I’m seeing a GI psychologist on Friday, because for some reason the deep belly breathing that I’ve been doing for the past decades doesn’t count, so I need to relearn it from a GI psych. 🤪 and that’s supposed to stop my chronic nausea and vomiting, even though it has never helped before… deep belly breathing is literally my favorite way to stimulate my parasympathetic nervous division, and I already do it all the time… I mostly agree with my Cyclic Vomiting Syndrome diagnosis, but I feel like there’s more going on… why are GI doctors like this? This is my longest standing complaint that has never been relieved. My motility specialist is the only one really trying to help me, but I don’t have any real answers yet. And at 36 years old, I think that is WILD. 😭

2025/10/22 Edited to

... Read moreLiving with cyclic vomiting syndrome (CVS) and chronic nausea can be incredibly challenging, especially when treatments don’t seem to bring relief. As someone who has practiced deep belly breathing for decades—a technique known to stimulate the parasympathetic nervous system and promote relaxation—it's frustrating when healthcare providers suggest starting over with new approaches. This feeling of not being understood is common among patients with complex GI disorders, where cause and effective treatments can be elusive. GI psychologists are increasingly involved in treating functional gastrointestinal disorders like CVS, offering techniques that blend psychological and physiological approaches. These can include mindfulness, cognitive-behavioral therapy (CBT), and retraining breathing patterns to help manage symptoms and reduce episodes of nausea and vomiting. However, the effectiveness of these therapies varies per individual. Sometimes, what has not helped before might provide new benefit when adapted under specialized care. Finding a motivated motility specialist who is willing to explore underlying causes is crucial. Gastroparesis or delayed gastric emptying often accompany CVS and can complicate symptom management. Certain medications, like mirtazapine and compazine, sometimes aid symptom control but may not fully resolve them, highlighting the need for comprehensive care. Patients often face long waits and repeated consultations without definitive solutions, contributing to emotional distress—and in some cases, emetophobia (fear of vomiting), which can magnify the psychological burden. Engaging openly with your healthcare team about both physical symptoms and emotional impacts helps create a tailored treatment plan. It’s essential to advocate for yourself and keep seeking answers, even if it takes years. New research and multidisciplinary approaches are improving care for those with CVS and chronic nausea. Exploring lifestyle adjustments, stress management, and possible nutritional therapies alongside medical treatment can enhance quality of life. Remember, while GI doctors may sometimes seem dismissive, finding the right providers who listen and collaborate with you can change the course of managing chronic stomach issues. Patience and persistence are key, and connecting with support communities can offer shared experiences and coping strategies to help navigate this journey.

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