Dysautonomia Awareness Month

October is Dysautonomia Awareness Month.

This is something I have struggled with for years.

14 years being told it was just anxiety.

4 years of testing on top of that until I finally got the Tilt Table that confirmed the diagnosis.

It has changed my life completely and has been a huge challenge. For more about my journey, check out my Instagram @ invisiblebutinvincible #invisibledisability #dysautonomia #invisibledisabilityawareness #unfiltered #pots

2025/10/2 Edited to

1 comment

Brandi Gingles's images
Brandi Gingles

What is Dysautinomia??

Related posts

Dysautonomia Awareness Month
October is Dysautonomia awareness month, and this is your reminder that Dysautonomia is more than “just passing out.” It includes different conditions like POTS which affect the whole body, and can vary from person to person! These symptoms should NOT be used as diagnostic criteria, but simply to
Unseen & Believed

Unseen & Believed

5 likes

Happy disability awareness month
#disabilitypridemonth #manga #mangarecommendation #mangaoflemon8 #mangacollection
ElainaLovesManga

ElainaLovesManga

659 likes

Dysautonomia Awareness Month
October is Dysautonomia Awareness Month! After 20 long years of searching for answers, I was finally diagnosed with Dysautonomia, a disorder that affects the autonomic nervous system. This condition can disrupt key bodily functions like heart rate, breathing, digestion, and more. The journey to
TheZebraFamily

TheZebraFamily

8 likes

Dysautonomia Awareness Month
Do you have Dysautonomia or know someone that does? It really sucks. For me it turned my life upside down and I’m in constant fight or flight mode. I haven’t caught a break for most of my adult life; not that my teens were that great but nobody knew what was wrong with me at the time so I lived a l
Dollierocker

Dollierocker

2 likes

Happy Autism Awareness Month 🧩💙❤️💚💛
Before I found my place in the kitchen, I found my purpose in the world Being in the ABA field, I’ve worked in clinic, school, and home settings… and I’ve learned something in every single one The patience it takes, the small wins that mean everything, and the everyday moments that people don
@ChefJaah 👩🏽‍🍳

@ChefJaah 👩🏽‍🍳

442 likes

A teal circle with white text states that about 25% of people with POTS are unable to work due to their symptoms. Below, a black bar begins the phrase "DID YOU".
An anatomical diagram highlights areas of the body affected by dysautonomia symptoms, including the head, chest, and extremities. Detailed lists categorize symptoms by body system, such as cardiovascular, gastrointestinal, and neurological issues.
A grid-like list presents numerous dysautonomia symptoms, including difficulty staying upright, dizziness, fainting, irregular heartbeat, chest pain, visual disturbances, fatigue, migraines, anxiety, and sleep issues.
Dysautonomia
#gettoknowme
WhoCares🖤

WhoCares🖤

9 likes

Don’t lose hope 💙 #dysautonomiaawareness #dysautonomia #dysautonomiapots #potssyndrome #chronicillness
Daisy Jane🌼

Daisy Jane🌼

4 likes

The girls that get it, get it. 🫶🏼🔥 #chronicillness #chronicillnessawareness #dysautonomia #dysautonomiaawareness #dysautonomiapots
Daisy Jane🌼

Daisy Jane🌼

10 likes

A woman holds a baby in front of a door with a wreath, overlaid with the dismissive quote: "It's not like you are going to die from it. You'll be fine. You're just a hypochondriac."
Dysautonomia sucks
Really struggling lately☹️ I wouldn’t wish the physical pain on anyone. #pots #potsie #potslife #dysautonomia #dysautonomiaawareness #chronicillness #chronicillnessawareness #chronicillnesswarrior #chronicillnesstiktok
Daisy Jane🌼

Daisy Jane🌼

7 likes

POTS awareness month!
#pots #potsawareness
SickGirl.ash

SickGirl.ash

11 likes

Sweet Ellie Mae 🩷 #chihuahuastiktok #chihuahuas #chronicillnessawareness #dysautonomiaawareness #potssyndrome
Daisy Jane🌼

Daisy Jane🌼

6 likes

my health issues ruined this moment for me, I tried to smile through it too….shortly after getting up I started vomiting 🙃 #chronicillness #chronicillnessawareness #disabled #disability #disabilitytiktok #dysautonomia #anxiety #limbdifference
Mariadeliz Santiago

