This was last year following her surgery for the golf ball size tumor. Her first surgery ever and she didn’t disappoint. They had her full body volume of blood on standby, picu ready to go, cardiologist ready to step in and double the surgical team. The surgeons told us to be prepared to see her o

Did you know it’s super rare and there are only a handful of doctors in the USA that even know about it? Do you know 1 of the 4,000 people in the United States that have been diagnosed? Well meet kinley! She is 13 years old and had a golf ball size tumor removed from her pelvis last year and alittl