Kindle" and "With one app." A cup of coffee and a wooden spoon are visible.
An iPad screen shows the PocketBook app icon within a "Books" folder, highlighted by a brown arrow. The app icon features three colorful books.
An iPad screen displays the PocketBook app's "Unlimited Library" interface, showing recently opened and added e-books like "The Lost Bookshop" and "Never Coming Home," with navigation options at the bottom.
Why I Turned My iPad Air into a Kindle
👩🏻As a busy mom of two and an avid reader, I decided to turn my iPad Air into a Kindle instead of purchasing a separate e-reader. 👩🏻‍💻The decision was simple once I discovered the Pocketbook app. This app has transformed my iPad into a seamless Kindle e-reader, and here's how. 📓Unlimited
𝔼𝕝𝕚𝕤𝕒𝕄𝕖𝕕𝕧𝕒

𝔼𝕝𝕚𝕤𝕒𝕄𝕖𝕕𝕧𝕒

1184 likes

chiari Malformation Warrior 💋
#youlookhappier #lemon8challenge
Tee

Tee

2 likes

my Lemon8 introduction🫶🫶
figured I might as well change my platform with the very large chance of TikTok disappearing. I hope y’all will like my content. It’ll be mostly focussed around Isha and my art school. Isha will hopefully in the future be my next service dog since my first service dog retired when I went into colle
Lunas life

Lunas life

2 likes

Mystery Illness
I'm praying this reaches the right people. I have been dealing with a mystery illness for the last 6 months silently while doctors try and figure out what's going on with me. All of this started after a tough delivery, and while also having a pulmonary embolism. I have seen more doctors tha
Jessica Flores

Jessica Flores

3 likes

The image displays the xTiles daily planner interface, showcasing a customizable dashboard with sections for goal mantras, main goals, weekly habits, skills, and important notes, emphasizing its aesthetic and user-friendly design as a Notion alternative.
This image highlights the xTiles template gallery, offering various pre-filled templates like daily schedules, weekly planners, and personal planning layouts, allowing users to start from scratch or use existing designs.
The image demonstrates the tab feature in xTiles, showing how users can add different tabs for organization and freely add and resize tiles anywhere on their board for flexible customization.
My aesthetic xTiles planner, Notion alternative!
If you’re looking for a more aesthetic and flexible alternative to Notion, check out xTiles! With xTiles, you can organize everything exactly how you want, making it super personalized and visually pleasing. Whether you're creating vision boards, planning your week, or just organizing your
Ivyhoneyhive

Ivyhoneyhive

462 likes

It’s my first day on lemon8!
Testing, testing, ahem… is this thing on?! What are we up to on here?!? 📍 City/Country: Nashville, TN #nashville #terrarium #chiarimalformation #craniocervicalinstability
Elizabeth

Elizabeth

4 likes

Random facts about me!
Hey everyone, I'm excited to share a few quirky and interesting facts about myself with you all! #gettoknowme #chiarimalformation #renalnutcrackersyndrome #iga vasculitis #chronicillness 💌 Brand:@comfrt
Tommie Piatt

Tommie Piatt

11 likes

A black and white photo shows a couple kissing on a street, with the man dipping the woman. The text overlay reads: "OUR JOURNEY THROUGH 'IN SICKNESS & IN HEALTH'".
A smiling couple embraces, with the woman in a pink dress and the man in a light suit. The text overlay states they "Dated all through college & was always healthy besides occasional headache."
A couple looks lovingly into each other's eyes, with the woman in a white dress. The text overlay says: "Got married after graduation & our lives changed one month later."
Man of my dreams 🥺👰‍♀️💗 everyone deserves this type of love. #healthjourney #brainsurgery #couples #marriage #sicknessandinhealth
Natalie 💖

Natalie 💖

2 likes

The simple things 💚🦋
#lemon8dairy
Christine

Christine

2 likes

#chiarimalformation #brain #surgery #fyp
Nicole

Nicole

519 likes

A person takes a mirror selfie, reflecting a red sticky note with the handwritten Bible verse Mark 5:34: 'He said to her, Daughter, your faith has healed you. Go in Peace & be free of your suffering.' The image includes Lemon8 branding.
choose faith 💚🎀❤️‍🩹🎗️
#jesuslovesyou #faith #chronicillness #chiari #pots
angela

angela

1 like

Chiari malformation with syrinx
Dr.Baker Brain 🧠 Surgeon

Dr.Baker Brain 🧠 Surgeon

3 likes

Chiari Malformation and POTS
This has been a long six months of different doctors and test. I would gladly take any tips that have helped you or someone you know. I know this is going to be a long road to find what helps. #chiarimalformation #potssyndrome #chronic illness
blinthicum2005

blinthicum2005

5 likes

We’re home!! She’s doing so much better and is quickly getting back to herself. Seriously so blessed to be this sweet girl’s mom. @Princess Luci @raven #lucithelittlestjeeper #dwarfismawareness #chiarimalformationawareness #chiariwarrior #brainsurgeryrecovery
Zeroh Archer Wilken