Mariadeliz Santiago

14 likes

#dysautonomia #ist #inappropriatesinustachycardia
chronicallyTiffany - heds

chronicallyTiffany - heds

4 likes

A woman with long reddish-brown hair and glasses smiles slightly, resting her hand on her cheek. The text overlay reads, "When they think I don't know ball.."
A woman takes a mirror selfie, partially obscured by her phone, wearing a black top and pants. The text overlay says, "Except..."
A smartwatch on a wrist displays the time 8:52, date Feb 21, and a heart rate of 154 bpm. The text overlay states, "I know ball."
Dysautonomia Awareness Month 💜
From the land of super bendy and tachy, I wish you a happy dysautonomia awareness month and an uneventful October slide ☺️ There are many types of dysautonomia, the most common being neurocardiogenic syncope. Dysautonomia can also be secondary to other disorders as well, as more of a symptom than a
Myrtt |  🦓 EDS MCAS POTS 🧠🩺

Myrtt | 🦓 EDS MCAS POTS 🧠🩺

1 like

Otherwise I cannot function properly #chronicillness #chronicillnessawareness #disabled #disability #disabilitytiktok #dysautonomia #anxiety #limbdifference
Mariadeliz Santiago

Mariadeliz Santiago

12 likes

Trans Awareness Month 🏳️‍⚧️✊🏻
#transawarenessmonth #trans #transpride #transawareness
Jase(they/them)🏳️‍⚧️♾️✊🏻

Jase(they/them)🏳️‍⚧️♾️✊🏻

193 likes

Most people have never heard this word…
🖤October is Dysautonomia Awareness Month, a time to highlight conditions that affect the body’s autonomic nervous system, which controls automatic functions like heart rate, blood pressure, and temperature. One of the most common forms is POTS (Postural Orthostatic Tachycardia Syndrome) when sta
Brianna | POTS & Recovery

Brianna | POTS & Recovery

17 likes

The cooling towels are bilitok and the instant cold packs are from med pride! Please let me know if you tried these brands and if you have better recommendations!! #xyzbca #chronicillness #summer #heat #cool #stayingcool #pots #posturalorthostatictachycardiasyndrome #chronicallyill #chr
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

62 likes

I hate when this happens!! I feel like I’m gonna faint but the floor is gross<< Thankfully I usually have a mobility aid but sometimes w quick errands I think “I’ll be fine” - my flaw haha #Faint #SpoonieLife #ChronicIllnessHumor #PotsSyndrome #DysautonomiaAwareness
Lindsay Murray

Lindsay Murray

10 likes

#POTS explained (with cats & footage!) #PotsAwareness #PotsSyndrome #Dysautonomia #InvisibleDisability
Lindsay Murray

Lindsay Murray

104 likes

Service dog tasks for Dysautonomia
#service dog #tasks #disabilityawareness #dysautonomia #pots
Emily C.

Emily C.

74 likes

A light blue and white abstract background with yellow text reading "Photo Dump Dysautonomia facts!" and a blue awareness ribbon, indicating a collection of facts about dysautonomia.
A blue graphic for Dysautonomia Awareness Month, stating that cognitive impairment, including brain fog and difficulty concentrating, is a frustrating symptom of Dysautonomia, accompanied by a brain illustration.
An infographic listing various POTS symptoms with corresponding icons, such as tachycardia, pre-syncope, blood pooling, palpitations, fatigue, brain fog, and sensitivity to light, sound, and heat.
Dysautonomia facts!
Dysautonomia and pots facts. It’s not talked about enough. People are affected everyday and takes forever to get diagnosed when it should ONLY TAKE 15 mins at max. #potssyndrome #embracevulnerability #pots #dysautonomia #dysautonomiaawareness @
WhoCares🖤

WhoCares🖤

6 likes

Acne awareness month ❤️‍🩹
For those who may not know what NOT to say to their loved ones who struggle with acne💗 #acnehealingjourney #acnepositive #acnestruggles
Your Healing Fairy🧚🏽‍♀️

Your Healing Fairy🧚🏽‍♀️

1437 likes

Happy October slide everyone #xyzbca #firstofthemonth #dysautonomia #pots #dysautonomiaawareness
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

16 likes

And of course, just as I start complaining, Bailey came in with a plate full of desserts for us to share. She even checked to make sure the chocolate cake didn’t have espresso powder! We ate together and watched love island and I still feel like crap but I’m very grateful to be surrounded by so muc
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

314 likes

Hi @Tini👩🏼‍🍳🔥 ! I know your POTS diagnosis is still relatively new, and you might already be aware of some (or all) of this — but just in case, I wanted to share what I’ve learned from my own experience and the POTS community. Pregnancy can be unpredictable with POTS, and I hope this helps you f
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

562 likes

October is Breast Awareness Month
Nafezha Mohammadi

Nafezha Mohammadi

349 likes

The Unfiltered reality of Disability
I feel absolutely devastated. The last 4 years have been a living nightmare of hell in my own mind and body. I’ve been trying to get doctors to medically recognize my symptoms and my experience since I was 16 and since 2020 my health declined rapidly and I ended up being hospitalized multiple ti
Kaiii

