the thing about an invisible chronic condition is:
1. I don’t know how I’m going to feel from one day to the next. And most of the time I have no idea why I suddenly feel rough.
2. The medical admin is almost as exhausting as my actual illness. Calling doctors in between meetings, trekking to appointments. I feel like my heath has become a side hustle that I don’t get paid for.
3. It’s not my whole personality, but it has drastically changed my life. I used to exercise 4-5 times a week, sometimes twice a day. I used to wake up feeling pretty decent and if I didn’t it’s because I had a normal issue like a cold or maybe a hangover (lol). But now I’m so up and down I can’t just ignore that there’s something wrong with me… so forgive me for talking about it way too much.
4. A chronic condition isn’t going to stop me from living my life exactly how I want, it’s just going to make things slower and harder. Life is still too short not to give everything a go. But maybe the day I’m supposed to do something is not the day I do it. Maybe I reschedule things so that I can still do them, just on a better feeling day.
5. Accepting that not everyone understands is difficult but essential. I don’t really need to explain why I feel rough I just need people to accept it. Luckily I have the best support system and if I really don’t want to go to an event, I can just say no thanks without excuses. I’m grateful for that!
#freshlemon8 #chronicillness #chronicillnesswarrior #autoimmunedisease #healthylifestyle
