2025/8/2 Edited to

... Read moreIt's so easy for people to see the highlights – the beautiful vacation photos, the smiling faces, the moments shared. But as someone navigating life with an invisible disability, I know there's so much more happening behind the lens. My recent vacation was a perfect example of this "What you see vs. what you don't" reality. On the surface, you might see me doing my makeup or getting ready for a fun day out. What you don't see is the struggle to get there: the moments I'm nauseous, waiting for meds to kick in, or dealing with hand pain so severe I need tools to help. Even something as simple as standing can be a monumental effort, especially when I'm shakey/jittery from symptoms. Going out often means pushing through intense discomfort. I might appear put together and socializing, but I could be struggling mentally, dealing with side effects from changing antidepressants, or feeling utterly exhausted. There was one night when I had a seizure in the restaurant and couldn't walk the rest of the night. Moments like these are never captured, nor are the small concessions like wearing earplugs to help sensory wise in a noisy environment. Exploring new places, which should be joyful, becomes a constant calculation. I remember going up & down stairs without an elevator, which led to me fainting everytime I went up the stairs. Beach time, a quintessential vacation activity, turned challenging when the heat was causing seizures, forcing me to leave the beach early and be forced to rest. It's a constant battle between wanting to experience everything and listening to my body's limits. It's a powerful reminder that disability doesn't have a look. Just because I might have a good day or don't "look sick" doesn't mean I'm not sick anymore or that I'm "cured." My body is always dealing with some kind of symptoms, and many people would NEVER know. Invisible disabilities are very real and so valid, and they impact every aspect of life, including what should be relaxing vacations. So, what helps? For me, it's about preparation, listening to my body, and accepting help. Packing essentials like my Hickman Central Line supplies, extra meds, and mobility aids (even if I don't use them every day) is crucial. I've learned to pace myself, accepting that just because I can do something on one day doesn't mean I can do it everyday. It means prioritizing rest, choosing accessible options when possible, and not being afraid to say "no" or change plans. Most importantly, it's about remembering to be kind to myself and others, because you never know what someone is dealing with behind the scenes. You are never alone in this experience; keep going!

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