As Casper turns 4, we chose to celebrate a little differently this year. After a year of battling MUO and going through three relapses, we realised the best celebrations aren’t always the biggest ones. Sometimes, they’re simply about slowing down, spending quality time together, and creating mem

One thing this experience taught me is that monitoring Casper’s eyes is just as important as monitoring his MUO. We often focus on the obvious signs such as knuckling, circling, wobbliness, and loss of balance. But neurological conditions can affect so much more, including vision. Yesterday,

𝓗𝓮𝓪𝓵𝓲𝓷𝓰 𝓴𝓮𝓹𝓽 𝓱𝓲𝓶 𝓱𝓮𝓻𝓮 𝔀𝓲𝓽𝓱 𝓶𝓮… 𝓮𝓿𝓮𝓷 𝓲𝓯 𝓲𝓽 𝓬𝓱𝓪𝓷𝓰𝓮𝓭 𝓹𝓪𝓻𝓽𝓼 𝓸𝓯 𝓱𝓲𝓶 𝓪𝓵𝓸𝓷𝓰 𝓽𝓱𝓮 𝔀𝓪𝔂. Long term steroids and immunosuppressants saved his life, but they also brought side effects we never expected. Living with MUO is more than hospital visits and medications — it’s learning to love and care for him