Article that I wrote for the Lupus Foundation 💜💜 register to walk! You will not regret attending #lupus #lupuswarrior #autoimmunedisease @Jess | Lupus Life💜🦋 @mallysonwags @Brandon - Lupus SLE @Ashley Lou, RN, CRNI @lfaseregion

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It’s been a VERY medical week 😮‍💨 #autoimmunedisease #lupus #lupuswarrior🦋💜

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18 months of Benlysta 💜 #autoimmunedisease #lupus #lupuswarrior🦋💜 #benlysta

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Replying to @Missy Yes, I indeed pooped out a camera 😂. I had a capsule endoscopy (Pillcam) on Monday morning, and its journey ended on Wednesday morning #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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#onthisday exactly two years since I started hydroxychloroquine/plaquenil! I was officially diagnosed a month after this video.

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IYKYK. When symptoms are ruining your life, you’ll do anything to figure out what’s wrong. #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease #lupus

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The in’s and out’s of the pillcam (capsule endoscopy). Ask me anything! If it’s embarrassing, feel free to dm me. I’m an open book and nothing is too tmi for me to answer about it #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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Wait a minute 😭😭 I think I’m stuck in my bra for the night…noooo #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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Replying to @Bojanglesthesaddlehorse Why I’m doing the Pillcam (Capsule Endoscopy) #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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I have a camera inside of me 😂😮‍💨. I’m having a pillcamera (capsule endoscopy) done to check my small intestines for evidence of Crohn’s. #pillcam #pillcamera #capsuleendoscopy #autoimmunedisease

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Pillcam coming soon! I’ll post a video afterwards! Hoping I can record it 🤞 #pillcam #capsuleendoscopy #autoimmunedisease #lupus

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Prep day for my pillcam tomorrow. Prayyyy that they do it and don’t turn me away please. So my appt was scheduled for tomorrow morning, but late Friday afternoon, we had to move the day because it hadn’t yet been approved by my insurance. Right after the office closed, my insurance approved it. So

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Documenting the journey! My keloid silicone cream has to be compounded and mailed from Tampa, but let’s see how well it works over the next few months! I can’t do steroid injections in it because of the risk of them accidentally injecting into the port #lupuswarrior🦋💜 #lupus #autoimmunedisease

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What was one of my first Lupus symptoms? The malar rashes. I was told that it was “just rosacea” for years before finding out I have Systemic Lupus Erythematosus (SLE) #lupuswarrior🦋💜 #lupus #autoimmunedisease #lupuswarrior #sle

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OVER these injections 😅😂🫣 #lupuswarrior🦋💜 #lupus #autoimmunedisease #lupuswarrior

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My biggest piece of advice for anyone newly diagnosed with Lupus is always to connect with others also living with Lupus. Find your Lupus tribe and hold onto them tight 💜. I highly, highly recommend going to the Lupus walk in your area, joining support groups, and getting involved however you can.

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The blessing and the curse of getting a medical test done. There’s so much riding on this. Praying and praying for some answers #lupuswarrior🦋💜 #lupus #autoimmunedisease #lupuswarrior #sle

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Join me in Jacksonville on October 3rd!

We’re exactly two months away from the walk to end Lupus in Jacksonville! 💜 I can’t wait to see some of you there! If you want to join my Jacksonville SpoonBob team, here’s the link, and if anyone wants to donate to the Lupus Foundation, it’s tremendously appreciated! 🦋 https://support.lupus.org

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When your pillcam date falls through… again…

Huge sigh. Now it’s scheduled for Monday morning 🙄 #lupus #lupuswarrior🦋💜 #autoimmunedisease

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#onthisday

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Heather - Living with Lupus 🦋