Did POTS cause a deadly car crash? This is a question raised by the new Netflix documentary The Crash about the case against Mackenzie Shirilla and it is a delicate and dangerous question. What do you think? #netflixrecommendation #netflixdocumentary #pots #potssyndrome #potsie

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A new Mormon temple in Orange County California is temporarily open to the public for free tours it’s an interesting cultural experience and the architecture and design are beautiful it was also more accessible than I expected it to be you have to reserve a tour slot on their website throughout May

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Unboxing Stitch Snow Cone Swirl mystery plushie bag charm. Which one will I get? #mysterybox #liloandstich #disney #unboxing #stitchlover

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I am very much not out of the woods yet #surgery #lupus #psoriaticarthritis #autoimmunedisease #thyroidsurgery

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Post surgery update the fatigue has been absolutely awful lately I’m sleeping most of the day #thyroidsurgery #thyroidawareness #surgeryrecovery #thyroidnodule

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Don’t give up #thyroidsurgery #thyroidcancer #thyroidawareness #surgeryrecovery

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How it started vs how it’s going: one week ago half my thyroid was removed for possible cancer #thyroidsurgery #thyroidcancer #cancerjourney #cancersucks #thyroidawareness

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I got a new thyroid it’s a lot more affordable than you’d expect too 😂 #thyroidsurgery #thyroidcancer #autoimmunedisease #hashimotos #chronicillnesshumor

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Who needs Coachella when you can have half your thyroid removed? Vibes off the charts. #thyroidsurgery #thyroidcancer #surgeryrecoverybelike #autoimmunedisease #hashimotos

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This is the life hold on tight

Dealing with chronic illness and now a cancer scare it can be so easy to spiral into all my worst fears and worst case scenarios and feel like everything is terrible. That's why I like to celebrate disabled joy and take time in my life to find joy as often as possible. The system tells disabled an

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Getting doctors to understand, coordinate and plan for conditions that aren’t within their specialty and aren’t common is always really hard and frustrating #adrenalinsufficiency #mcasawareness #lupuswarrior #potssyndrome #thyroidsurgery

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What should I name him? #disabledcommunity #chronicillness #thyroidsurgery #autoimmunedisease #lupuswarrior

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The truth about straws

If your environmental stance hinges on straws, you’re aiming way too low. Single-use plastic is a massive systemic problem. Corporations, overproduction, packaging waste, that’s where the real impact is. Not disabled people trying to drink safely. Bendy plastic straws were literally designed

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Replying to @DisabledJourneys @naturelover756 When the biopsy is unclear the safest route is often removing half the thyroid for further testing and going back for the rest if needed @Jessi Draper went through a similar process with her thyroid #thyroidsurgery #cancerjourney #thyroidcancer

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Replying to @Julia Why not use reusable straws for surgery recovery? Straws are an accessibility issue. #accessibility #thyroidsurgery #straws #disability #chronicillness

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Got this neck ice pack for surgery prep and honestly… this is the kind of thing that makes a huge difference. Recovery is going to be rough, and having little things like this to manage pain and swelling means more than people probably realize 💕 #cancersucks #cancerjourney #thyroidcancer

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Didn’t expect “loofah on a stick” to become essential surgery prep… but here we are 😂 Preparing for surgery with chronic illness means figuring out all the little things most people don’t think about — like how you’re going to shower without overexerting. Honestly, this might be one of the mo

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Thank you to my lovely friend Alexandra for this cute and fun gift #cancersucks #cancerjourney #thyroidcancer #thyroidsurgery #chronicillness

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This should last a while #cancersucks #cancerjourney #thyroidcancer #thyroidsurgery #chronicillness

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Surgery rescheduled

My surgery, which was originally scheduled for today, has been rescheduled to April 9 after I got the flu. I’m preparing for thyroid surgery related to a possible cancer diagnosis, alongside managing multiple chronic health conditions. It’s been a lot to navigate. I’m incredibly grateful for

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