Stage 4 endometriosis

• Stage 4 endometriosis laparoscopic excision surgery done ✔️

• My mind is finally clear enough to speak on my experience. My doctor said this was the worst case of endometriosis he had ever seen.

• I had multiple organs fused together by adhesions including my bowels and ovaries. My fallopian tubes were “shot”, completely filled with endo and swelling. They had to be removed.

• Glory be to god, he was able to remove most of the endo except he didn’t touch my bowels because we hadn’t spoke about it. I still have my ovaries and uterus. Although I will not be able to have kids naturally, I will be able to use IVF and still be able to carry out my own pregnancies.

• I’ve never vomited or been in this much pain in my life. I’ve just been crying and praying. Just grateful to still be here and that I was strong enough to still work as a bedside nurse though it’s been so tough to keep up. I’m a fighter and a true endometriosis warrior.

• No this surgery isn’t a cure just treatment to help me live a more normal, less painful life. There is NO cure. This is going to be a life long battle for me. All I can do is pray for the best and continue to fight this daily battle

#endometrosis #endometriosislifestyle #endo #chronicillnesswarrior #pcos

2025/12/20 Edited to

... Read moreWhen I say Stage 4 Endometriosis is a battle, I truly mean it. Before my surgery, my life was a constant cycle of severe, unrelenting pain. It wasn't just 'bad period cramps' – it was deeply debilitating. I experienced excruciating pelvic pain that radiated down my legs, often making it hard to walk or even stand for long. My digestive system was in constant turmoil; extreme bloating, painful bowel movements, and alternating constipation and diarrhea were daily companions, which I now know was partly due to the endo fusing my bowels. The fatigue was overwhelming, a deep exhaustion that no amount of sleep could fix, making my nursing job incredibly tough. These weren't just symptoms; they were hijackers of my life, a constant reminder of how severe my condition was. It truly takes the spirit of an Endometriosis Warrior to push through days like that. Talking about "stomach endometriosis surgery," or in my case, a laparoscopic excision, was a huge step. Preparing for it involved so much more than just physical checks. Emotionally, I had to brace myself for what they might find and the potential impact on my future. My surgeon explained the goal was to meticulously cut out every bit of endometriosis tissue, especially where organs were fused. Waking up after the surgery was a blur of intense pain, but also an overwhelming sense of relief that it was done. The recovery was tough – managing the incision pain, dealing with gas pain from the laparoscopy, and slowly regaining mobility. It’s not a quick fix; it’s a major abdominal surgery, and understanding that expectation is crucial for anyone considering it. Living with Stage 4 Endometriosis post-surgery is a new chapter of a lifelong journey. While the surgery removed most of the lesions and dramatically reduced my pain, I know it's not a cure. My daily life now involves a conscious effort to manage my health. This includes regular follow-ups with my specialist, exploring different pain management techniques like heat therapy and gentle yoga, and being mindful of my diet to reduce inflammation. Emotionally, it’s about finding a support system and acknowledging that some days will still be harder than others. It's about accepting that I am a chronic illness warrior, learning to listen to my body, and advocating for myself every step of the way. This journey has taught me immense resilience, and I hope by sharing my experience, others facing similar battles feel less alone and more empowered.

4 comments

Rachel Rozanski's images
Rachel Rozanski

Praying for you! I have stage 4 as well and your case sounds very similar to mine! Ovaries glued to uterus, uterus and rectum glued together, ovaries full of cysts, tubes sealed shut, etc. I hope this helps you feel less alone if that’s something you’ve been experiencing. This disease is so brutal, but God is good! ❤️❤️ blessings

See more(3)

Related posts

Stage 4 Endometriosis
Endometriosis is a disease in which tissue similar to the lining of the uterus grows outside the uterus. This leads to inflammation and scar tissue forming.Endometriosis is a complex disease that affects many women globally Symptoms vary with each person and healthcare workers may not easily diagn
GetFitwithLJ

GetFitwithLJ

68 likes

EndoWarrior:Surviving Stage 4 Endometriosis
🤍 1 month Post Op Deep Infiltrating Endometriosis Excision Surgery 🤍 Feeling good, hopeful about the journey ahead 🤍 ADVOCATE FOR YOURSELF #endometriosis #endowarrior #endometriosisawareness
SiMpLyRoNDiE

