Uploading my favorite TikToks here

2024/12/17 Edited to

... Read moreMay is Ehlers-Danlos Syndrome Awareness Month, an important time to raise awareness about this connective tissue disorder. EDS affects thousands and can lead to various symptoms including hypermobility, chronic pain, and fatigue. It’s vital for those living with EDS and chronic illnesses to share their stories, connect online, and find community support. On TikTok, many creators highlight their experiences with EDS, using humor and candid conversations to educate their audience. The #spoonie community, a term used to describe those with chronic illnesses, offers a place for sharing tips, resources, and advocacy efforts. Engaging with these videos can empower individuals to understand their conditions better and promote empathy among viewers. Whether you are living with EDS yourself or seeking to learn more, social media platforms like TikTok provide a valuable resource for connection and awareness. By promoting and sharing these TikToks, we can create a broader conversation around EDS. Creators also highlight important information about diagnosis, treatment options, and the importance of advocating for oneself in medical settings. Participation in awareness campaigns not only helps forge community ties but also ensures those affected feel seen and supported. Let’s harness the power of social media to spread awareness and educate others about Ehlers-Danlos Syndrome. Together, we can make a difference!

11 comments

Kendre (Cars.n.Curves)'s images
Kendre (Cars.n.Curves)

I was just diagnosed with EDS this week, they did blood work to figure out if I have more than just hEDS. I am 34 and because EDS is not as well known, I have had to live with this pain and growing issues for so long. There is also only one DR in TN that does genetic testing for EDS so I waited 3 yrs for an appt.

Related posts

Uploading my favorite TikToks here
the best summer of my life #bestfriends #summer #2016
Shelby

Shelby

1 like

uploading my favorite TikToks here
#nativeamerican #indigenous #cherokee
Shelby

Shelby

1 like

uploading my favorite TikToks here
#chronicillness #lifewithstripes
Shelby

Shelby

2 likes

uploading my favorite TikToks here
#insomnia #sleepdisorder #makeup
Shelby

Shelby

1 like

uploading my favorite TikToks here
#autumn #aesthetic #vibes
Shelby

Shelby

2 likes

uploading my favorite TikToks here
#bestfriends
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#bestfriends #chronicillness #alexaandkatie
Shelby

Shelby

1 like

uploading my favorite TikToks here
#oldpictures #familypictures
Shelby

Shelby

1 like

uploading my favorite TikToks here
#autumn #mabon #witch #aesthetic #vibes
Shelby

Shelby

2 likes

Uploading my favorite TikToks here
#1970s #makeup #70smakeup
Shelby

Shelby

2 likes

Uploading my favorite TikToks here
#university #college
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#1950s #makeup #50smakeup
Shelby

Shelby

1 like

uploading my favorite TikToks here
#gastroparesis #stomachproblems
Shelby

Shelby

2 likes

uploading my favorite TikToks here
#summer #practicalmagic #witch #witchy #aesthetic
Shelby

Shelby

1 like

uploading my favorite TikToks here
#autumn #witch #witchy #vibes #aesthetic
Shelby

Shelby

1 like

uploading my favorite TikToks here
#autumn #fall #vibes #aesthetic
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#bluesklara #osteogenesisimperfecta #brittlebonedisease
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#1960s #makeup #60smakeup
Shelby

Shelby

2 likes

Uploading my favorite TikToks here
#bestfriends
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#2023
Shelby

Shelby

1 like

uploading my favorite TikToks here
#fall #autumn #vibes #aesthetic
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#witchcraft #witch
Shelby

Shelby

1 like

Uploading my favorite TikToks here
obsessed with this dress from lively ghosts #livelyghosts
Shelby

Shelby

1 like

uploading my favorite TikToks here
#blairwaldorf #shoppaholic
Shelby

Shelby

1 like

uploading my favorite TikToks here
#spring #aesthetic #vibes
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#1950s #50smakeup #makeup
Shelby

Shelby

1 like

uploading my favorite TikToks here
#scream #horrorlover #billyloomis
Shelby

Shelby

3 likes

uploading my favorite TikToks here
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#makeup #halloween #vampire #vampiremakeup
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#halloween #makeup #madhatter
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#makeup #harrypotter #slytherin
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#1970s #70smakeup #makeup
Shelby

Shelby

2 likes

Uploading my favorite TikToks here
#makeup
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#1960s #makeup #60smakeup
Shelby

Shelby

1 like

uploading my favorite TikToks here
#swiftie #taylorswift #midnights #makeup
Shelby

Shelby

1 like

uploading my favorite TikToks here
#bestfriend #aesthetic #vibe
Shelby

Shelby

2 likes

Re uploading my TikTok videos
I'm tryna save my TikTok videos before TikTok gets banned 💀 #straykids #felix stray kids #felix #leefelix #edit
Chan's favourite sock

Chan's favourite sock

3 likes

uploading my favorite TikToks here
#lupus #chronicillness #autoimmunedisease
Shelby

Shelby

2 likes

uploading my favorite TikToks here
#pots #posturalorthostatictachycardiasyndrome #disautonomia #chronicillness
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#2024
Shelby

Shelby

1 like

uploading my favorite TikToks here
#aesthetic #vibe
Shelby

Shelby

1 like

Uploading my favorite TikToks here
#osteogenesisimperfrcta #brittlebonedisease #chronicillness #spoonie
Shelby

Shelby

1 like

uploading old tiktoks here🫶
Hi guys I would love to welcome all my friends and followers to my lemon8 page 🍋🎊 I will be trying to upload way more content here so we have somewhere to go if Tiktok is banned ; I will be very sad but excited to see what cool new apps will come in its place
MADMONEYPROD

MADMONEYPROD

16 likes

re-uploading a tiktok to see how this works
getting a feel for this app... #arcane #vi #strugglingartist #art
☆A'Shae☆

☆A'Shae☆

1385 likes

Uploading some old TikToks
#oldtiktok #musician #gaycreator #sadday #unfiltered
SpicyRamen

SpicyRamen

36 likes

Reuploading TikTok’s
#fnaf #cosplay #fyp #fnafcosplay #foryou
Alcides/Alice (They/He)

Alcides/Alice (They/He)

10 likes

Reuploading my TikTok’s to here
#gettoknowme #billzo #billzoedit #edits #fyp
★scrat_cat

★scrat_cat

3 likes

Uploading some of my TikToks here I guess
I literally have no idea how to use this app yet so here’s hoping i can just reuplod stuff and move on. #drawn #art #animeart #oc
Astridcreates

Astridcreates

8 likes

Stop uploading stickers into your planner app
Imported stickers are hard to find… let’s be real 😩 Organize your stickers in the Files app instead — it’s so much easier to keep everything in one place. Then use Preview to see your stickers, drag & drop, and preview before placing. Faster. Cleaner. Way easier. Using the stickers fr
She is Haute

She is Haute

26 likes

Reuploading of my content here :]
#trollhunters #fyp
silly lizzie

silly lizzie

11 likes

reuploading my vids
#straykids #skz #straykidseverywhereallaroundtheworld #skzfyp
jeongins JJAM!

jeongins JJAM!

3 likes

reuploading all my edits on here
#gettoknowme #nelsonneumann #nelsontheprodigy #camwilder #rwe
isabelle!

isabelle!

33 likes

See more