I'm an Ambularory Wheelchair User...

Living with invisible illnesses like EDS (Ehlers-Danlos Syndrome) and dysautonomia often means facing challenges that are not immediately visible to others, which can lead to misunderstandings about the severity of symptoms. As an ambulatory wheelchair user, choosing when to use a wheelchair is a form of active symptom management and pacing to prevent flares and injury. In my personal experience, using a wheelchair on days when symptoms worsen or particular tasks become overwhelming helps reduce the risk of subluxations—partial dislocations that happen frequently with EDS—and manage chronic pain and fatigue effectively. It's important to acknowledge that invisible illnesses can cause significant physical limitations without outward signs, which often leads to unfair judgments from others who may perceive wheelchair use as laziness or attention seeking. However, adapting one's mobility with an ambulatory wheelchair is a strength and a proactive step towards maintaining independence and quality of life. Inactivity due to symptom flare-ups can be frustrating, but pacing — the deliberate balance of activity and rest — is crucial. It prevents overexertion and minimizes symptom exacerbation. Incorporating assistive mobility devices like wheelchairs during difficult days not only conserves energy but also enables engagement in daily tasks that would otherwise be too challenging or unsafe. Sharing this journey helps increase awareness about the realities of invisible illnesses and the importance of accessible options. For those newly facing similar conditions, remember that using a wheelchair intermittently is a valid and adaptive approach to maintaining autonomy. Seeking communities and resources around #ambulatorywheelchairuser, #EDS, #dysautonomia, and #invisibleillness can offer invaluable support and practical advice from individuals who truly understand the experience.