SiMpLyRoNDiE

184 likes

A flat lay of six supplement bottles, including Maca, Prenatal Vitamins, CoQ10, Evening Primrose Oil, Folate, and Myo-Inositol. The image is titled 'PCOS And Endometriosis Suppliments' and showcases products for hormone balance, fertility, and overall reproductive health.
PCOS & Endometriosis Supplements
As someone who has PCOS and Endometriosis these are supplements I take: Maca- 1 pill a day Helps mood and anxiety, boost energy, regulate menstrual cycles, and improve fertility Evening Primrose Oil- 1 pill a Day Helps balance hormones, anti-inflammatory, helps cervical mucus to improve fe
𝙲𝚑𝚎𝚕𝚜𝚎𝚢◡̈

𝙲𝚑𝚎𝚕𝚜𝚎𝚢◡̈

1012 likes

Living With Stage 4 Endometriosis 💛
Endometriosis—it’s a word that has shaped my life in ways I never imagined. Living with stage 4 endo isn’t just a diagnosis; it’s a daily experience that impacts my body, my mind, and my relationships. Today, I want to share my journey—the highs, the lows, and how I’ve learned to thrive in the mids
Ashley Lush

Ashley Lush

2 likes

A vibrant image of fresh vegetables like sliced cucumbers and cherry tomatoes in a wooden bowl, with text overlay "Foods To Eat ENDOMETRIOSIS From a Registered Dietitian," introducing dietary recommendations for managing endometriosis.
An illustration showcasing fiber-rich foods such as cabbage, carrots, peas, and wheat, with text "Fiber-Rich Foods" and "Support digestion & helps manage bowel irregularities," highlighting their benefits for endometriosis.
An illustration of omega-3 fatty acid sources including salmon, walnuts, sardines, tuna, and flaxseeds, with text "Omega-3 Fatty Acids" and "Can help reduce inflammation associated with endometriosis," for managing symptoms.
Dietitian Recommended Foods: Endometriosis
Endometriosis is a common medical condition that affects the tissue lining the uterus, known as the endometrium. This tissue can grow outside the uterus, causing pain, discomfort, and other health challenges. Symptoms of Endometriosis: Painful Periods: Intense menstrual cramps that may worsen ove
Maya

Maya

397 likes

Diagnosed with stage 4 endometriosis at 35
I see there are a lot of people who I can be transparent with about having endometriosis. Being in pain everyday and acting like everything is ok is like a norm to me. I learned that its ok not to be ok. I share these photos hoping that other women on this platform won’t be scared to share their st
Mo

Mo

6 likes

The image features dark green foliage with red roses, serving as a title card for an article about naturally balancing hormones, with the text "How I Balanced My Hormones Naturally" and "Lemon8 @ktraction."
The image shows a black container of "s'moo hormone balance powder" with cow print spots. Text indicates it helped with PCOS and Endometriosis symptoms, mood, fatigue, and led to pregnancy.
The image displays a bottle and box of "Mary Ruth's Vegan Chlorophyll Liquid Drops" in peppermint flavor. Text states it helped achieve a symptom-free cycle and reduced hormonal acne.
Healing from PCOS & Endometriosis
*Disclaimer- This is not medical advice. This is just what worked for me* PCOS and Endometriosis took over my life in 2018. Most days I was too nauseous to move, I was so fatigued, and the pain was unbelievable. I tried so many things to get myself back on track. I had so many doctors tell me
Kat Jackson🌿

Kat Jackson🌿

1356 likes

Fibroids +Endometriosis Girlies
Listen learning about fibromyalgia and endometriosis has became intriguing for me. ✨IM NOT A DOCTOR , so please consult with one before taking any medicine. after being told that I had so many fibroids in me and that I will never be able to conceive the only solution to my heavy periods and
Madame Kween✨

Madame Kween✨

587 likes

Endometriosis and fibroids exercise tips?
I’ve been struggling with endometriosis stage 4 and fibroids since I was diagnosed at 25. I’ll be 33 on April 5th. I already had the surgery to remove the fibroids however they grew back. Now I’m on my second weight loss journey. Does any one have tips on losing the weight in the stomach area? I’m
Sequoia Johnson

Sequoia Johnson

14 likes

A cozy bedroom scene with a bed, nightstand, and lamp, featuring text overlay 'ENDOMETRIOSIS SURGERY RECOVERY SURVIVAL GUIDE' and a heart graphic, setting the tone for recovery.
A person wearing oversized overalls and glasses, taking a mirror selfie in a bathroom, with text overlay 'ALL SCRUBBED UP AND READY FOR SURGERY', preparing for an operation.
A metal basket on a bathroom counter filled with post-surgery essentials, including disposable underwear, various pads, medicine, and bandaids, labeled for easy identification.
Endometriosis surgery recovery survival guide! 📝
I am officially 2 weeks post operation from my stage 4 endometriosis excision surgery! 💪 I’m already feeling like a brand new person and wanted to share everything that has helped to prep and in recovery. To prepare: • Drink lots of electrolytes beforehand to be hydrated!🧃 • My medical tea
Maddi Will

