May-Thurner Syndrome

Tomorrow is my appointment with my vascular specialist. November 28, 2017 I was diagnosed with May-Thurner Syndrome and had a stent inserted in my iliac vein. My vein was 78% blocked and I only had 22% blood flow getting to my heart. Since then I have also been diagnosed with high blood pressure, I have degenerative arthritis in my lumbar spine, and my right arm has been swollen I have days where I’m unable to move it for an unknown cause. I’ve had 2 EMG’s and an MRI done on my right shoulder. I go in for another MRI Friday. If nothing is found I’m being sent to a shoulder surgeon to see if he can find out what’s going on. My vascular specialist told me if my health issues get worse I may be out of work permanently, because I’m medically unable to do factory work anymore. So, this appointment tomorrow should be interesting. Wish me luck!! Let’s see what doc has to say.

2024/4/10 Edited to

... Read moreIf you're living with May-Thurner Syndrome, chances are you've experienced the frustrating reality of how it impacts your legs. For me, understanding why my symptoms manifest the way they do has been a crucial part of my health journey. When the left iliac vein gets compressed by the right iliac artery – as it does in MTS – it significantly impedes blood flow from your lower extremities back to your heart. This isn't just theoretical; it shows up in very real, often uncomfortable, ways in the legs. One of the most common complaints is persistent leg swelling or edema. This often occurs in just one leg, typically the left, and can range from a subtle puffiness to a noticeable increase in size. Imagine feeling like your skin is stretched taut – that's a familiar feeling for many of us with MTS. This swelling is a direct result of reduced venous outflow, causing fluid to build up in the tissues. Beyond swelling, pain, aching, and a heavy sensation in the affected leg are frequently reported. It’s not just superficial discomfort; it can be a deep, throbbing ache that worsens with prolonged standing or sitting. You might also notice skin changes, such as discoloration or the development of prominent varicose veins. These are all signs that the venous system in your leg is under significant strain. The most serious complication related to MTS affecting the legs is the increased risk of Deep Vein Thrombosis (DVT). Because of the narrowed vein, blood flow slows down, creating an ideal environment for blood clots to form. A DVT can be incredibly dangerous, potentially leading to a pulmonary embolism. This is why paying close attention to any sudden, severe leg pain, swelling, or tenderness is paramount, and seeking immediate medical attention is non-negotiable. So, how do doctors typically diagnose MTS when these leg symptoms are present? It often starts with a physical examination and a detailed review of your symptoms. Imaging tests are then essential. While Duplex ultrasound can help, more advanced imaging like CT venography or MR venography are often needed. The gold standard for definitive diagnosis, however, is often a venogram, which precisely identifies the exact point and severity of compression. My personal diagnosis in 2017, revealing a 78% iliac vein blockage, clearly illustrated how critical these diagnostic steps are for understanding the impact on my leg and overall circulatory health. Living with these leg symptoms means learning to manage them daily. For me, compression stockings have been a lifesaver, helping to support blood flow and reduce swelling. Elevating my legs whenever possible provides immense relief. Gentle exercise, like walking, helps keep blood circulating, but it's important to listen to your body. Staying hydrated and maintaining a healthy lifestyle also contribute. Regularly checking my legs for any new changes has become a routine part of my self-care. It's a tough journey, and reflecting on how far I've come reminds me of the importance of continuous communication with my vascular specialist. If you're experiencing any of these leg symptoms, don't hesitate to seek medical advice. Early diagnosis and management are key to preventing further complications and improving your quality of life. We're all on this health journey together, navigating the complexities of MTS.

19 comments

Truromom4's images
Truromom4

Im going through something similar (in the sense of they dont know quite whats wrong yet) but i feel your anxiety and concern.. Keep going and i will too... Someday it WILL get better... (i hope!!) 👍😁💜💚💜💚😎

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