Yes, it’s true most of our respites are also babysitters. We find them the same way most parents do: •school/daycare •friends of friends •job postings But doesn’t he need a certain kind of care? Yes C-Money does but that’s my job to train them exactly to what C-Money needs and our expect

Hope your apology is as loud as your disrespect was. Funny how some people mistake kindness for weakness. Protecting my son will NEVER be something I apologize for. And I have ZERO problem making a scene in public if you’re going to be disrespectful. Will I look like the village crazy lady?

et’s learn something new today 😊 OK, let’s be honest, most of our besties probably already knew all of this. However, if you’re new here, hi, welcome to our little corner of the internet 👋 C-Money is 14 years old and has two rare diseases: 1.) Sanfilippo syndrome; aka childhood Alzheimer’s

C-Money was diagnosed with Sanfilippo syndrome in 2016, just days before his fourth birthday. At the time, there wasn't much information available, even though the disease had been discovered in the 1960's. Our doctor explained how it would likely progress and told us that most children with San

TikTok do your thing curious minds need to know and by that I mean me. I need to know.

POV: Caregivers start sharing the things they wish someone had told them sooner 💜 Seriously though… just because I had to figure everything out the hard way doesn’t mean you should have to. That’s why I’ll always share resources like @Aeroflow Urology They can help check if your insurance may

I said what i said.

Replying to @Charlotte Coyle thank you for brining this up. A lot of times people hear respite and assume “glorified babysitter” but there is SO much more that goes into it. Thank you for your time being a respite and hopefully if your heart leads you back to it, you’ll find the right fit ❤️ #res

Some of the different tips/places ai’ve been able to find some really wonderful respites becuase we all need a little help every now and then 💜 #respite #medicallycomplex #caregiver #specialneedsparenting #themoreyouknow💫

i am Mrs. Nesbitt #mrsnesbitt #carterschallenge #socialmedia #storytime

#stitch with @✨ Loni ✨ honestly though he is the worlds best boss #carterschallenge #bossbaby #job #caregiver

Hot take 🔥 The hardest part of caregiving isn’t being tired. It’s remembering EVERYTHING. Appointments. Med refills. Supplies. Insurance paperwork. School stuff. Doctor follow-ups. The mental load is nonstop. One thing that helps? Through @Aeroflow Urology, insurance may cover t

True story

Part one of my day

hopefully this will get to who it needs to #to♾️andbeyond

heyyy besties 👋 let’s go explore Moana’s water fun at Epcot #ditl #vlog #fyp #epcot #heyyybesties