It’s been awhile, I’ve been trying to live in the moment. Freida has grown so much and getting stronger each day. Of course, there are days that we will feel dejected because her seizures do cause some regression, like one day she mastered a full roll on her own and then she stopped do so after a g

3 years in and I’d be lying if I said “this is all I ever dreamt of” or “nothing I would change for this”. At the end of the day, yes we were prepared and wanted a child but nothing can prepare you enough for unpredictable circumstances like complications with pregnancy, complications with birth, a

I still remember catching your first smile and giggle when I was playing with you at about 2 mths old. That very same day, we went to the A&E because of reflux issues. Who knew that was the tip of the ice berg… Infantile spasms caused regression and you completed lost your smile. I thought