This is what living with cervical dystonia looks like — even when I don’t talk about it.

Some days are harder than others, but I’m still here, still showing up, still trying.

If you’re dealing with something @Kevin Finds @Michael j Fox invisible too, you’re not alone 🤍 #dystonia #parkinsons #tremor #neckpain #chronicpain

1/3 Edited to

... Read moreLiving with cervical dystonia is a daily challenge that goes beyond what most people can see. This movement disorder causes involuntary muscle contractions in the neck, resulting in painful and often awkward postures. Despite the external invisibility of these symptoms, the impact on daily life is very real. I've learned that every day varies dramatically—some are manageable, while others can be overwhelmingly difficult. Pain management becomes a significant part of living with dystonia. I find that incorporating gentle neck stretches and heat therapy can sometimes alleviate muscle stiffness and discomfort. However, the unpredictable nature of torticollis means I have to remain flexible with my plans and compassionate towards myself when symptoms flare. Connecting with communities focused on dystonia, Parkinson’s disease, and chronic pain has been invaluable. It reminds me that I’m not alone in this fight, and hearing others’ experiences has inspired me to keep showing up each day. Michael J. Fox’s advocacy for Parkinson’s awareness also brings hope that increasing research and understanding can improve quality of life for many. Mental health is just as important as physical health when coping with invisible illnesses. I try to practice mindfulness and meditation to manage anxiety related to my condition. Having a strong support network—friends, family, or online forums—helps me share my struggles when I don’t feel like talking openly about my dystonia. For others living with similar conditions, I recommend staying proactive in seeking medical advice, exploring various treatment options, and finding ways to adapt your environment to reduce strain. Living with cervical dystonia doesn’t define me, but it shapes a part of my story of resilience and persistence. Remember, even on the hardest days, you’re seen and supported.

1 comment

Related posts

What actually is ✨low-tox living✨
I have no doubt that you've heard of this phrase or seen it floating around on the internet, but what does it actually mean?   "Low-tox living" refers to the reduction in synthetic chemicals in your home, routines, and lifestyle. You are minimizing the amount of toxins you are exposed
Jordyn Milbrath

Jordyn Milbrath

200 likes

A wooden console table with two large textured vases holding dark foliage, three black candle holders with white candles, and two woven baskets underneath. The image has text overlay: "Aesthetic Decor Living Room Edition."
A modern living room featuring a large white sectional sofa with various neutral-toned pillows, a round light wood coffee table with decorative vases, and two framed abstract artworks on the wall. A tall plant stands in the corner.
A bright living room with a light-colored sofa, a round wooden coffee table adorned with flowers, and a wooden armchair draped with a striped throw blanket. Large windows with sheer curtains illuminate the space.
Aesthetic Living Room Decor
I’ve been having a tough time figuring out what exactly i want for my living room decor. it’s been so tough due to having light grey walls. but these inspos make it SOOOOO much easier! I also love a modern look ✨🤍🖤 i’m definitely obsessed with farm house, but i do believe that modern has my hea
Jenn

Jenn

1133 likes

A small brown dog sleeps on a bed with a pug-patterned blanket and pink pillows, illustrating the title "why i HATE dorm living as a college student."
A cluttered dorm desk features a laptop playing a video, a bowl of popcorn, markers, a coloring book, and a jewelry stand, with the text overlay "no privacy...ever."
A dorm window sill is decorated with small pink Christmas trees, flowers, and window clings, with city buildings visible outside, captioned "so.many.rules."
why i hate dorm living as a college student
dorm living can really make or break your college experience. as an introvert and generally not a party goer I can say with absolute certainty that my college experience has been ruined since living in a dorm. now for those of you going into college and going to live in a dorm, this is not meant to
maddie schultz

maddie schultz

1481 likes

Tired of living paycheck to paycheck
Things are tough right now. The prices of everything seem ridiculously high (I mean, I can't even make it out of the grocery store for less than $275 these days Credit card debt is soaring for so many individuals and families. And incomes, well, they just aren't keeping up. So, how can
Lizzy Reaux

Lizzy Reaux

881 likes

Apartment Update: Living Room!
This is just part of the living room but I love how it turned out! The book wall is gorgeous. The couch 😭❤️ Everything! 😍 What do you like best? #springbreak #Lemon8Diary #beforeandafter #homedecor #homeaesthetic #apartmentfinds #booklemon8 #bookshelf #bookshelves #lemon8c
Kistal

