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6 years ago. Swell sle.

Clip on the left 6 years ago, swelling from the drug sle (eating for a long time, adjusting back and forth, this is considered to be better in the clip, then the disease control period)

.

Now, now, thin because of nothing, hahahaha. Skinny until the milk disappeared. Skinny until the chest ribs rose.

P.S. Withdrawal of the drug sle. Disease is calm for 4-5 years, but sick of lymphoma now.# Swell # sle # Sick # Not comfortable # Trending

6/20 Edited to

... Read moreจากประสบการณ์ส่วนตัวของการรักษาโรค SLE (Systemic Lupus Erythematosus) ที่เริ่มต้นด้วยอาการบวมจากผลข้างเคียงของยา หลังจากที่กินยาและปรับยามาเรื่อยๆ ร่างกายก็ดีขึ้นจนควบคุมโรคได้ในช่วงหนึ่ง ถึงแม้ว่าจะยังพบกับความเหนื่อยล้าและผลกระทบบางอย่างก็ตาม ผ่านมา 6 ปี สิ่งที่น่าตกใจคือการที่ตัวเองผอมลงอย่างมากจนเห็นซี่โครงและลดเนื้อหน้าอกอย่างชัดเจน สาเหตุของการลดน้ำหนักครั้งนี้ยังคงไม่แน่ชัด แต่เราเองก็พยายามดูแลสุขภาพด้วยการรับประทานอาหารที่สมดุลและออกกำลังกายเบาๆ เพื่อเสริมภูมิคุ้มกันร่างกาย สิ่งที่สำคัญสำหรับผู้ป่วย SLE คือการติดตามอาการกับแพทย์อย่างใกล้ชิดและหยุดใช้ยาหากแพทย์เห็นว่าระดับของโรคสงบแล้ว สำหรับตัวเองนั้น ถอนยาไปแล้วประมาณ 4-5 ปี และโรคก็สงบได้ดี แต่กลับพบว่ายังมีปัญหาเกี่ยวกับเนื้องอกท่อน้ำเหลืองซึ่งเป็นอีกความท้าทายหนึ่งที่ต้องเผชิญ การรับมือกับเนื้องอกท่อน้ำเหลืองนั้น นอกจากการรักษาตามคำแนะนำของแพทย์แล้ว การรักษาสุขภาพจิตให้ดีนั้นก็มีความสำคัญไม่แพ้กัน โดยการพูดคุยกับคนใกล้ชิด หาเวลาผ่อนคลาย และไม่กดดันตัวเองมากเกินไป จากประสบการณ์ทั้งหมดนี้ อยากบอกเพื่อนๆ ที่ป่วยด้วยโรคเรื้อรังว่า การดูแลตัวเองอย่างต่อเนื่องและมีจิตใจที่เข้มแข็งเป็นสิ่งสำคัญที่สุด แม้จะมีอุปสรรคและผลข้างเคียงจากยา แต่เราสามารถปรับตัวและใช้ชีวิตได้อย่างมีคุณภาพถ้าไม่ยอมแพ้และหาความรู้ในการดูแลสุขภาพอย่างเหมาะสม

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