Zeroh Archer Wilken

10 likes

Grayson’s Syndrome #fyp #foryou #viarl #news
fern

fern

351 likes

Kellie’s Chiari Life

Kellie’s Chiari Life

3 likes

Two women smile, one wearing a 'Positive mind, Positive vibes, Positive life' shirt, and the other a colorful 'SURVIVOR' shirt. Text overlay reads 'Brain Surgery Survivor' and 'SEPTEMBER IS CHIARI MALFORMATION AWARENESS MONTH!'
A close-up of the back of a person's head and neck, showing a vertical surgical scar. The hair around the scar is closely shaved.
Two hands are clasped together, one wearing a ring, resting on a white textured blanket with a soft pink blanket partially visible.
Brain 🧠 Surgery Survivor
Week 7!!!!! We are on week 7!!! My wife had brain surgery 7 weeks ago, and she thriving!!! Now we have some work left to do but God is sooo faithful to us! He has been guiding this journey and her healing! ❤️‍🩹 Things will get better!!! #lemon8challenge #lemon8community #chiarimalformat
TheCrystallinaP

TheCrystallinaP

11 likes

Authentically me
#gettoknowme 🤍 My Story: I was diagnosed with Arnold-Chiari Type 2 Brain Malformation in 2009. I was hospitalized in 2018 due to infection throughout my body as a result of the Chiari. I had three major surgeries within the first week, to include emergency heart surgery to remove the infection
KentuckyRayne

KentuckyRayne

25 likes

a verse i’ve been holding onto ❤️‍🩹🌹
#jesuslovesyou💗 #jesuslovesyou🤍 #chronicillness #chiarimalformation #bibleverse
angela

angela

2 likes

Nothing like watching your child be carefree and having the time of her life after all the hardship she’s been through. She had so much fun with Mommy at the VIP & Me dance tonight put on by her school. @Princess Luci #lucithelittlestjeeper #dwarfismawareness #chiariwarrior #mommysgirl
Zeroh Archer Wilken

Zeroh Archer Wilken

0 likes

“That would be a dream come true!”🥹❤️
Josh Liljenquist | Joshlilj

Josh Liljenquist | Joshlilj

152 likes

ReIntroducing myself🙃
Hi I’m Alexis:) I’m from wv, and always looking for new friends and even pen pals:). for the past year I’ve not been able to work due to chronic illnesses, and I’ve decided to start posting and work up to making more content. about me: •I’m 21 •used to be a cna •favorite colors are orange an
Alexis✨🫧

Alexis✨🫧

1 like

In that first picture I had promised her our lives would get better. I had just left one of the worst relationships I’ve been in and were about to move in with my dad. Now, 4 years later, we’re happy, loved and I couldn’t ask for a better life for her. I truly couldn’t. Andrew has brought so much l
Zeroh Archer Wilken

Zeroh Archer Wilken

0 likes

Hi i'm Kristina. This is my first time using this
#gettoknowme
kristinawithchiari

kristinawithchiari

1 like

Praying this is a step in the right direction to healing 🙏🏼 #healthproblems #csfleak #chronicillness #healthiswealth #chiarimalformation
Jessica Flores

Jessica Flores

11 likes

samanthacagle420

samanthacagle420

1 like

I may be medically retired but that cumulative knowledge has prepared me for this! I know how to raise a good human who is kind, empathetic, inquisitive,and joyful. #teachersoftiktok #disability #chronicillness #ehlersdanlossyndrome #parenting
Dave ♿️🧬

Dave ♿️🧬

1 like

3rd round of chemo..
Got my iron infusion and chemo..
Rogersgirl

Rogersgirl

4 likes

#chiarimalformation #decompression #brainsurgery #fyp
Nicole

Nicole

4 likes

last year i got a backwards lobotomy at @Claire's 💜🧠🤺 #chiarimalformation #decompression #brainsurgery
Nicole

Nicole

1 like

samanthacagle420

samanthacagle420

1 like

My shining star, my little monster, my reason for breathing. You are everything to me. For those that aren’t on my Facebook/Insta/Threads, Luci has to have brain surgery in October. We found out she has a Chiari Malformation that they will be doing surgery to hopefully halt the progression. Please
Zeroh Archer Wilken

Zeroh Archer Wilken

10 likes

Christine

Christine

1 like

10 Best books you have to read this year #book #bookrecommendations #bestbook
Dailyvibes

Dailyvibes

3 likes

See more