In honor of Ehlers Danlos Syndrome and Hypermobility Spectrum Disorder Awareness Month. Just stimulating my vagus nerve by swallowing peanut butter to stop my hiccups… it’s the only thing that stops my hiccups. ❤️‍🩹

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So, it turns out I may have caused a CSF leak when I fell down the stairs in March… and that could be why I’ve been in so much pain. 🤪😭

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Was it from falling down the stairs? Is it from this new birth control? Or is this just how I feel now? I’m at that point when my headaches and migraines have been worse for so long now, I’m starting to wonder if this is really just a flare up. But, I really hope it is… ❤️‍🩹

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Did I slip a rib? Is it inflammation of where my ribs meet my sternum? Is my POTS flaring? Or is this something else? 😭💔

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The results are in, and it turns out that I have a collection of fluid on my right cheek after falling down the stairs. 😭 has this happened to anyone else before? ❤️‍🩹

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It’s ok to use mobility aids. ❤️‍🩹

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Even as someone who creates content about my chronic illness, I don’t show everything. I only show what I want to. Keep in mind that people are only sharing what they want to. That doesn’t mean they’re not chronically ill. ❤️‍🩹

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Who can relate? 😭

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My doctor growing up: ‘Everyone gets sick to their stomach in the morning. That’s totally normal!’ 🤪 lol no. It’s actually not. Thanks though.

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I did it. 😭 im so glad that’s over. That sucked.

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🤪 I miss making these. It’s been a while.

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Hypermobile Ehlers Danlos Syndrome isn’t just some trendy condition that makes you bendy. Everyone is different, of course, but, the truth is this condition can be debilitating, disabling, and life altering. ❤️‍🩹

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The air hunger is the worst. 😭 I just get so out of breath thanks to POTS. I hate it. 💔

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Who can relate? 😭

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My IV fluids help a lot too, but that wasn’t necessarily a procedure… getting my central lines have been, but I never had an ‘IV fluids procedure’. I’m so grateful for all of my treatments, procedures, therapies, meds, etc, because the truth is that every little bit helps, imo. I’ll take whatever I

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And now that I think about it, my SVT episodes make me cough a lot, and the coughing does not stop the SVT… so, I don’t think coughing is an option for me. I love how I’m thinking about this now and not when I was talking to my doctor. 🤪 my memory blows when I’m in appointments, I swear. Anyways, I

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These are actual interactions Tyler and I had this week. 🤪 just a typical week, ifykyk.

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Who else has experienced this? I didn’t know this was a thing.

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I guess it depends on who I’m talking to, but some people just really don’t want to hear the honest truth, I feel. 😭

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I only add a little bit of garlic powder, hot sauce, turmeric, and sea salt for some flavor. 🥰 I can’t drink plain bone broth. 😅

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Allison Tennyson