And I know there’s privilege in this take. I am privileged to have friends and to have the ability to flare myself up. It’s not always a choice for all of us. Chronic illness and chronic pain is not a monolith. It’s not a one size fits all. Not every take is going to fit every person. And that’s ok. Bean soup. ❤️‍🩹

2025/11/1 Edited to

... Read moreLiving with chronic illness and chronic pain often means navigating a complex and deeply personal journey. It’s important to recognize that these conditions are not uniform experiences—what works or feels right for one person may not be the same for another. For many, the idea of 'flaring up'—a temporary worsening of symptoms—is a difficult but sometimes consciously accepted aspect of seeking joy or connection. Engaging in social activities or pursuing passions can occasionally lead to overexertion and subsequent flare-ups, but for some, the emotional and psychological benefits outweigh the temporary physical discomfort. This mindset reflects a desire to reclaim moments of happiness and normalcy amidst ongoing challenges. Rather than being a choice available to all, it is a privilege tied to personal circumstances, support systems, and individual health limitations. Understanding this balance is crucial in fostering empathy for those living with chronic conditions. Chronic illness is not a 'one size fits all' experience; it encompasses a spectrum of symptoms, severity levels, and coping strategies. Some may prioritize managing symptoms to avoid flares, while others may accept short-term setbacks to achieve meaningful social or personal experiences. Importantly, communities and discussions around chronic illness are beginning to acknowledge this diversity. Sharing authentic stories about joy, pain, privilege, and limitations helps dismantle misconceptions and encourages supportive environments. It’s also vital to recognize self-care as a dynamic practice—sometimes pushing boundaries to experience joy and other times prioritizing rest and healing. In summary, living with chronic illness involves navigating complex decisions about balancing physical health and emotional well-being. Recognizing the privilege in having certain choices, while respecting the varied experiences of others, can deepen understanding and compassion within ourselves and among our communities.

1 comment

Jennifer T's images
Jennifer T

Yes. I do this on vacation trips. I try to plan rest days one day before travel and one day once we arrive. Although it’s not always possible. I will push through a lot to get to experience everything I want. I took my 14&15 year old boys on a cruise to the Bahamas, which worked out great. I could be in bed ordering room service for a late night dinner and be asleep by 9pm. And I told them they could go explore the ship and that I didn’t have a curfew for them but the night crew comes out at 2am to start cleaning so most people take that sign to go to bed. I felt really safe with that on days the boat was cruising. They had their own room next door to mine so they could come and go without bothering me.

Related posts

I just wanna know what’s in there
Nickwilkins

Nickwilkins

19.8K likes

A laptop screen displays the Canva website with the text overlay "canva codes that you NEED to know part seven," against a background collage of various images.
A laptop screen shows Canva's elements search for "set:nAFayY4eV08," displaying black and white line art of school and office supplies like books, a laptop, and a graduation cap.
A laptop screen shows Canva's elements search for "set:nAFNeIZY1Nl," displaying colorful illustrations of school and office items such as paper clips, markers, folders, and an apple.
canva codes you need to know pt. seven ⭐️
this set of canva codes that you’ve gotta know are all school and learning themed! i thought this was really helpful to share because there are a lot of digital products that these could be just PERFECT for! let me know if you guys like these posts and if you’re actually using these elements :)
ayersellie

ayersellie

167 likes

A pair of hands forms a heart shape around a pink carnation, with text overlay 'IT'S TIME FOR YOUR FIRST PAP SMEAR *21 and older', indicating the age requirement for the procedure.
An orange and yellow alstroemeria flower lies on a dark grey surface. Text explains that vaginal lubrication from the speculum may cause dripping after a Pap smear, potentially feeling uncomfortable.
A purple flower rests on a dark grey surface. Text advises patients to advocate for themselves during a Pap smear appointment, emphasizing personal health responsibility and confidence.
What to know for your 1st Pap smear or OB/GYN appt
You Should NOT Get a Pap Smear Unless You Are 21+ There’s nothing comfortable about taking your bottoms off and exposing your private areas for a medical examination. However, being prepared and knowing what to expect can make the experience a little better. When you arrive for your appointme
Jau 🤎

