Stage 4 endometriosis
• Stage 4 endometriosis laparoscopic excision surgery done ✔️
• My mind is finally clear enough to speak on my experience. My doctor said this was the worst case of endometriosis he had ever seen.
• I had multiple organs fused together by adhesions including my bowels and ovaries. My fallopian tubes were “shot”, completely filled with endo and swelling. They had to be removed.
• Glory be to god, he was able to remove most of the endo except he didn’t touch my bowels because we hadn’t spoke about it. I still have my ovaries and uterus. Although I will not be able to have kids naturally, I will be able to use IVF and still be able to carry out my own pregnancies.
• I’ve never vomited or been in this much pain in my life. I’ve just been crying and praying. Just grateful to still be here and that I was strong enough to still work as a bedside nurse though it’s been so tough to keep up. I’m a fighter and a true endometriosis warrior.
• No this surgery isn’t a cure just treatment to help me live a more normal, less painful life. There is NO cure. This is going to be a life long battle for me. All I can do is pray for the best and continue to fight this daily battle
#endometrosis #endometriosislifestyle #endo #chronicillnesswarrior #pcos
When I say Stage 4 Endometriosis is a battle, I truly mean it. Before my surgery, my life was a constant cycle of severe, unrelenting pain. It wasn't just 'bad period cramps' – it was deeply debilitating. I experienced excruciating pelvic pain that radiated down my legs, often making it hard to walk or even stand for long. My digestive system was in constant turmoil; extreme bloating, painful bowel movements, and alternating constipation and diarrhea were daily companions, which I now know was partly due to the endo fusing my bowels. The fatigue was overwhelming, a deep exhaustion that no amount of sleep could fix, making my nursing job incredibly tough. These weren't just symptoms; they were hijackers of my life, a constant reminder of how severe my condition was. It truly takes the spirit of an Endometriosis Warrior to push through days like that. Talking about "stomach endometriosis surgery," or in my case, a laparoscopic excision, was a huge step. Preparing for it involved so much more than just physical checks. Emotionally, I had to brace myself for what they might find and the potential impact on my future. My surgeon explained the goal was to meticulously cut out every bit of endometriosis tissue, especially where organs were fused. Waking up after the surgery was a blur of intense pain, but also an overwhelming sense of relief that it was done. The recovery was tough – managing the incision pain, dealing with gas pain from the laparoscopy, and slowly regaining mobility. It’s not a quick fix; it’s a major abdominal surgery, and understanding that expectation is crucial for anyone considering it. Living with Stage 4 Endometriosis post-surgery is a new chapter of a lifelong journey. While the surgery removed most of the lesions and dramatically reduced my pain, I know it's not a cure. My daily life now involves a conscious effort to manage my health. This includes regular follow-ups with my specialist, exploring different pain management techniques like heat therapy and gentle yoga, and being mindful of my diet to reduce inflammation. Emotionally, it’s about finding a support system and acknowledging that some days will still be harder than others. It's about accepting that I am a chronic illness warrior, learning to listen to my body, and advocating for myself every step of the way. This journey has taught me immense resilience, and I hope by sharing my experience, others facing similar battles feel less alone and more empowered.

Praying for you! I have stage 4 as well and your case sounds very similar to mine! Ovaries glued to uterus, uterus and rectum glued together, ovaries full of cysts, tubes sealed shut, etc. I hope this helps you feel less alone if that’s something you’ve been experiencing. This disease is so brutal, but God is good! ❤️❤️ blessings