Let me be very clear: I am a huge advocate of research based medicine & many chronic illnesses need more research surrounding them.

But when there is so much information circulating on the internet & a lot of misinformation, the type of “research” most of my clients are doing is actually doom scrolling.

Research is incredible and can help you better understand your body - I include so much research in my work & content. But it doesn’t replace the work that it takes to feel better. And if it’s stressing you out because you feel like you’re doing something wrong, it’s really not helpful for you right now.

#mcas #heds #pots #nervoussystemhealing #hypermobility

7/29 Edited to

... Read moreFrom my own experience and working with clients, I’ve noticed that diving endlessly into research about chronic illnesses such as MCAS (Mast Cell Activation Syndrome), HEDS (Hypermobility Ehlers-Danlos Syndrome), and POTS (Postural Orthostatic Tachycardia Syndrome) can often become more harmful than helpful. It’s easy to fall into the trap of ‘doom scrolling’ where you consume a flood of information but end up feeling overwhelmed and discouraged. While research based medicine is fundamental and I fully support it, healing isn’t just about gathering information—it’s about applying it in a balanced way along with self-care and professional guidance. For example, focusing solely on new studies or anecdotal reports can increase anxiety, especially when articles conflict or seem inconclusive. This stress may activate your nervous system adversely and slow down your recovery process. What has worked better for many people I’ve supported is setting clear intentions: research just enough to understand their condition and viable treatments, then shift the focus toward actionable steps such as nutrition changes, physical therapy, mindfulness practice, or pacing activities. This approach minimizes the mental fatigue associated with over-researching and empowers you to be an active participant in your own healing. Additionally, connecting with communities centered on nervous system healing and hypermobility—not just the raw medical facts—helps provide emotional support and practical tips that don’t always make it into scientific papers. Remember, every person’s journey is unique and sometimes embracing patience and self-compassion is the best remedy. In conclusion, researching more isn’t always helping you heal faster. It’s important to recognize when information intake stops being productive and instead focus your energy on healing practices that nurture your body and mind. This balance can make a significant difference in managing chronic illnesses effectively.

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