Jau 🤎

449 likes

Goodnotes for beginners: Essential Tools to Know ✨
Hey there, new to GoodNotes 6 on your iPad? Here are 3 awesome features to make your note-taking a breeze: 1️⃣ Effortless Organization - Keep things neat with custom folders—color code them for extra flair! - Icons help you find what you need at a glance—no more hunting through endless notes
Ivyhoneyhive

Ivyhoneyhive

1325 likes

perfume tips EVERYONE should know✨
before i was huge into perfumes and mists, i didn’t know there were different TYPES of perfumes! knowing the different types can help you out with layering scents and figuring out why some perfumes won’t last long as compared to others! be sure to save this for when you need it! (: 🤍 pa
m a l e n a

m a l e n a

2664 likes

An overhead flat lay of various skincare products, a pink checkered pouch, and jewelry, with the text "Your Daily SKINCARE Guide tips for a routine" overlayed.
A hand demonstrating recommended product amounts for a skincare routine, including cleanser, serum, moisturizer, toner, eye cream, and sunscreen, with specific measurements like "grape-sized" or "2-3 drops."
A list detailing a "Morning Skincare Routine" with steps such as cleanser, toner, serum, eye cream, moisturizer, facial oil, sunscreen, and makeup, set against a background of various skincare products.
{Skincare 101} a MUST know‼️🧴
Something I learned a long time ago —> ⭐️ rule of thumb : the most important thing to remember is to layer your skincare from thinnest to thickest consistency. just like cooking or creating a masterpiece, there’s steps needed in order to achieve what you desire. Skincare is just like that.
Sally⚡️

Sally⚡️

3126 likes

A dark image shows the silhouettes of a man and a woman walking away, with the text "When You Date A Real Man" overlaid. A Lemon8 logo is in the bottom left.
White background with black text stating, "when you date a real man you'll get: 'i planned this for us'". A faint Lemon8 logo is at the bottom.
White background with black text stating, "when you date a real man you'll get 'be ready ready, i'm picking you up'". A faint Lemon8 logo is at the bottom.
Date A Real Man By These Signs You’ll Know🍸
Ladies, real Men do exist. I’m tired of other girls (keyword girls) trying to say they’re isn’t any “real men” out here in the world. HELLOOO!!!?? Whoever you attract and go for, is what you are going to get! Be strong and open-minded. Now I may have come out to strong but it needs to go through yo
Angelina

Angelina

1497 likes

A woman smiles with her eyes closed, taking a selfie in a room filled with bookshelves. Text overlay reads "books with the TOUCH HER AND YOU DIE trope." A ladder is visible on the left.
A hand holds the book "From Blood and Ash" by Jennifer L. Armentrout against a background of bookshelves. Text describes the bodyguard trope and character "Hawk Flynn."
A hand holds the book "Serpent & Dove" by Shelby Mahurin against a background of bookshelves. Text praises the character Reid and the book's chemistry.
one of the best tropes out there 🥵
I can never get enough of the touch her and you die trope! Here are some of the books I’ve read that kill it (pun intended). I know these are super popular recommendations, but I’m hoping the lemon8 bookish besties will come through and give me some more to add to this list!! 👀 swipe to lear
hannah 📖

hannah 📖

569 likes

canva codes you need to know pt. five ⭐️
here’s some more awesome canva codes that i’ve found recently! these ones are really great to use as background element or you could change up the opacity to make them the ENTIRE background of your designs! i love how versatile the elements are on canva and how many unique ones there are to find :)
ayersellie

ayersellie

1246 likes

Two smiling women sit on steps in an outdoor amphitheater with a large red rock formation in the background. Overlay text reads "60 QUESTIONS TO ASK YOUR FRIENDS GET TO KNOW YOUR FRIENDS BETTER!". The Lemon8 logo and username are at the bottom left.
A list of 20 "LEVEL 1: JUST GETTING TO KNOW EACH OTHER" questions is displayed over a blurred background of an outdoor amphitheater. Questions include topics like work, hobbies, music, and food. The Lemon8 logo and username are at the bottom left.
A list of 20 "LEVEL 2: GOING A BIT DEEPER & MORE PERSONAL" questions is displayed over a blurred background of an outdoor amphitheater. Questions cover family, childhood, goals, and fears. The Lemon8 logo and username are at the bottom left.
questions to get to know your friends better🦋🦋
After graduating, it's been SO much harder to make new friends! I think a huge part of it is that there's not a lot of common ground anymore (ie. going to the same college) unless you work at the same company! I've been meeting a lot of new people online and via bumble and I've real
Sarah Jolie 🌸