Kistal

4337 likes

Update my Living room with me! ✨🌷
FINALLY one less grey wall in my apartment 😭💗 this project was definitely a test to our marriage 😂 installing wallpaper is not for the weak but I think as a first time, we did really good! It took about 2 hrs to install with plenty of breaks 😅 There are a few bubbles I need to get out still and I p
Morgan_Ford

Morgan_Ford

1829 likes

🤯😳Living full-time in a CAMPER 😳🤯
🫶🏻 What I actually mean when I say we live full-time in our camper! Welcome to our home on wheels! 🫶🏻 #camping #camp #rvlife #home #homeaesthetic #homeideas #minimalist #travelwithme2024 #Lemon8Diary #healthylifestyle2024
Kearstin

Kearstin

1387 likes

Step Inside: My Cozy Living Room
This is my living room, featuring small blue decor pieces from At Home. I'm considering adding blue pillows and hanging up some curtains. What do you think? I feel like it's missing that pop of color! #lemon8diarychallenge #livingroom #makeover #wisconsin #unfiltered #apartmen
CharKnowsTech_

CharKnowsTech_

1173 likes

A modern living room featuring an Ashley's furniture L-shaped couch in dark gray with throw pillows, a white wire coffee table, and a light gray rug. Three framed artworks are on the wall.
A close-up of an IKEA coffee table, a white wire-frame design with a round top. It displays Target table decor, including a vase with dried foliage and ceramic containers.
A light gray IKEA rug with a shaggy texture covers a wooden floor. A white coffee table and a dark gray sofa are partially visible in the frame.
LIVING ROOM TOUR!
Here is my modern living room, that I love so much! Ashley’s furniture couch ($900): A little bit pricey, but completely worth it because it is one of the most comfortable couches I’ve ever sat on. Sometimes I even fall asleep on the couch because it is so comfortable. I love the color and mak
Tiara Johnson

Tiara Johnson

474 likes

soft living ✨
happy Friday! have a wonderful day, friends 🌷 what’s been the highlight of your week? #theamarijohnsonco #neoinfluencer #fridaymorningvibes #morninginmylifevlog #morninginmylifeasastudent #collegestudentathome #softmorning #slowmorning #7amroutine #pilatesgirlie
faithandflaire

faithandflaire

237 likes

A person stands on a balcony at sunset, overlooking an ashram, with text indicating "Living in an ashram What I eat in a day Ayurveda inspired."
Two plates of Ayurveda-inspired breakfast with papaya, kiwi, granola, and a sauce, highlighting the benefits of eating kiwi and papaya in the morning.
A plate of Ayurveda-inspired lunch featuring rice, vegetables, and patties, with text detailing recommended meal times for digestion.
WIEIAD living in an ashram ⭐️🌱
I took a leap of faith and went on my first ever solo trip. I decided to stay for 3 weeks at an ashram to do my 200 Yoga Teacher Training. This is what I have eaten so far, 3 meals a day with little to no snacking in between. A lot of warm tea. And learning so much about Ayurveda, Vedic philoso
Lisa Vercetti🪐

Lisa Vercetti🪐

14 likes

Living 🙌🏽
Heavy on I’m doing what makes me happy🤞🏾❤️ #fyp #fypシ #explorepage #explorepage✨ #wordsofaffirmation #aestheticgirl #healingjourney #healthylifestyle #shareyourthoughts #healing
Glow&HealEsthetics

Glow&HealEsthetics

15 likes

A woman with long brown hair stands with her back to the camera, looking out at a blue ocean with buildings and a mountain in the distance. The image features text overlay: "6 WAYS TO MAXIMIZE YOUR SALARY AFFORDING A LUXURIOUS LIFESTYLE."
A hand in a light-colored sweater holds a small dessert with red fruit topping. The image includes text overlay: "OPEN A HYSA" explaining the benefits of high-yield savings accounts for earning interest.
A cityscape with modern skyscrapers under a cloudy sky. The image features text overlay: "MASTER CREDIT CARD POINTS" discussing how to use credit card points for travel or purchases.
LIVING LUXURY: 6 Tips for Maximizing your Salary 💸
News flash: You don’t need to be rich to live a luxurious lifestyle! ✈️ The term luxurious and what it means to live a luxurious lifestyle differs person to person, but if you’re looking to have extra money to spend (whether it be through investing and growing your money or budgeting to save mon
hannah 💟

hannah 💟

36 likes

✨ Intentional Living: My Low Buy/No Buy Journey ✝️
I know I’m late to creating my low buy/no buy list for the year, but it’s better late than never! ⏳ This year, I’m committed to spending wisely 💰 and living intentionally 🌱, guided by God’s Word 📖. My list is rooted in biblical principles, reminding me to be a good steward of the resources He’s
Char