Maddi Will

97 likes

My Endometriosis Daily* Tea
My favorite blend of tea to support my body with this disorder has been Traditional Medicinals: Raspberry Leaf Tea and Lemon Detox Tea. Raspberry leaf helps tone the uterus and aids in menstrual support, while the lemon detox tea aids in skin, kidney, liver and gut health. Recipe: End of M
Kae Belis 🌸

Kae Belis 🌸

50 likes

This is for any young women who was told she is infertile due to endometriosis.
You are not, trust yourself and get the surgery. Even if no one believes you. At the age of 19 i had beginning of stage 3 endo. If i never got the surgery, I wouldnt be holding my lil man in my belly today at 37 weeks pregnant. #endometriosis #endowarrior #onthisday
Emma Jane Prescott

Emma Jane Prescott

714 likes

This is endometriosis.
⚠️ Trigger Warning: Vomiting shown in video This is endometriosis. One day I can look completely healthy, smiling, working, exercising, and going about life like nothing is wrong. The next day, I can barely stand upright. Endometriosis is far more than “bad periods.” It is a chronic, in
Mikayla✨☁️🌙

Mikayla✨☁️🌙

0 likes

Endometriosis and Relationships
I came across a post on #EndoFound that resonated with me, so I decided to put a personal spin on it. Here are a few ways Endometriosis can affect different relationships. • Endometriosis doesn’t just affect your body—it touches every part of your life. From the way you show up in your career
GetFitwithLJ

GetFitwithLJ

13 likes

What Stage 4 Endometriosis Really Feels Like 💛
I’m Endosister with Stage 4 Endometriosis. Stage 4 is the most severe form and can include: 💛 Deep infiltrating lesions 💛 Extreme pelvic and lower back pain 💛 Severe fatigue 💛 Bowel and bladder complications 💛 Fertility struggles It’s more than “bad periods.” It’s a daily fight that affe
JaPearl Accessories

JaPearl Accessories

1 like

Women with endometriosis listen up 🗣️🗣️
More muscle helps your body manage blood sugar more efficiently, which matters because insulin resistance is more common in women with endometriosis. 💪🏻💪🏻💪🏻 #lemon8challenge #lemon8badgehunt #endowarriorstrong💛 #endometrosis #endometriosissymptoms
killitwithkenz

killitwithkenz

2 likes

A black background with white text describing endometriosis as more than a bad period, detailing its painful and life-altering symptoms, and calling for a cure.
ENDOMETRIOSIS JOURNEY- STAGE 4
#MyLemon8Diary #endometriosislifestyle #endometriosisblog #chronicillness
Kaylee💋

Kaylee💋

2 likes

Laparoscopic excision of endometriosis vlog
#endometriosissurgery #endosurgery #laparoscopysurgery #endometrosis #vlog
Amanda 💋

Amanda 💋

21 likes

Endometriosis recovery tips🎀🩺
My Story: since I was 18 years old I’ve been experiencing painful cramps on my stomach, back, and thighs. I would get heavy periods, bloating and constantly be fatigued. It would affect my life, by stopping me from doing activities, working at a job, etc. Until I learned about endometriosis. Went t
Kim M

Kim M

10 likes

Symptoms of endometriosis
What were your symptoms? What are some of your management tips? Endometriosis is such a struggle, but I am thankful I finally have an answer for all these symptoms. I no longer feel guilty for taking a day to myself or feel lazy for laying in bed all day or couch rotting. I think of it as a f
Caroline 📚🪴

Caroline 📚🪴

84 likes

Living with pcos and endometriosis
The daily struggle of living with pcos and endometriosis. Nobody tells you how hard it is to not only have both of these but go through surgery and alter your life. Nobody tells you how these affect your mood swings, it controls how happy sad and mad you are. Just when you want to change work out a
Trouble

Trouble

132 likes

stage 4 endo and prep for IVF
the 7 things I’m doing to best prep my body to begin IVF 1. 8 hours of sleep a night 2. A slow morning routine 3. Electrolytes or bone brother first thing in the morning 4. Anti inflammatory diet 5. Low intensity exercise to start the day with a step goal of 12-15,000/day 6. Become educated
Ashley | CPT & DPT 💗