Sarah Jolie 🌸

715 likes

The image features the title "13 functional apps for the neuro-spicy" in green and white text, outlined in blue, against a background of green foliage, yellow flowers, and a stream. A flaming chili pepper icon is in the bottom right corner.
This image describes Goblin Tools, a productivity app for neurodivergent individuals. It details seven features: Magic To-Do for task breakdown, Formalizer for tone adjustment, Judge for tone analysis, Professor for simplified explanations, Estimator for task duration, Compiler for organizing thoughts, and Chef for meal planning.
The image presents two apps: NaturalReader and Tiny Decisions. NaturalReader is a text-to-speech program supporting various document types with natural voices. Tiny Decisions helps with decision paralysis using a spinning wheel, coin flip, and random number generator.
Helpful apps for all the neuro-spicy out there! ✨
Here are 13 great, functional apps that were designed to help the neurospicy: 🌶️ Goblin Tools 🌶️ NaturalReader 🌶️ Tiny Decisions 🌶️ Fabriq 🌶️ Finch 🌶️ Molehill Mountain 🌶️ Sweepy 🌶️ Antistress 🌶️ Visual Timer 🌶️ Habitica 🌶️ Emergency Chat 🌶️ Notion 🌶️ Notes Here’s an explanation o
Kristina

Kristina

1457 likes

A large pile of baby clothes with the title text 'Laundry Hacks every mom needs to know' overlaid, indicating the article's topic.
A baby is visible in the background, while text boxes provide 'STAIN FIGHTING 101' tips for 'Poop Stains (Blowouts)' and 'Milk/Formula Stains' using cold water, dish soap, hydrogen peroxide, OxiClean, and warm water.
A striped fabric is in the background, with text boxes detailing 'STAIN FIGHTING 101' methods for 'Berry Stains' with boiling water, 'Grease Stains' with chalk/cornstarch, and 'Marker/Crayon' stains by freezing and using WD-40.
✨Laundry Hacks & Guide Every Mom Needs to Know🧺
Laundry with babies and toddlers can feel never-ending—especially with all the stains! Here’s how to make it easier and actually get those stains out! 🔥 Stain Fighting 101 - 💩 Poop Stains (Blowouts) – Rinse with cold water, rub with blue Dawn dish soap + hydrogen peroxide (1:1 mix), let it si
Modern Mom | Shannon

Modern Mom | Shannon

5001 likes

A hand holds an iPhone displaying the home screen, with text "COOLEST IOS 18 FEATURES YOU DON'T KNOW ABOUT" and "SWIPE" over a cozy gaming setup. The image introduces new iOS 18 functionalities.
This image highlights the first five iOS 18 features: flashlight changes, more battery saving options, power button in control panel, notes attachment revamp, and haptic boosts to Apple Music, each with a relevant icon.
This image presents iOS 18 features 6-10: search in call history, unit conversion in calculator, WiFi address rotation, sound actions, and time beyond battery death, each accompanied by an illustrative icon.
IOS 18 Features You Need To Know About!
1. Flashlight. Users can toggle the flashlights power and select four different brightness levels. You can also control the beam width 2. Battery saving options; users can choose charging limits. Which is supposedly really good for your battery health 3. Power button in control panel. You dot hav
CozyGamerVal

CozyGamerVal

1272 likes

An iPad displaying the Procreate gallery with various digital artworks, overlaid with text "Procreate tools to master" and "Tools you need to know when using Procreate for digital art!".
An iPad screen showing a Procreate canvas with sunflower and butterfly art, demonstrating the Lasso Tool selecting a butterfly, with a text box explaining its function for selections and movement.
An iPad screen displaying a Procreate canvas with sunflower and butterfly art, showing the Layers panel with multiple layers, accompanied by a text box explaining how to use layers for artwork organization.
The Procreate tools you need to know👨‍🎨
1. Lasso Very important for selecting and moving your images around. Tap the tool icon and draw around the image to create custom shapes for selections Or move it around. You can also edit only that part you have selected. You can also use any adjustments to highlight or change the colors of t
Ivyhoneyhive

Ivyhoneyhive

1494 likes

See more