‘Where did I get all these bruises?’ It’s such a mystery. 🤪 It’s always so hard trying to be ‘normal’ and not run into things or hit myself on things. 😫 And don’t worry. I didn’t ever really hit my head 🥰 it was just my hands hitting and making a sound. I’m just ✨acting✨. Not trying to give myself a TBI on purpose over here. 😅
That feeling of looking down and wondering, ‘Where did all these bruises come from?’ is so incredibly relatable for anyone living with Hypermobile Ehlers Danlos Syndrome (hEDS) and poor proprioception. It’s not just clumsiness; it’s a genuine struggle with our body’s internal GPS, leaving us feeling like we're constantly battling our own limbs and the world around us. For those unfamiliar, proprioception is our body’s sixth sense – it’s how we know where our body parts are in space without looking. For us with hEDS, our hypermobile joints often mean our proprioceptors, the tiny sensors in our muscles and joints, aren’t sending clear signals to our brain. This leads to what feels like a constant lack of spatial awareness. It’s why we might misjudge distances, trip over flat surfaces, or hit our elbows on doorframes we swear weren't there a second ago! I remember one time trying to carry a tray of drinks across a room. In my mind, I was walking perfectly straight, but suddenly, I veered off course and nearly crashed into a wall. It’s these moments that really highlight the everyday challenges. Even simple tasks like reaching for a glass, stepping up a curb, or trying to walk in a straight line with my eyes closed can feel like a high-wire act. We might have an 'Ehlers Danlos syndrome body type' that looks flexible and graceful, but internally, our bodies are often working overtime just to maintain basic balance and coordination. The struggle with impaired proprioception means our muscles are constantly trying to compensate, leading to fatigue and sometimes even more joint pain. So, how do we navigate this 'bruise mystery' and constant battle with spatial awareness? Over time, I’ve found a few things that help. Firstly, conscious effort. Sometimes, I have to literally look at my feet when walking or consciously guide my hands when reaching for something, which can feel un-natural but helps in avoiding bumps. Physical therapy focused on proprioceptive exercises, like balance boards or single-leg stands, has been a game-changer for improving my body awareness. It’s like retraining my brain to better understand where my limbs are. Creating a 'safe zone' at home helps too – minimizing clutter and ensuring clear pathways. And sometimes, it’s about embracing the humor, just like the original post! We can't always prevent the bumps and bruises, but we can definitely laugh at our own unique brand of clumsiness. Things like fidget toys (even a simple 'Needoh' ball can sometimes help ground me) or wearing compression garments can provide sensory input that improves body awareness. It's about finding what works for you to help your brain get those clearer signals about your body's position. It’s a daily challenge, but knowing we're not alone in these struggles makes a huge difference. If you're constantly finding mysterious bruises and blaming it on your own 'clumsiness,' remember it might just be your amazing Ehlers Danlos body trying its best with a bit of impaired proprioception. Let's keep sharing our tips and laughing at the absurdity of it all!
































OMG!!! So funny, it was like watching a movie of my life. I have hEDS.