Congratulations to all my friends at Priovant Therapeutics for the FDA approval of the first drug specifically designed for dermatomyositis patients! Since I have been working with them for a while through the Myositis Moon Walk, I was praying it would go through soon. They had amazing trial r

Speaking up about rare disease is scary. We worry about being a burden, or people thinking we're just seeking attention. Truthfully? Losing friends who couldn't handle my reality hurt worse than any infusion or biopsy ever did. But here’s what I know: Your voice is your power. Your vulnera

Thank you ExpeditionX. You can find his work on Spotify.