Ashley | CPT & DPT 💗

1 like

Endometriosis surgery!
#endometriosislifestyle #endometrosis #endostrong #laparoscopysurgery #chronicpain
val0295val

val0295val

8 likes

5 Ways That Make Endometriosis Diagnosis Faster
#endometriosis #endometriosislifestyle #chronicillness #chronicillnessjourney #WomenHealth
endolog_app

endolog_app

9 likes

A woman with curly hair and glasses takes a mirror selfie, wearing a dark tank top and pants. The image has a text overlay: "💛🎗️ Stage 4 Endo Updates 🎗️💛 (swipe left ←)" and a Lemon8 watermark.
A text-based image titled "💛🎗️ Endo Journey Updates 🎗️💛" listing bullet points about recovery, gut health, managing flare-ups, colon healing, a 12cm mass, sleep, medication, and an intolerance to apples/apple juice.
A text-based image continuing the "Endo Journey Updates" with bullet points about an upcoming surgery, healed incisions, manageable menstrual cycles, and the process of learning to live life again as an "endowarrior."
💛🎗️Stage 4 Endo Updates 🎗️💛
Still recovering and by the grace of God, I’m still here and working my way to a life where I can manage this incurable disease. But I’m truly grateful to have a team of doctors that listens to not only me but other women facing this debilitating disease and dynamic disability. I’m still on the
noelleon

noelleon

11 likes

Adenomyosis & endometriosis awareness
As of today, I have been diagnosed with adenomyosis. Since adenomyosis & endometriosis go hand in hand, basically sister diseases, I 9 times out of 10 have endometriosis. Today I chose to opt into having surgery to see if I have endometriosis & to have everything removed if they do find symptoms of
Kaitlin 🤍✨🫧 | GQ🎙️| TTS 🛍️

Kaitlin 🤍✨🫧 | GQ🎙️| TTS 🛍️

1 like

Endometriosis
It takes on average 7-10 years for a woman to get diagnosed with endometriosis. Even then there's no real cures, it can be such a defeating disease. We don't have any other choice but to keep going, for ourselves, our families, our careers. Endometriosis has won many battles but ultimately
Courtney Quinlan

Courtney Quinlan

469 likes

A woman with blonde hair and bangs smiles at the camera, with text overlay "Living with Endometriosis WHAT YOU SEE" and an arrow. This image represents the outward appearance of someone living with the condition.
Living with Endometriosis
Random Thoughts 💭What's on my mind: I never thought I’d live my life with a condition. Current Mood: in my feels #endometriosis #endometriosisawareness #endometriosissurgery #endometriosisproblems #embracevulnerability
MandaLynn

MandaLynn

12 likes

endometriosis surgery
hey y’all!! a lot has happened since my last post. most notably me getting surgery for suspected endometriosis. which was confirmed during surgery as stage 1. i feel silly that it wasn’t a later stage, but the pain i feel is enough to impact my daily life. i’m so grateful to have gotten this su
🌜alyssa🌛

🌜alyssa🌛

42 likes

March: Endometriosis Awareness Month
#endometriosisawareness #endometriosis #march #endowarrior
𝙲𝚑𝚎𝚕𝚜𝚎𝚢◡̈

𝙲𝚑𝚎𝚕𝚜𝚎𝚢◡̈

44 likes

Endometriosis awareness
#HealthTips you need for endometriosis. The vitamins are linked in my tiktok, I cannot live without them. They help me more than just regular old Tylenol or ibuprofen so I appreciate them a lot. The foods you eat also play a huge impact on your levels of pain! #endometriosis #endomet
Shay

Shay

87 likes

Vitamins That Help My Endometriosis
These have helped me manage my endo naturally. CTA: Save this for your next wellness run 🛒 💊 Vitamin D •Regulates immune system, reduces inflammation, may help lessen pelvic pain •2,000–5,000 IU daily (check bloodwork) •Pair with healthy fats (like avocado or flaxseed oil) f
Dom

Dom

373 likes

Endometriosis awareness month
#endometriosissurgery #endometriosis #endometriosisawarenessmonth #adenomyosisawareness
Marielennnnn

Marielennnnn

43 likes

Endometriosis won't win
Endometriosis has tested me this year, but movement is still my medicine. 🖤 • #endometriosis #endowarrior #fitnessjourney #wellnessjourney #movementasmedicine
Michelle Doucet

Michelle Doucet

3 likes

Things I do to help my endometriosis
Living with this is so hard because it can & will affect my daily life. The only “cure” is to get the lesions removed, but they can come back. Here’s some helpful tips that don’t make everything go away but help make daily living a little easier🤍 #endometriosis #lifestyle #tea #cleaneat
Abby Loew

