One of the strangest parts of lupus is how differently it can show up. People hear “lupus symptoms” and usually think: fatigue, joint pain, butterfly rash. But sometimes it’s jaw pain. Mouth sores. Teeth hurting. Random swelling. Skin issues. Exhaustion that feels impossible to explain.

One of the quietest struggles of living with lupus is the fear of becoming a burden. Not because we want to feel that way… but because we understand how much chronic illness can affect everyday life. The unpredictability. The support we sometimes need. The canceled plans. The hard days.

People sometimes ask: “Does posting about lupus actually help?” Yes. It does. Awareness leads to: 💜 More advocacy 💜 More research funding 💜 Earlier diagnosis 💜 Better treatments 💜 More compassion and understanding A recent example: Following Lupus Research Advocacy Day, Congress ado

Someone recently told me: “You have overcome every obstacle you’ve encountered.” And honestly… that shifted something in me. Because living with lupus can make the future feel overwhelming sometimes. Especially during flares. Especially during the hard seasons. But when I look back, I

Living with lupus is hard. I would never romanticize chronic illness. I would never tell someone “everything happens for a reason.” But I can say this: Lupus changed me. It taught me gratitude. It taught me boundaries. It taught me how to slow down and pay attention to my body. It d

People see the physical side of lupus. The pain. The fatigue. The symptoms. But they don’t always see the invisible exhaustion that comes with managing a chronic illness every single day. The planning. The explaining. The monitoring. The mental load. Sometimes that part is just as

A good doctor changes everything when you have lupus. Not because they fix everything overnight… but because they finally make you feel heard. 💜 What’s a green flag you look for in a doctor? #lupuswarrior #lupusawareness #lupusawarenessmonth

At least for now I’ll take it 💛🩶 #lupuswarrior #glowup #movingon

Remember the ALS Ice Bucket Challenge and how it brought massive awareness to ALS? 💜 Well this is the Pass the Spoon Challenge for Lupus Awareness Month. People living with chronic illness often use something called “spoon theory” to describe energy levels and the invisible exhaustion that co

If you have a Lupus Empowerment conference in your area I HIGHLY recommend you go! I went alone and had the best time 😌 you get to meet other warriors, speakers, doctors, and supporters. The information you learn is great and inspired me to get more involved in my area! If you attended this too, wh

Healing with lupus doesn’t mean going back to who you were before. It means becoming someone new. And sometimes that means grieving… while also growing. If you’re in that space right now, trying to figure out who you are through all of this — you’re not alone. 💜 You’re still becoming s

Healing with lupus doesn’t mean going back to who you were before. It means becoming someone new. Someone who has had to slow down. Someone who has had to listen to their body in ways they never had to before. Someone who has had to let go of certain expectations… and rebuild new ones. A

Living with lupus forces you to see people differently. Who respects your boundaries. Who supports you. Who makes things harder… instead of easier. And the truth is— not everyone is meant to walk through this part of your life with you. That doesn’t make you cold. That doesn’t make you

There was a time in my life when I felt completely alone in this disease. Like no one truly understood the exhaustion, the fear, the grief, or the strength it takes to keep showing up every day while battling something invisible. And somehow… through sharing pieces of my journey online, stranger

There’s always a moment where things shift. When you stop brushing it off. When you realize this isn’t normal. This was mine. What was yours? #lupuswarrior #lupusawareness #lupusawarenessmonth

IYKYK. #lupuswarrior #lupusawareness

Okay the last two aren’t necessary but CAN happen 😅 I had reasons behind all of these.. prednisone is not my friend, and only helps with inflammation. Sometimes, it’s the only thing to get me out of a flare, and I cannot WAIT to come off it again. #prednisone #lupuswarrior #lupusawareness

Replying to @soulless ♱ talking nutrition, Plaquenil and other meds!! I just need to go live because there’s sooooo much to talk about here 😅 what else do ya got?! Let’s chat! #lupuswarrior #lupusawareness

Remember when I said we need a “lupus flare radar”? well this is the closest I’ve found. I still can’t quite tell if this is a lupus flare, a cold, or simply because I’m well overdue for my Saphnelo infusion. But I know something is up! And that means listening to my body with light movement, ample