Today I spent some much needed time with the family. We ate, we laughed, we talked, and caught up. I haven’t been able to get out much due to my health issues. Other than my doctor appointments, I stay home. It’s hard for me to get out and about for long. I was in pain while spending time with everyone, but I tried my best to ignore it. I did have fun and it was nice to see the in laws today. But man am I dealing with it now. I’ve been in so much pain since I got home. I ended taking a long nap as well. When my pain levels are high it totally exhausts me. I don’t regret spending time with my family at all. Family time is very important to me, so I’ll deal with the pain. They don’t have to know about it. They really loved seeing me too, it’s been too long. It’s the price I pay to enjoy life and that’s ok. One day I’ll find an easier way to deal with it better. But family is worth it to me. I have to love them while I can. You never know how long you have on this earth, so enjoy it while you can. You got this, push yourself, get stronger, get motivated, love yourself, enjoy your life while you can. Love everyone. This world needs love and kind people. I hope everyone is having an amazing weekend!! #lemon8diarychallenge #survivinglife#chronicillness#chronicpain#familytime#LoveYourself#livelife
2024/7/28 Edited to
... Read moreIt's so real, isn't it? That feeling of wanting to be present for your family, to soak in every laugh and conversation, even when your body is screaming at you. I totally get it. Pushing through chronic pain for those precious moments is a battle, but one we often choose to fight because, well, family is everything.
After reading your post, it really resonated with me. The exhaustion that hits once you're back home, the quiet recovery you go through so they don't know the 'price' you paid – it's a silent struggle many of us understand. But what if we could make those precious family times a little less punishing on our bodies? I've learned a few things over time that have helped me, and I wanted to share them.
One thing that’s been a game-changer for me is strategic pacing. Before a family gathering, I try to schedule extra rest. And during the event, I don't feel guilty about taking mini-breaks. Maybe it's stepping into another room for 15 minutes, or just finding a quiet corner to sit and observe for a bit. You’re still there, still present, but you’re managing your energy reserves. It's not about being 'less' engaged, but about being able to engage longer and recover better.
Another tip is to pre-plan your exit strategy. It sounds a bit dramatic, but knowing you have an easy way to leave if things get too much can reduce anxiety. Sometimes, just having your own car or a pre-arranged ride means you don't feel trapped. And don't underestimate the power of a comfy outfit! Choosing clothes that don't restrict or irritate sensitive areas can make a huge difference in your comfort levels throughout the day.
Now, about family knowing – that's a tough one. You mentioned they don't have to know, and sometimes, that's exactly what we need for our own peace of mind. But if you have one or two trusted family members, maybe a quick heads-up like, 'Hey, I'm really looking forward to today, but I might need to take it a bit easy,' can set expectations without going into painful detail. They love you, and understanding your needs might help them subconsciously make things easier for you, like offering a comfortable seat or not pushing for too many activities.
And finally, the post-event recovery is crucial. Don't beat yourself up for needing a long nap, or a whole 'rest day' afterwards. You invested a lot of energy and resilience into those moments. Treat your body with kindness during recovery. Hydrate, use your heating pads, take your meds, and just allow yourself to heal. It’s not a failure; it’s self-care.
Your message about enjoying life while you can, pushing yourself, and loving yourself really resonated. It's a powerful reminder that while chronic pain changes our lives, it doesn't have to steal all our joy. Finding that balance, enjoying those precious family moments, and then giving yourself the grace to recover – that's the real strength. We are all on this journey together, finding our own ways to survive and thrive. Keep going, you're doing amazing!