Abby Loew

63 likes

The image shows two supplement bottles: Geritol Liquid Dietary Supplement for energy support with B vitamins and iron, and Nature Made D3 Maximum Strength 10,000 IU for Vitamin D deficiency. A measuring cup is on the Geritol bottle. The text 'PCOS & Endometriosis' is overlaid on the image.
PCOS & Endometriosis
I have seen a lot of post with people taking multiple vitamin supplements at once for PCOS and Endometriosis. Before taking any supplements get your labs checked and consult with a physician. You do not want to experience toxicity from taking too many supplements at once. Only take what your body n
Muahkisses_xo

Muahkisses_xo

174 likes

A patient in a hospital bed, giving a thumbs-up after endometriosis excision surgery, with text overlays "Endometriosis Excision," "Healing," and "Pain," reflecting her post-operative state.
Endometriosis Excision Surgery
I had my first endometriosis excision surgery nearly a week ago!! This is my 4th surgery for endometriosis but the 1st I’ve had that was for excision. What does this mean? It means that this time, my new surgeon actually CUT OUT the endometriosis instead of just burning the tops off (ablation). The
hailey b

hailey b

9 likes

management of endometriosis 💛
Endometriosis is different for everyone. This doesn’t even begin to scratch the surface of pain management or even medications. This is more what I do for day-to-day routine to manage pain and symptoms as much as possible. 💛 #endometriosis #inflammation #periodpain #digestion #digesti
Sav, MSc, BSc

Sav, MSc, BSc

54 likes

1 in 10 women and girls have endometriosis!
Endometriosis is a chronic disease with no cure where tissue misplaces itself in the body. This can cause a variety of symptoms such as painful periods, heavy periods, pain outside of periods, infertility, gastrointestinal issues, nausea/vomiting, bloating, chronic fatigue, urinary issues, pain wit
chronicallygirl

chronicallygirl

2 likes

Endometriosis 💪🏽
#endometriosis Journey ! #endometriosislifestyle #Lemon8Diary #pcos #pcoslifestyle
Itss.taaylorr💛

Itss.taaylorr💛

200 likes

What’s life like with Endometriosis and PCOS?🎗️🩸
Pls let me know if you have any questions or just wanna talk! I love hearing about your journeys! Thank you for all your love and support #pcos #pcoshelp #endometriosisawareness #endometriosis #pcosgirl #endometriosissurgery #Lemon8Diary #pcoslife #weightlostjourney #pcosproblems
Nikki Brown🤍🎗️

Nikki Brown🤍🎗️

63 likes

Post endometriosis surgery ❤️‍🩹
#AskLemon8 #endometriosislifestyle #endometriosissymptoms #endo #endometrosis
killitwithkenz

killitwithkenz

1 like

Whitehouse mentioned endometriosis
Dr Seckin met with trump and Dr Oz about Endo sisters! This is major news! 💛🎗️💛 #endometriosislifestyle #endosisters #endometrosis #endo #womens
Mystical Being Jellybeans570🎗

Mystical Being Jellybeans570🎗

0 likes

A person wearing sunglasses and a headband makes a peace sign, sticking out their tongue. Overlay text reads: "How I'm Getting Control of My PCOS + ENDOMETRIOSIS Summer Swipe."
A hand holds a clear shaker bottle with "s'moo" written on it, containing a white liquid. Overlay text lists benefits like hormone balance, weight management, and improved energy.
Two pink jars, "s'moo BEAUTY BABE" and "s'moo BALANCED BABE," are shown next to a large black Stanley cup. Text describes incorporating these into a morning routine.
🍋 Endometriosis & PCOS Supplement Support Journey
#letschat 👉 Yes, I have Endometriosis and PCOS - and it sucks. My journey to the hospital began because I had a massive swollen lymph node in my groin and we didn’t know why. I was also having massive pain from it and in my hip than went all the way down my leg…after some not so pleasant exam
Jordie_starbaby

Jordie_starbaby

11 likes

What NOT to say to someone with Endometriosis!
Yes, these are things that have been said to me repeatedly 🥴 I feel like these slides ring true for most chronic illnesses unfortunately! Because other people can’t see the illness it’s easy for them to downplay it. But it is real. It’s real and it sucks. You’re not alone! ❤️ #endometriosis #
Kat Jackson🌿

Kat Jackson🌿

34 likes

Endometriosis Awareness 💛
💛 March is Endometriosis Awareness Month! Too many women suffer in silence— and their pain deserves to be heard. Let’s spread awareness, support, and educate others about this chronic condition. 💛 #endometriosis #endogirly #endometriosislifestyle #chronicillness #Lemon8Diary
Itss.taaylorr💛

Itss.taaylorr💛

29 likes

See more