Sunday reset - Storytime
Whewwww that market kicked my butt yesterday…this beach day was much needed for all of us…
Especially tytan…story time
Aaron left for his hunt Thursday morning, mind you my husband has never been away from tytan since we moved back home. I honestly didn’t think anything of it but when Tytan noticed his dad wasn’t home during the evening that’s when it went cray. Tytan didn’t sleep all night, so of course I didn’t make it to work cause I was dead.
Friday I had so much to do for our market prep but Tytan wasn’t having it. Bless my sisters for doing the run around for me.
Friday night the bomb went off😭
His episode lasted over 2 hours.
Thank god my siblings were over for dinner cause it was a bad one.
The hurt was unbearable, trying to stop your child from hurting himself and others is a hurt I can’t even explain.
& if you didn’t know, kids on the spectrum have like super hero strength😩 so I was fighting against a grown man tbh…
I was so drained, emotionally, physically and mentally, I was so close to calling off the night market.
At hour 3 his meds finally kicked in so i could finally shower and decompress.
Saturday morning he was still on edge😭
Walking on eggshells is so stressful idk how I even function some days.
So before I dropped him off to his mamas so we could do the market, he had one more dose and thank the lord he slept for 4 hours while we were at the market.
After we were done I was going to leave him there for the night. But guess what at 11pm I checked the camera in his room and he was pacing hardcore. So I showered and drove back to town to grab him cause he was not planning on going down lol.
Sure enough we got home and he didn’t sleep until 2am stimming hard core.
After he went to bed we all crashed woke up and he’s still on edge😭 fml at this point
So I was like ok he needs to go be with nature for a little bit cause this no can…
& here we are at the beach all decompressing from this long exhausting weekend😩
Tomorrow is his Dr.s appointment so praying we can try something new. I know change is a huge factor but damn…
#lifewithautism #autism #specialneedsmom #family #behavioralhealth
Living with and caring for a child on the autism spectrum is a journey full of challenges, emotional highs, and lows. From my own experience and many stories shared in the special needs community, managing behavioral episodes often calls for immense patience and resilience. Momentary relief like the beach day described is not just a luxury but a necessity—a way to decompress and regain strength after especially tough days. What resonated deeply in this story was the description of the child’s "superhero strength" during episodes, which is something many caregivers understand firsthand. These moments can be physically and emotionally overwhelming, and having dedicated family support, like siblings stepping in to help, often makes a huge difference. Caregiver burnout is real, and sharing responsibilities is vital. The medications that eventually calm the episode provide much-needed relief, but the unpredictability and lingering edge afterward create a constant tension, like "walking on eggshells." Many parents find that nature, whether a beach visit or a quiet park, offers therapeutic benefits—not just for the child but for the whole family. Being outdoors can improve mood, reduce stress hormones, and foster moments of calm and connection. I’ve found that preparing for doctor's appointments with detailed notes about these episodes can help in advocating for effective changes in treatment plans. Open communication with healthcare providers allows for tailored strategies that can ease symptoms and improve quality of life. Lastly, this story highlights an important aspect many special needs families face: balancing care responsibilities with everyday obligations like work and events. Sometimes plans must shift, and that’s okay. Prioritizing mental health and family well-being is key. For caregivers experiencing similar challenges, remember that you’re not alone. Communities, both online and offline, offer invaluable support. Sharing stories, tips, and encouragement can empower all of us navigating life with autism and behavioral health concerns.
