2025/8/22 Edited to

... Read moreIt's true, as a 'potsie' navigating daily life, fainting is an ever-present concern, especially on a hot day or after something as simple as a doctor's appointment. The experience detailed in the original post is so relatable, and I wanted to expand a bit on what POTS fainting can be like for many of us, beyond just one instance. For me, the warning signs often start subtly, almost like a whisper before a shout. That feeling of getting dizzy is usually the first clue, but it's not just a lightheadedness. It’s a deep, unsettling swirl that makes the world feel unstable. Sometimes, I describe it as my brain trying to float away from my body. Then comes the sensory distortion – hearing can get muffled, or everything sounds too loud, and like the post mentioned, hearing started going out is a classic sign. My eyes become incredibly sensitive to light, making bright environments unbearable. The nauseas feeling kicks in next, sometimes so intensely that talking or focusing becomes impossible. It's like my body is shutting down systems one by one. Before I pass out, there's often a moment where my head feels incredibly heavy, my eyelids droop, and my vision starts playing tricks. The vision gets spotty & goes black accurately captures that terrifying tunnel vision before everything fades. It's not always a dramatic collapse; sometimes it's a slow slide to the ground. The post also highlights how a syncope episode can vary in length – a few seconds for some, several minutes for others. This is so important because it emphasizes that ALL ARE VALID. Whether you're momentarily lightheaded or completely unresponsive for minutes, your experience is real and challenging. After I regain consciousness, the disorienting feeling is immediate and profound. It takes a significant amount of time to reorient myself, to remember where I am, what happened, and even just to process basic information. It's a mental fog that can linger for hours, sometimes even a full day, making simple tasks feel impossible. There's also the physical aftermath: extreme fatigue, muscle weakness from the fall, and sometimes lingering nausea. Triggers are highly personal for POTS patients, but common ones include prolonged standing, hot environments (like that hot day mentioned), dehydration, stress, illness, and even certain medications. For me, the adrenaline surge from a doctor's visit, combined with waiting and standing, can be a perfect storm. Learning to recognize my individual triggers and pre-syncope symptoms has been crucial in managing my condition. I always try to carry water, salt tablets, and wear compression stockings, especially when I know I'll be in a potentially challenging situation. If I feel those warning signs, my immediate action is to sit or lie down, if possible, and elevate my legs. This simple act can sometimes prevent a full syncope episode. It's vital to remember, as the post beautifully states, that not everyone w POTS faints! This is just my experience to help others feel less alone & to raise awareness!. My journey, like many with invisible disabilities, is about adapting, advocating, and sharing. By talking about what POTS fainting truly feels like, we can foster understanding and ensure that when someone is experiencing these terrifying moments, they are met with empathy and appropriate support, rather than confusion or dismissal. It’s about surviving and thriving, one step at a time, even if some of those steps lead to the floor.

61 comments

Snickademous's images
Snickademous

I've only fainted a couple of times but nearly always get the black tunnel vision. at least several times a day. cardiologist appt next Friday. this summer has been really bad.

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Emmyloohoo📣🌻

Hey girl I was wondering if we could be friends on here I have started to have fainting spells for the last month or so and I went to the er on my 3rd faint and everything was normal but I have to go home school for the rest of the year which was like 2 and a half weeks because my mom was having to pick me up from school so much and they called me a liability after some of the faints in class and it was injuring me and now I have a heart monitor on so they can track it and they don’t know what it is yet and they said it could be pots but they don’t know I just feel like it would help talking to somebody that understands it and I have other medical issues like a rare epileptic disability called sunflower syndrome but the fainting is new and I would love if I could have someone to talk to about it

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