Disabled and Chronically Ill at 25

For as long as I can remember I’ve been the “sick kid”. Missing school, never at any social gatherings, basically invisible. It’s easy to say the last 10 years of my life haven’t exactly been what they should’ve. I’ve missed out on graduation, college, job hunting, moving out, partying. All the normal things someone my age should be experiencing are things I wish I could’ve had. Instead I’ve been battling a laundry list of illnesses that basically leave me glued to a bed connected to tubes and wires. I’ve overcome a lot and I’m practically fighting for my life on a daily basis yet I still feel like a failure. I would love to find some people out there who can also relate to this as I’d love to swap stories. Whatever your fight is, I feel you and I support you and we all need to support each other to keep moving forward. #disabilitylife #disabilityawareness #chronicillnesscommunity #safespace #lemon8challenge

2024/10/22 Edited to

... Read moreLiving with a chronic illness at a young age can be an isolating experience, but connecting with others who share similar struggles can provide essential support. Many young adults face challenges related to education, employment, and social expectations due to their health. Understanding chronic illness and its implications is crucial. Research indicates that building a strong support network through online communities can lead to improved mental well-being. Engaging in forums like #disabilitylife, #chronicillnesscommunity, and more allows individuals to share experiences and gain insights into coping mechanisms. Self-advocacy and awareness about one's condition are also important, as it empowers individuals to seek the care and resources they need. Moreover, educating friends and peers about the realities of living with a chronic condition can foster empathy and aid in reducing stigma. Emphasizing mental health resources and counseling for those affected is important to ensure all aspects of their health are addressed. Involving oneself in supportive networks not only provides a sense of belonging but also encourages others to share their stories and challenges, further enriching the community’s understanding of chronic illness.

39 comments

Sierra Ayers's images
Sierra Ayers

Hi Hana! I’m Sierra, and have been chronically ill with a mix of autoimmune diseases myself(MCTD). I became disabled in my late 20s and that shit my dreams and all my hard work down of going to med school. I have Lupus, RA, H-EDS, Addisons and severe chronic migraine with aura(had them since 2nd grade). I’m also a very young stroke survivor as I had a stroke due to my illness in my 20s and was paralyzed for almost 2yrs. It’s been an extremely long, hard, painful battle, but there are some good days even when I’m in pain. I’ve had to learn very early to become my own advocate as I had a lot of medical gaslighting in the beginning of my sick journey. I’m now someone who also helps others advocate for their health.

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