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ค้นพบโพสต์ แฮชแท็ก และฟีเจอร์เพิ่มเติมได้ในแอป

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Saturday night = Methotrexate night. It hasn’t helped with my burning mouth, but I feel like it’s helped my GI symptoms to some degree #lupuswarrior #methotrexate #chronicillness #lupus #lupuswarrior🦋💜
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Saturday morning yoga with my little nugget 💕 #lupuswarrior #lupus #chronicillness #lupuswarrior🦋💜 #yoga
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Going gluten free for at least a few months to see if it has any impact on my mouth and/or GI symptoms. It’s been recommended to me many times, so I’m giving in and trying it regardless of my celiac tests. Give me all the recs please! #glutenfree #lupuswarrior #lupus #chronicillness #lupus
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Slowly, but surely, adding yoga back a little at a time 💕 #autoimmunedisease #lupuswarrior #lupus #chronicillness #lupuswarrior🦋💜
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Being tested for Celiac…again…but with all the blood tests this time. I’ve been tested three other times, but it never included all the needed labs. #autoimmunedisease #lupuswarrior #lupus #chronicillness
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Total curveball at my primary today… he thinks I have celiac disease. I’m not convinced, but apparently have never been fully tested for it like I thought I was. I have to go get labs done in the morning to check. He said my asca igg, iga, and calprotectin could also be pointing at Crohn’s #autoim
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Replying to @teenmarie67❌️ the things I’ve tried for my burning mouth, and this isn’t even all of it 😭 not pictured - Low dose naltrexone, my normal meds (benlysta, hydroxychloroquine, methotrexate), iron infusions, l lysine, cymbalta, duloxetine, capsaicin, pantroprazole, and some other things.
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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“You handle the pain so well”… no, I don’t. I actually just hide it well 😞. My mouth burning 24/7 is a huge burden to bear #lupus #lupuswarrior🦋💜 #autoimmunedisease #sjogrens #burningmouthsyndrome
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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One year of having a port placed for my Lupus infusions. One year ago on 8/25/25, I went to Interventional Radiology and had a power port placed for my infusions. My hematologist ordered it because my veins are difficult to get, and infiltrated on more than one occasion. #powerport #chemoport
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Five things I wish every doctor knew about chronic illness #chronicillness #autoimmunedisease #lupuswarrior🦋💜 #lupuswarrior #lupus
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Unfortunately this is so true for women with invisible illness. We have to *constantly* advocate for ourselves #lupus #lupuswarrior🦋💜 #autoimmunedisease #lupuswarrior
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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When you missed your dance calling 😂 Hypermobility spectrum disorder checking in haha #hypermobility #hypermobile
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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I made it through a yoga class this morning, and I’m so dang proud of myself! It took years to get to this point, and I definitely can’t do it every day, but today…today was a win #lupuswarrior #lupus #autoimmunedisease #lupuswarrior🦋💜
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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#onthisday
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Collagenese silicone gel for the keloid over my port scar #portacath #port #collagen #scar #lupuswarrior
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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My rheumatology appointment yesterday went far south. My heart was acting a fool yesterday #lupuswarrior #lupus #pots #potssyndrome
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Article that I wrote for the Lupus Foundation 💜💜 register to walk! You will not regret attending #lupus #lupuswarrior #autoimmunedisease @Jess | Lupus Life💜🦋 @mallysonwags @Brandon - Lupus SLE @Ashley Lou, RN, CRNI @lfaseregion
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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It’s been a VERY medical week 😮‍💨 #autoimmunedisease #lupus #lupuswarrior🦋💜
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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18 months of Benlysta 💜 #autoimmunedisease #lupus #lupuswarrior🦋💜 #benlysta
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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Replying to @Missy Yes, I indeed pooped out a camera 😂. I had a capsule endoscopy (Pillcam) on Monday morning, and its journey ended on Wednesday morning #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease
Heather - Living with Lupus 🦋

Heather - Living with Lupus 🦋

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ดูเพิ่มเติม
Heather - Living with Lupus 🦋
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Heather - Living with Lupus 🦋