#specialneedsmom #momsbelike #raredisordermom #nkh

People often ask me how we keep going. The answer isn’t that this journey has been easy. It hasn’t. There have been sleepless nights, heartbreaking diagnoses, emergency hospital visits, and moments when fear felt overwhelming. But there has also been laughter. There have been milestones d

I had been visually examined 4 times and the cancer was missed. #cancerdiagnosis #cervicalcancerawareness #cancerwhilepregnant

Six years ago, I wrote from one of the hardest seasons of my life. Reading those words today, I have so much compassion for the woman I was. She was grieving, scared, and trying to trust God with a future she never would have chosen. So much has changed since then. And yet one thing remain

At the time, I was grieving the realization that both of our children would face life with a rare genetic disorder. Reading those words today, I have so much compassion for the version of myself who wrote them. She was scared. She was overwhelmed. She was trying to imagine a future she

What it’s like to be diagnosed with cancer while pregnant. #cancerwhilepregnant #chemowhilepregnant #cervicalcancer

Sometimes it all just hits me. Tonight, after putting the kids to bed, everything I’d been holding inside finally came pouring out. I realized something about myself. I spend most of my life holding it together. Holding the grief. Holding the joy. Holding the appointments. Hold

Hear how I was diagnosed with cervical cancer while pregnant with Russell. What started as a routine pregnancy quickly became a fight for both of our lives. In the middle of preparing to welcome a baby, I was facing cancer treatments, impossible decisions, and a future filled with uncertainty.

Sometimes the miracle isn’t the healing. Sometimes the miracle is finding the strength to keep showing up when life doesn’t look the way you hoped it would. It’s choosing joy in the middle of uncertainty. It’s finding gratitude on the hard days. It’s loving fiercely, believing boldly, and t

If you’re looking for a fun family adventure, the Lost Sea in Sweetwater, Tennessee is definitely worth the trip! The tour guides do an incredible job bringing the cave’s history to life through storytelling while teaching you all about this unique underground world. We recently took our nieces

Six years ago, we weren’t sure Russell would make it to this moment. Today, we’re grabbing ice cream to celebrate a very sweet milestone—Russell turning 6 and officially outliving the average lifespan of his rare genetic disorder. If you’ve followed our journey, then you know every birthday f

Six years ago, doctors weren’t sure Russell would survive. Most children with his rare genetic disorder, NKH (LIAS variant), don’t live past infancy. For those who do, the average lifespan is often only a few years. This week, Russell turned six. Six years of laughter. Six years of miracl

#soccer #tiktokcampaign #facebook #worldcup

If you know, you know. 🤍 One of my favorite places to treasure hunt is the local Goodwill and charity shops. I always seem to find the best pieces there, and the prices are incredible. My secret? Go often. The good stuff doesn’t stay long, and every visit is different. Whether I’m looking

Today is a really big day for our family. My son has officially outlived the average age for his root genetic disorder, NKH. Most children with NKH pass away within the first 10 days of life. And for those who survive past those first 10 days, the average life expectancy is often around 3 to 5 y

Tomorrow my son Russell turns 6 years old. And I can’t let this week pass without stopping to acknowledge what that means. Russell has an ultra-rare form of NKH called the LIAS variant. When he was born, we were told his future was uncertain. The average lifespan for children with this disord

Stopped by Honey Bee Coffee in Knoxville, right across from Costco, to fuel up before tackling my grocery run. This place is HUGE with such a cute aesthetic. Whether you’re looking for a spot to work, study, meet a friend, or enjoy a coffee date, they’ve got plenty of seating and cozy spaces to

Russell turns SIX this week. Six years ago, we were told a very different story. We were handed statistics, life expectancy charts, and a prognosis that suggested we should prepare for the worst. But here we are. Six years of laughter. Six years of snuggles. Six years of watching God wri

Tellico Beach is just an hour from Knoxville and sits at the start of one of the most beautiful scenic drives in East Tennessee. The views never disappoint, and the food is always worth the trip. 🌄🚗🍔 #TellicoBeach #EastTennessee #KnoxvilleTN #TennesseeRoadTrip #ScenicDrive