Kaiii

6 likes

May is Mental Health Awareness month
hard times, sadness, and bad seasons are a part of the human experience when was the last time you told yourself thank you? other than God giving you the breath in your lungs, you’re the reason you’ve made it this far the days where you wanted to quit but kept going the times you fel
Caitlin

Caitlin

157 likes

This morning I was outside doing some light training with Sebastian, just to spend time with him and keep his mind engaged. He’s retired now, but training has always been something we both enjoy. And then he alerted. No gear. No tasking cue. Just him, noticing a change in my heart rate and r
Kate & Sebs

Kate & Sebs

1171 likes

Replying to @Hannarosebudd 🇺🇸🆘 #potssyndrome #pots #potsie #dysautonomia #dysautonomiaawareness
Daisy Jane🌼

Daisy Jane🌼

0 likes

NICU Awareness Month
September is #nicuawarenessmonth and although all 4 of my babies were premature, my first two LIVED in the NICU for the first month and a half-2 months of their lives. I was also in the ICU for about a month both times. Along with multiple hospital stays their whole infant and toddler lives.
The RosieXperience

The RosieXperience

22 likes

“Your spine might be the missing piece”
I lost years being told it was "just anxiety." The dizziness. The racing heart. The blacking out. But no one asked about my neck. No one checked my spine. This is what happens when you stop settling for surface answers...and start advocating for yourself. If you've been dismissed, thi
CERV-AID

CERV-AID

0 likes

I am barely feeling like a person today so I’m sorry for my appearance, but please drop and of your pots sickness remedies down below! #xyzbca #pots #chronicillness #posturalorthostatictachycardiasyndrome #potssyndrome #potsawareness #potsie #chronicallyill #cold #coldandflusea
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

54 likes

ADHD Awareness Month 🧡🧡🧡
Cheyenne

Cheyenne

936 likes

POTS essentials🧂
In honor of October being Dysautonomia awareness month here are some of my essentials as someone who deals with POTS (Postural Orthostatic Tachycardia Syndrome) 🤍🧂🦋!! #potssyndrome #dysautonomia #chronicillness #potsrecovery #awareness
Katie🤍

Katie🤍

30 likes

A white background features a colorful infinity symbol at the top, transitioning through shades of orange, yellow, green, blue, and purple. Below it, the words "AUTISM AWARENESS MONTH" are written in large, blocky, multi-colored letters, conveying a message of support and awareness.
Autism awareness month 🫶
I just want to say happy autism awareness month. I want my page to be a safe space for people of all kinds. I am here! In May I’ll actually be taking about Mental health month and telling my story of my struggles with ADHD, OCD, and Panic Disorder to show that you’re not alone!! #autism #anxiety
AngleDar99

AngleDar99

183 likes

May Mental Health Awareness Month
#fyp #foryoupage
Marcos Leyba

Marcos Leyba

587 likes

Why hasn’t anyone been talking about this? #pots #potssyndrome #potsie #dysautonomia #dysautonomiaawareness
Daisy Jane🌼

Daisy Jane🌼

0 likes

Happy Brest cancer awareness month 🌸✨🫶🥰
#pink
✝️🩷Sophie🩷✝️

✝️🩷Sophie🩷✝️

8 likes

Dyslexia Awareness Month
October is dyslexia awareness month. Throughout the month I will be posting dyslexic friendly Halloween books! First book recommendation is Long Live the Pumpkin Queen by Shea Ernshaw. 📖 🎃 📖 🎃 📖 🎃 #dyslexiaawareness #dyslexia #spookyseason #thenightmarebeforechristmas #booktok
Ericka's Library

Ericka's Library

7 likes

Heart palpitations are actually one of the worst things I experience on a day to day basis and I’ve tried just about everything to get rid of them and nothing works /: #xyzbca #pots #posturalorthostatictachycardiasyndrome #potsie #spoonie #chronicillness #chronicallyill #heart #heartpal
Kirsten🏳️‍🌈

Kirsten🏳️‍🌈

24 likes

Mental Health Awareness Month
May is mental health awareness month! Take what you need and never be afraid to ask for help💗 #mentalhealthawareness #peace #may #selfimprovement #selflove
Carleighjw

Carleighjw

24 likes

Autism Mom; Autism Awareness Month 💕
#autism #autismawareness #autismacceptance #specialneedsmom #autismoftiktok
Macey Elizabeth

Macey Elizabeth

8 likes

Autism Awareness Month isn’t just a moment for us💙
April is Autism Awareness Month, and I wanted to share something personal and meaningful. This portrait represents my journey as a mother navigating life with autism—raw, emotional, and full of love. The cyan and blue colors, and the puzzle-piece shapes, symbolize awareness, understanding, and the
TaniSha Mariê

TaniSha Mariê

12 likes

See more