Char

626 likes

This Is Living
Life is meant to be enjoyed and that’s what I plan to do. 📍Cartagena, Colombia owes me nothing! Literally one of my favorite places to visit. #colombia #cartagena #cartagenacolombia #blackgirlstravel #travelwithme2024 #travelcreator #placestovisit #springbreak #vacationvibe
All Things Rich Auntie

All Things Rich Auntie

78 likes

I’m living vicariously through my kids & IDC 😆
This reading nook is straight out of an enchanted forest and I STAN!!!😍 I grew up watching Ferngully, tinkabell, & thumbalina and now I’m a hippie, plant mom, matcha drinking, spiritual mama! No talks about that transition enough in my opinion. But anyway, here’s what you’ll need to create y
Femme Rebelle

Femme Rebelle

3656 likes

Start Living the Luxury Soft Life You Deserve
As Black women, we often carry the weight of the world on our shoulders, balancing careers, families, and societal expectations with grace and resilience. It's time to recognize that we deserve more than just surviving; we deserve to thrive and indulge in the luxury of life. Why Do We Deserv
Sis wemade it

Sis wemade it

138 likes

A cozy living room with a light L-shaped sectional sofa, wooden coffee table, and TV console. It features a large woven pendant light, wall decor, and green plants, with sliding glass doors leading outdoors. The text overlay reads "Living Room Inspo For my future apartment."
A modern open-concept living and dining area. It features a light L-shaped sectional sofa, a round coffee table, and a wooden dining table with chairs. Pendant lights hang over the dining area, and plants adorn the space near a window with sheer curtains.
A warm living room featuring a light L-shaped sectional sofa on a rug, a white round coffee table, and a TV on a media console. A wicker egg chair, floor lamp, and string lights add to the cozy ambiance, with plants providing greenery.
Future Living Room Inspo✨🌸
#Lemon8Diary #lemon8diarychallenge These are so cute! I’ve been saving these on my Pinterest board. I love the idea of having a sectional with a pull out bed. I want to do cozy movie sleepovers in the living room! I also love the touch of pink🩷 What do you guys think?? #house #ho
Linsi🌷✨

Linsi🌷✨

246 likes

You Need A Living Trust!
@Welcome Baddies What I love best about living trusts is that you can gift your assets, like an estate, to your chosen beneficiary and receive a major tax break in comparison to your regular real estate transaction. To obtain a living trust, you should seek the expertise of an experienced
Welcome Baddies

Welcome Baddies

76 likes

A potted plant in a wicker basket stands against a light wall, illuminated by sunlight casting leaf shadows. The text "THE OVERLOOKED SECRET TO SIMPLE LIVING" is overlaid, with the Lemon8 logo and username "@kristenbakeberg" at the bottom.
The Overlooked Secret To Simple Living
In our modern world, the pursuit of simplicity has become a coveted goal. However, amidst the frenzy of decluttering hacks and minimalist aesthetics, there lies an often overlooked secret to simple living: Mindful Consumption. Mindful consumption is the practice of carefully considering our purc
KRISTEN | Simplifying Mom Life

KRISTEN | Simplifying Mom Life

42 likes

Living Room Inspo
It definitely gives a Luxury vibe. I am in love with the black and gold. What do you think? #livingroomdecor #livingroominspo #lemon8homedecor #lemon8home #blackandgoldhome #abstract #boujie #livingroom #livingroomideas #shareyourthoughts
D R E A 🌸

D R E A 🌸

391 likes

A hand holds a set of keys in a light-colored, empty room with light wood flooring, suggesting a new home or apartment. Overlay text asks, 'WHERE DO YOU LIVE? & HOW MUCH DO YOU PAY FOR RENT/MORTGAGE?' inviting discussion on housing costs.
cost of living check!🏠
i live in michigan and pay $1,000 a month for a 2 bedroom, 1 bathroom apartment. honestly, it’s a pretty good deal for the space i get, but with michigan’s unpredictable weather, it sometimes feels like i’m paying for four different climates in one place! i’m always so curious to see how much other
e

e

373 likes

Living room upgrade! Ivory wool rug around $500!
New wool ivory rug for the living room! Whats even better is the price! This is the bigger size thats available and with the current sale it’s just around $500 🙌🏼 Linked here: https://liketk.it/4GElj #rug #woolrug #rug #homedecor #homeimprovement
Lifeofadesigner

Lifeofadesigner

86 likes

See more