Artemis Launch! #artemis

0 likes

Hot take… normal labs and tests don’t mean that nothing is wrong. Doctors may just not have run the *right* test yet. Keep advocating for yourself and getting more opinions ❤️ #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

3 likes

#onthisday

0 likes

For the few others that also saw him, or know who he is, shoutout to the best pcp around 😭. We miss you! #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

0 likes

When a new provider is looking at your chart like they saw a ghost 👻😆🤷‍♀️. I got called complex about three times in the 20 minute visit lol #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

2 likes

When currently healthy people think they can prevent all illness and disability. It can happen at anytime, to anyone. #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

5 likes

What procedure am I about to have? Again… 🫠🫠🤦🏼‍♀️🤦🏼‍♀️ #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

2 likes

Livedo Reticularis with Lupus. Livedo reticularis is a vascular condition causing a mottled, purple, net-like pattern, typically on the legs, due to reduced blood flow. It can happen outside of Lupus, but Lupus patients commonly have it #lupus #lupuswarrior #sle #autoimmunedisease #lupuswa

4 likes

Benlysta and Butterfly Rash. This is month 13 of Benlysta infusions for me #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

3 likes

Chronic illness is weird… one minute at a farm, next minute, at treatment #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

5 likes

New chronic illness “toy”… kidding, at home nebulizer so I can actually breathe #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

8 likes

If you’ve prayed for abnormal labs, to have some kind of hope for treatment and a better quality of life, I understand you completely. Nobody wants anything to be wrong, but we need answers for treatment. I prayed for answers to my GI issues because I suffer so much with them. I’m still praying I g

6 likes

Yes, Conan, we are pale with red butterfly rashes. But, I’m not upset about the exposure. Keep saying Lupus. We need people to hear it and be made aware that it exists. We exist. Our disease may be mostly invisible, but let’s made it heard and talked about #lupus #lupuswarrior #sle #autoimmu

3 likes

Take the scooter! It helps so much and fit just fine with three adults and one kid in an inside cabin on the MSC World America #mscworldamerica #mobilityscooter #cruise #msccruises

2 likes

Lupus is forever, so I’m going to hurt no matter where I am. I’m choosing to keep living life as full as I possibly can. Here’s to the past seven days unplugged in the Bahamas, Mexico, and Honduras ❤️ #lupus #lupuswarrior #sle #autoimmunedisease #lupuswarrior🦋💜

5 likes

Things I pack to go on a cruise with Lupus

Sunscreen, heating pads, meds… oh my! Here’s all the big things I always remember to bring with me on a cruise #lupus #lupuswarrior #sle #autoimmunedisease

7 likes

#onthisday still true 😂 IV Benadryl hits hard every month lol #lupus #lupuswarrior #sle #autoimmunedisease

3 likes

Replying to @. Symptoms I’ve had that could be Chron’s (not formally diagnosed) #lupus #chronsdisease #lupuswarrior #autoimmunedisease #sle

8 likes

Here comes yet another diagnosis I’m sure… Chrons. Still waiting for the rest of the panel, but these popped up this morning. Relief for answers, but my gosh I’m collecting autoimmunes like Pokémon’s #lupus #lupuswarrior #lupuswarrior🦋💜 #sle #autoimmunedisease

5 likes

#onthisday

5 likes

Heather - Living with Lupus 🦋